Re: Quality of Life

From: Karen Kaplan (
Thu Mar 2 04:47:56 2000

Dana: I was told by doctors (NOT the surgeon) that it can as long as 6 months post-hyst to feel yourself again, and that was certainly true in my case, not including some of the post-op complications. Your mother is indeed lucky. Did you ever have endometriosis? Adhesions come from endo even if you have had NO surgery, and it does look like the worst cases are women who have had endo and multiple surgeries.

I will warn you to be careful about pressing your surgeon too far - my surgeon literally abandoned me when I asked her only a few questions. Much later, I found out why she avoided the issue - she knew she had made a "mistake" that guaranteed me new adhesions and thought i was going to sue her because a second "mistake" with the drug Ativan had me spending my last five weeks of post-op recovery believing I was to be fired on my first day back at work, as well as dealing with the awful side effects, including suicide ideation, of a stepdown withdrawal from that class of drugs.

Still, I do believe adhesions are the surgeon's dirty secret, so try to balance your current post-op needs with your need to ask questions. Have you read your operative records first?

Tired, Karen

>----- Original Message -----
From: Dana <> To: Multiple recipients of list ADHESIONS <> Sent: Wednesday, March 01, 2000 8:34 PM Subject: Quality of Life

> A very special thank you to everyone who responded to my last post with
> such compassion and understanding. At this point, I am 3 weeks post-op
> and feeling better. (For those who didn't read before, just had
> hysterectomy and know I had adhesions from previous surgeries.)
> I have found that since I found out I had adhesions, that every time I
> have ANY pain in my abdomen, I want to attribute it to the adhesions. I
> am constantly thinking about my state and feeling depressed about it,
> although I have no reason to think that I might not get better and be
> pain-free for quite a while to come. My mother keeps reminding me that
> she's had numerous abdominal surgeries, has adhesions and has never
> experienced ANY adhesional pain. (Lucky her!!)
> My question for everyone is- how is the quality of your life right now?
> Are you in constant pain to the point of not being able to do the
> littlest things or does it come and go, with just certain times of being
> bed-ridden? Do you also find yourself consumed with thoughts of doom and
> gloom about your condition??
> I go see my surgeon tomorrow and plan to grill him intensely about the
> number and placement of my adhesions. Although I'm depressed about the
> situation, I don't plan to accept this quietly!!!
> Thanks and take care - Dana

Enter keywords:
Returns per screen: Require all keywords: