Re: ADHESIONS DON'T CAUSE PAIN !-Jaynie
From: chris smith (smithy@maine.rr.com)
Thu May 25 12:34:19 2000
At Tue, 23 May 2000, Jaynie Jarvis wrote:
>
>At Tue, 23 May 2000, chris smtih wrote:
>>
>>At Fri, 19 May 2000, Jaynie Jarvis wrote:
>>>
>>>I KNEW THAT WOULD GET YOUR ATTENTION ! That is what my gyno. told me.
>>>She says I have phantom pain just like the people that get there hands
>>>cut off. My nerves keep firering and sending pain signals to my brain.
>>>We need to retrain them. So I have changed tracks again. Taking
>>>nortriptaline to stop pain signals and back to stup-id P.T. Bad
>>>attitude !!! I was going to PA to get an operation with Redan and Riech.
>>>I was so disapointed. I was looking for a quick fix. I have done some
>>>reading about this "CHRONIC PAIN SYNDROME." SHE MAY BE WRONG BUT I HAVE
>>>TO GIVE IT A TRY. ANOTHER WEIRD THING THAT HAPPENED IS REDAN LOOkED AT
>>>MY VIDEO FROM MY LAST SURGERY AND SAID HE SAW NOTHING WRONG INSIDE OF
>>>ME. SO THAT MEANS THAT DOCTOR TOOK OUT MY OVARIES AND APPENDIXS FOR
>>>NOTHING. He came out and told my family that it was a good thing I came
>>>because my appendixs was about to burst. The pathology report says my
>>>appendixs was GLISTENING AND GROSSLY NORMAL. I feel so violated. Then
>>>I here this guy is notorious for doing this to women. One of THOSE. My
>>>doctor made sense when she said " You have let the boys try to make you
>>>feel better, 3 times they cut on you, now let a girl try." And she said
>>>the way my body is acting is like someone who has been sexually abused
>>>as a kid. I don't know. So maybe I don't have adhesions ? I don't know
>>>? I may even go to a live in pain clinic. Maybe that would get my life
>>>back. Thanks for listening. I am going to find the chronic pain forum.
>>>But I will check back always. I hope everyone finds there path to a
>>>pain free life. Jaynie
>>
>>Hi!
>>
>>I felt I had to respond to this post. First, I would wonder about any
>>doctor who made blanket statements like "adhesions do not cause pain" or
>>"adhesions always cause pain". The fact is that the human body does not
>>work this way, "always" or "never". Second, I have had positive results
>>from nortryptilene and after 3 years of searching for an answer I have
>>decided maybe its time to take a break. Third, I would not get too
>>upset by the pathology report. Why do you trust the pathologist more
>>than the surgeon? Or even another surgeon who wasn't there at the time
>>of the surgery? I have heard from people who were told by the surgeon
>>that their ovaries were 100% normal (yet he removed them anyway) and the
>>pathologist said otherwise. I had a gland in my neck removed once, the
>>surgeon told me what a mess it was (adhesions?) and how difficult it was
>>to remove, how enlarged it was, the xray documented that there was
>>something wrong as the ducts were compressed, yet the pathology report
>>came back "normal." So who am I supposed to believe? I would also wonder
>>about a doctor who referred to the "boys" and the "girls" Sounds like an
>>inflammatory inference to me. After listening to opinions from all
>>different specialties I realize they all have their own opinions and
>>viewpoints. I hope the chronic pain management can give you a break for
>>awhile. Then maybe something will happen that might give you some
>>clues. Good Luck!
>>
>>CHris S.
>
>Chris, what do you mean some clues ? Are you saying I don't have a CLUE
>? Are you being sarcastic ? Or sincere ? The rest of your letter is full
>of anger for the medical people and I agree, the fustration of it all.
>Could someone make up there minds and point me in the right direction
>please. I hear ya girlfriend, Jaynie
Hi Jaynie
Help! What did I say? No, I wasn't being sarcastic. By "clues" I meant
just what the word means, not "clueless". Why would you think I meant
that? You seemed confused about the reason for your pain so I meant that
maybe in time something would come up that would help someone figure it
out. That's what I meant by "clues". In the meantime, the pain clinic
would hopefully be able to help. Then I told you I had a positive
experience from nortryptilene. I thought that would be encouraging. I
have been on the medical merry go round for 3 years and have finally
found something that works. I have no anger for medical people and
don't know how I gave that impression. I was just defending your
surgeon that took out your uterus and appendix. He was the one that was
there at the time, with a patient having high expectations of him, not
the one watching a video of someone else's work. Sometimes we get
conflicting reports (and I gave a few examples) and we don't know who to
believe. I wanted you to know that you aren't the only one this has
happened to.
I meant nothing but encouragment, since you seemed confused by what has
happened. I am sorry you got the wrong impression from my post.
Chris S.