I forgot to mention in the email I sent privately that their are laws that protect us as patients and allow us to receive the pain medications that we need....we cannot be denied that help. We have to educate ourselves and then go armed into our physicians' offices with the facts. I will try and see if I can find the information on the net to send to you.
There is also a site out there for pain sufferers....they have people that will help you find a doctor willing to provide the pain medication. What state are you in?
I will try to find all of this and post it on this site again.
Good Luck!
Karla N.
>----- Original Message -----
From: Bob <BMarkford@aol.com>
To: Multiple recipients of list ADHESIONS <adhesions@forum.obgyn.net>
Sent: Saturday, May 06, 2000 4:17 PM
Subject: Searching for Help
> I am sure this will sound familiar. My wife has had numerous surgeries,
> both open and scope, for adhesions. We have made trips to NY City and
> the Poconos to have it performed by the best Drs out there. She had
> nerves severed in her spine to elimante the pain only to have them
> "grow" (??) back and the pain return. In August of 1999 we were in
> Houston with 2 surgeons that were supposed to be the best. They were
> very caring and understanding. However, the pain is back along with
> bowel problems and we are being given the run around with attempts to
> treat it with diet change, clonopin, neurotin and of course pain
> killers, this time Stadol spray. I have been following the progress of
> both Intergel and ADCON-P and wish the FDA would hurry up. I guess the
> main thing I want some help on is if anyone know of any specific Dr. in
> Canada of Europe that will take on a patient from th US? This has been
> going on since 1994 and I have watched my wife, an RN, go throughsome
> much emotionally and physically that I am willing to do anything or go
> anywhere. She currently is so out there from the medications, it scares
> me. Bowel movements are rare and far between, she is swollen in the
> upper abdomen and they keep saying it is not blocked due to seeing the
> barium flow through ever so slightly on a GI series. I understand the
> Dr.s frustration, but they don't live with her. It is scaring the kids
> and family. Any help would be appreciated.
>
> --
> Bob Markford
>