Best Wishes to Mary and Bev on their Journey to
Duisberg to see Dr. Korell. "Alles Guete und Mach's Guet".
You are really doing an outstanding job of getting the
word out! Karla, my prayers and best wishes for getting over this set
back quickly. Please do not lose heart. We are all here pulling and
praying for you. You have come to be a wonderful friend to all of us
out here on the IAS message board.
Since I began this "Dateline" conversation, I wanted to add one more
thought. Not all of us are given a great prognosis for recovery. I
have written to Dr. Reich and to Dr. Korell, as well. Although they
offer some hope, neither is willing to commit to a recovery, like one
that Beverly was able to experience. It has to do with the extensive
involvement of the lower peritoneal wall. No new news, but there are
raw surfaces created on the peritoneum everytime you lyse, and even
though there is extensive clot evacuation, 300 ml of ringers lactate is
used(as in my last surgery), these sticky raw surfaces can and did
readhere. The adhesions from the bowel and bladder to the peritoneum
increased two fold. Even with a barrier, I am given
only a 50% reductive chance. I have had multiple surgeries and
peritonitis.
My only point is that yes, we need a human interest story,and that there
are successes with better surgical procedures, but we also need to make
the point that research needs to be stepped up. We need better ways to
reduce or eradicate the effects of fibrin formation. I think it is
within our reach, since the mechanism is known, if the money is put into
research. For this reason, we need to make the point that the problem
has not been solved, there is a huge need out there,and that research
efforts will reap monetary returns.
Wishing you all again a Happy Fourth and may this be
a day when we gain the resolve to collectively make our
voices heard.
P.S. Just found another place to write: http://www.healthbeat.kron
They are in the San Francisco Bay area.