Refresh my memory. Who performed your surgery? Thanks for being open and willing to discuss your story. With each person who contributes to this forum, I gain a great deal from it.
To all: Thanks to all of your for sharing here. I feel such a special kinship with each of you.
I have thought and felt some things regarding my condition and then felt really silly about it(kind of like the story Bev shared about the prune juice), only to find out I wasn't the only one who felt that way. It is such a comfort to know I am not alone in what I have dealt with.
I would be interested in actual statistics of Drs Reich & Redan as well as Dr. Korell patients. I would like to know how their patients feel after 90 days, 6 mos, 1 yr and after. Do their patients experience a 100% improvement? Out of all of their adhesion patients, how many of them have recurring problems. I think they are indeed some of our best resources right now, but we still need to go into any surgery being very realistic in our expectations.
I know when I had my surgery this past March, Dr. Daniell (here in Nashville) was very good at counseling me for months prior to me making that decision. I knew what my odds where. It has been so nice to be under the care of someone who understands ARD and how it impacts the lives of those it touches. I was being bounced from doctor to doctor. I was so cynical and frustrated by the time I went in for a consultation with him, I don't think I even let him talk. When he did speak he said (about one of the doctors I'd seen) "Let's give him a pelvis full of adhesions and see if he thinks its in his head" My jaw hit the floor. He completely took the wind out of my sails.
In my case, my outcome exceeded my expectations, but I know that there is always that possibility that they have reformed and I may not know it for awhile. Right now, I am enjoying the improvement I have to its fullest and I will continue to take one day at a time.
God bless all of you this Independence Day!
Sherry Perry Nashville
>----- Original Message -----
From: "Anne Hayashi" <mhaya0902@aol.com>
To: "Multiple recipients of list ADHESIONS" <adhesions@forum.obgyn.net>
Sent: Tuesday, July 04, 2000 2:01 PM
Subject: Getting the Word Out
> Best Wishes to Mary and Bev on their Journey to
> Duisberg to see Dr. Korell. "Alles Guete und Mach's Guet".
> You are really doing an outstanding job of getting the
> word out! Karla, my prayers and best wishes for getting over this set
> back quickly. Please do not lose heart. We are all here pulling and
> praying for you. You have come to be a wonderful friend to all of us
> out here on the IAS message board.
> Since I began this "Dateline" conversation, I wanted to add one more
> thought. Not all of us are given a great prognosis for recovery. I
> have written to Dr. Reich and to Dr. Korell, as well. Although they
> offer some hope, neither is willing to commit to a recovery, like one
> that Beverly was able to experience. It has to do with the extensive
> involvement of the lower peritoneal wall. No new news, but there are
> raw surfaces created on the peritoneum everytime you lyse, and even
> though there is extensive clot evacuation, 300 ml of ringers lactate is
> used(as in my last surgery), these sticky raw surfaces can and did
> readhere. The adhesions from the bowel and bladder to the peritoneum
> increased two fold. Even with a barrier, I am given
> only a 50% reductive chance. I have had multiple surgeries and
> peritonitis.
> My only point is that yes, we need a human interest story,and that there
> are successes with better surgical procedures, but we also need to make
> the point that research needs to be stepped up. We need better ways to
> reduce or eradicate the effects of fibrin formation. I think it is
> within our reach, since the mechanism is known, if the money is put into
> research. For this reason, we need to make the point that the problem
> has not been solved, there is a huge need out there,and that research
> efforts will reap monetary returns.
> Wishing you all again a Happy Fourth and may this be
> a day when we gain the resolve to collectively make our
> voices heard.
> P.S. Just found another place to write: http://www.healthbeat.kron
> They are in the San Francisco Bay area.
>