Re: How do I prevent them from coming back?

From: Bernie and Beverly Doucette (bnb@cybrzn.com)
Wed Oct 25 17:23:12 2000


Will have to get to your questions tomorow my dear..running abit out of time today...but I WILL get to them! Did you get " stuff " from Helen?

If not let me know and I will get it to you!!

Bev

>----- Original Message -----
From: rikam <rikam@uswest.net> To: Multiple recipients of list ADHESIONS <adhesions@mail.medispecialty.com> Sent: Tuesday, October 24, 2000 11:22 PM Subject: Re: How do I prevent them from coming back?

> Oh, thank you...your questions helped me understand adhesions a lot
better. > I would like to hear more about them getting tougher over time. That is a
> serious concern. Do you know how tough the thick dense vascular type get?
> I thought I was the only one...when I sit oh my jeepers...aghhh...talking
> pain...I've always tried explain to folks why I am always

standing...doesn't > seem as bad a sitting or laying...even if it's doing nothing....my doctor
> was trying to figure this out. He thought I should have more pain when
> standing...also there is pain in the back (in my back)directly behind the
> pain in the front which is where my belly puckers in...any ideas? I have
the > same excruciating pain when I lay down at night, if not more...he sort of
> figured that out...he said you are laying on your side aren't you? I told
> him yes. He said don't. When on my side, my legs are sort of the way
they > are in a sitting position....but laying on my belly is totally out of the
> question and laying on my back pulls unreal even the incisional scars...I
> have horizontal and vertical starting at sternum and connecting to
> horizontal going to each hip...there is one spot that is drawn in very
> deeply as though something inside is pulling the skin inside...it gives my
> belly the appearance of having two halves to my belly and then a deep
gorge > where it pulls in...very deep...hurts over that area a lot.
>
> Do adhesions cause pain other than from intestinal related problems?
> What other pain do they cause? Could the ones in the uterus/bladder area
> cause pain? What nerve sensors do we have within the belly? Where would
it > be possible for us to feel pain? Also, the inflammation...can internal
> inflammation cause pain? Do you know how?
>
> exercise...eekkk...oh my no way other than walking....when the
inflammation > happens i run a fever...I did two very careful and cautious
> bounces...without my feet leaving the mat, on a trampoline just to appease
> my children...I went back in the house and did not go back outside for
over > a month. Not good at all
>
> Could you explain the part about sitting and the intestines not being able
> to move up and to the back of the person? I've not been able to
understand > the deep severe pain caused by sitting but I didn't know the intestines
> moved up and to the back could you explain this so I can get a picture in
my > head of how this works? What about the uterus and bladder? My uterus and
> bladder look as though they are one and several surgeons have attempted to
> remove the uterus but have been very unsuccessful and it's caused serious
> problems The bowel as well is attached there unable to safely be freed
up. > Are those two organs supposed to, "free float" as well...I always feel
> horrible pain in this area ...it's also where the belly pulls in at least
a > quarter inch inward. I know I have problems with my bladder...hurts a
> lot...takes me sometimes ten to thirty minutes to pee and anything in the
> bladder causes pain...they think probably a fistula , very small, between
> bladder and intestines is a high probability. I know there was an injury
to > the area.
>
> Gee I wish someone would write a book...from the patient's
> perspective...I'd bet it would sell. I'll buy a copy. Even put drawings
in > there...I don't understand how and why adhesions have changed my life...I
> just know that they have. I don't understand the physiology but would
> desperately like to...after all it is my body and I do want to take care
of > it...inside and out.
>
> I almost spent money to have the adhesions dealt with through some
external > laser...almost...but it just didn't make any sense to me at all.
> Thank you
>

>> ----- Original Message -----
> From: "Bernie and Beverly Doucette" <bnb@cybrzn.com>
> To: "Multiple recipients of list ADHESIONS"
> <adhesions@mail.medispecialty.com>
> Sent: Tuesday, October 24, 2000 12:29 PM
> Subject: Re: How do I prevent them from coming back?
>
> > Please send substantiating information as to how PT can soften adhesion
> > tissue?
> >
> > Adhesions are located deep within the abdomen and many surround the
> > intestines, as time goes by the adhesion tissue toughens thus constricts
> the
> > intestine or pulls other attached organs out of position more and more,
> how
> > can PT help in that process?
> > How does a therepist massage adhesion on the bowel? What about in the
deep > > abdomen? There ia the large thick rectus muscle as well as a layer of
> fatty
> > tissue between the surface of the abdomen and the adhesions, how are the
> > adhesions massaged?
> >
> > A TENS unit is a nerve stimulator, how would that be of benefit on
> adhesion
> > tissue as there is no nerves in adhesion tissue? And where would a TENS
be > > placed on a person for abdominal adhesions, as without a laporoscopic
> > surgery, it is unknown where the adhesion are and what they are attached
> to?
> >
> > Excersise that cause pulling of the organs that adhesions are connected
to > > will increase inflamation thus pain, if a person cannot bend or sit for
> long
> > due to the intestines not being able to move up and to the back of that
> > person becasue they are attched to the peritoneum ( inner abdominal
wall ) > > wouldn't excersise create even more pain? At times even movement while
> > riding in a car can cause pain simply from the motion of the moving
> vehicle.
> >
> > Are there brochures or information on these treatmenst? What has the
> history
> > been as far as success? How is this success tracked if there is
statistics > > on PT & Adhesion disease?
> >
> > Have you seen adhesion of the bowel or pelvis?
> >
> > It is imarative that comments of this nature be substantiated for those
> who
> > are desperatly looking for medical intervetion and it is also important
> for
> > them not to pay money they do not have in treatments that will be
> > ineffective for this disease...it is my opinion that PT will not help
> > adhesion sufferers other then to empty the pocket books. BUT...show me
> > proof of all that was discribed here and I will be very willing to
> research
> > it.
> >
> > Your new here, and we are happy that it worked for you, Paula, and who
did > > your surgery? How many surgeries have you had and how may years have you
> > suffered with adhesions? Did you have endo as well my dear? Thank-you
for > > sharing this and we look forward to hearing more on this and answers to
> > these questions as well.
> >
> > Sincerely yours
> > Beverly

>> > ----- Original Message -----
> > From: ZIMLICKI,PAULA M <MKT-PMZ@womans.com>
> > To: Multiple recipients of list ADHESIONS
> <adhesions@mail.medispecialty.com>
> > Sent: Tuesday, October 24, 2000 12:10 PM
> > Subject: RE: How do I prevent them from coming back?
> >
> > > I suffer from adhesions due to so much abdominal surgery. I had one
> > surgery
> > > for the adhesions, which I always found ironic since surgery is what
> > caused
> > > them in the first place! The second time the adhesions began giving me
> > lots
> > > of pain I tried physical therapy, and it worked. The pain was so
severe > > that
> > > it woke me up whenever I turned over at night. It's important to get a
> > > physical therapist who has received specific training in abdominal
> > > adhesions. The American Physical Therapy Association, which has a
> website,
> > > can give you information as to whether a PT in your area is available.
I > > > encourage all of you to try this. Through the use of ultrasound, scar
> > > massage, heat, TENS unit, and exercises tailored toward the adhesions,
I > > was
> > > spared another abdominal surgery. The PT treatment does not get rid of
> the
> > > adhesions but can soften them enough so that they don't cause the
pain. > It
> > > spared me another abdominal surgery! I would be glad to answer any
> > > questions.
> > >
> > > Paula M. Zimlicki
> > >
> > > mkt-pmz@womans.com
> > >
> > > > -----Original Message-----
> > > > From: acinom@primenet.com [SMTP:acinom@primenet.com]
> > > > Sent: Sunday, October 22, 2000 9:09 PM
> > > > To: Multiple recipients of list ADHESIONS
> > > > Subject: How do I prevent them from coming back?
> > > >
> > > > Hi everyone! I just stumbled upon this site tonight, I have yet to
> join
> > > > the forum, but I was wondering if anyone could help me. I have
endo, > I
> > > > had 2 laps in 99, and I have another one scheduled for October 30th.
> > > > Each of the last times they found more problems with the surgical
> > > > adhesions from an appendectomy back in 88 with minimal endo. The
> amount
> > > > that came back in just 4 months was amazing. Well, the pain is
back, > > > > and again I suspect it to be adhesions rather than endo, but who is
to > > > > know for sure which is causing the pain since I have both problems?
I > > > > dont want to take Lupron or any other hormonal treatment other than
> > > > bcp's particularly because I fear the big problem is the adhsions so
> why
> > > > mess with endo drugs if that isnt the issue? Anyway, my questions
for > > > > you are these:
> > > > Have any of you tried Acupuncture? Either to relieve pain or to keep
> > > > adhesions from reforming (is this possible?)
> > > > Is there anything I can do after this surgery to retard the growth
of > > > > this stuff?
> > > > Please email me at acinom@primenet.com if you can be of any
> assistance.
> > > > I appreciate it more than you can imagine!
> > > > I hope this finds you all pain free and blessed with love and
laughter > > > > *HUGS*
> > > > Monica
> > > >
> > > > to the unsubscribe form at
> http://www.adhesions.org/forums/listcmds.htm
> > >
> > > to the unsubscribe form at

http://www.adhesions.org/forums/listcmds.htm > >
>


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