To ALL of our members....As we move into the month of independence...I am hoping that many of us can celebrate the independence of our suffering as we watch fireworks...or share time with family and friends. Some of us may be a bit stiff and sore from recent surgeries...and others of us will celebrate by actually being able to perform many of the tasks it takes to put together a celebration for the "4th of July". And as with any form of fight for an independence from bondage...be it slavery, religious persecution, dictatorship of any kind or suffering chronic pain...like all those who dared to fight to make a difference in our country, in our world...or those who challenged the unknown in an attempt take back their lives and open doors for those who would follow...and won, may WE, who have trod that path of chronic pain, be liberated from the suffering of ARD...and as we celebrate this year of " Independence 2000 "....keep a smile on your face and know that , " YES, there is hope for us now and we WILL win this one too friends, for us and for all who will follow ! " :-)
God Bless you Joe, Jim, Kay, Helen, Beth, Kathy, LeeAnne, Ginni, Pam, Deb, Debbie, Sherry, Joan, Joanne...and those coming up for a surgery: Marian, Karla, Mary, Dena, Mary, and many more throughout the world. And as we regain our health, our hands reach out to the next one and the next one until we have pulled each one of you through to a new life free of suffering!! As more and more of us connect following surgeries, we are building a wall of knowledge, love, compassion, friendships, understanding and perseverance mortared with fierce determination to take care of all who suffer ARD and LIBERATE them as well !
NO ONE will ever be able to break what we have built together through this society! Through our sufferings and our familys' sufferings, we have lived a hell on earth and we may have been down trodden by many; but we are rising, and I mean RISING, in numbers that will soon force recognition and respect...along with the high quality of medical care ALL people deserve. When that happens folks, ARD will be eradicated, as it is my belief that the one real cause of this disease is " surgical negligence."
Please offer your theory on this one. My comments here are in response to a pathology report I received today following a member's recent adhesiolysis procedure:
I have been saying all along that when one suffers pain in association with adhesions, there is inflammation !! And by gosh, I am right, at least on the point that adhesions are a reaction of the body to a " foreign body " in the internal cavity!!! I am also convinced that:
1.) the inappropriate handling and trauma of the inter-abdominal /pelvic organs is what creates that " foreign body "....
a.) the roughness of the surgeon to the tissues during the surgery,
b.) the removal of intestines and other organs for " exploratory " purposes - some actually being laid out on tables for inspection and thus gathering microscopic and larger pathogens, and then carrying them to put them back into the cavity as well,
c.) the leaving of " debris " or blood clots , gauze slivers, powder from the surgeon's gloves, etc...
ALL responsible for creating the " foreign bodies " that the adhesions are sent out to inhibit and cover - in order to protect the rest of the organs in the cavity!! My intestine ( on the lower right side ) was attached crossed, upside down and attached to my left inner abdominal wall...Why? How? When the surgeon pulled MY intestine's up through the incision to amputate my " benign " appendix, he then simply shoved my intestines back into the cavity and wiggled them into " place."
I have witnessed this same thing happening many times while working in surgery! My surgeon may not have realized at the time that the procedure of pulling the organs out into the open allowed pathogens to attach to my intestines - as well as enter my abdominal cavity - when he stuffed my intestines back into the incision; thus a situation where foreign bodies could enter and cause my body to create adhesions to surround those pathogens...thus adhesions everywhere!
My intestines DID NOT simply fall into place...but they were forced into an abnormal position and adhered in that way! And NO clot evacuation was done, ( the time-consuming tedious removal or clean up of the clotted, " old " blood in the abdominal cavity - caused by internal bleeders during the procedure!! ) Cause and effect!! I believe the motion of just stuffing the intestines back into the incision - or even removing them from the abdominal cavity - is the ultimate cause of ARD. And that is SHEER NEGLIGENCE by the surgeon!!! These practices are antiquated, past history surgical procedures - NOT a valid excuse for those practices to continue any more in any operating room!! And this is what we must challenge; not only for those of us who suffer ARD, but for ALL human beings so that they may never have to live what we have lived!! Let us shout this to every surgeon, medical center and medical school, to ALL who will listen!!! I do believe that ARD can be eradicated with a simple process of care in that operating room!! Nothing will ever convince me otherwise now, as I read your report...I am right!!!!
In friendship, Bev