Re: Fibromyalgia vs. Adhesions

From: Gina (gina@maine.rr.com)
Fri Dec 31 08:55:40 1999

Hi Kimmi, Thanks for your post and understanding! Yes I do think my doc just knows the word but has no clue how to check and treat FMS. I'm going to ask for a referral to someone who does know, but who would that be? Would a rheumatologist know? An ortho doc? I guess I should be glad the Dr. even knows and believes in FMS, some don't! But I'm not sure it is my problem. I think I have several different things going on, some caused by adhesions, some caused maybe by muscular/skeletal problems, some internal things going on, etc. My PCP is approaching it as if it's all one big problem which it is not. I had a big fight with my PCP this week about it in fact because I feel he should be doing something and apparently he's happy to just keep me on pain pills indefinitely. I wanted an MRI, thinking it would show SOME thing, but I am told by the doc and others that it probably wouldn't show anything. So my doc won't order it. He isn't referring me elsewhere for diagnostics either, which makes me mad. I am NOT just accepting this passively without fighting for diagnostic tests first! Anyone know anything about when intergel will be apparoved and ready for use??? Have a Happy New Year Kimmi, and all. Gina

PS: Kimmi, Yes the pain radiates to my lower back and front pelvic areas, right kidney, hip and buttock areas, front center abdominal area hurts as well. Not sure where the original problem is and whether all of this pain is radiated from elsewhere or not.

At Wed, 29 Dec 1999, Kimmi wrote: >
>Gina,
>Hi I am sorry your not getting the help you deserve.
>There is no blood test for Fibro yet,this is in the working,all other
>blood test need to be checked before FM is diagnosed, Second tender
>points have to be checked sounds to me like another doctor who just
>knows the word Fibromyalgia but has no idea how to check and treat it.
>If you suspect you have FM I would search out another doctor if you can.
>FM can and will make all your other pains and problems worse, it comes
>with a good 100 symptoms of its own along with any illness or problem
>you have it loves to go into those areas and make things worse..As for
>Antidepressants,they may help some peoples symptoms but will not fix
>every aspect of Fm,each symptom has to be addressed. Also there is
>still no real treatment for Fm its just a trial error kind of thing.
>They have yet to get my FM under control and I have tried just about
>everything their is to try.
>As for exercise this can cause extreme pain in Fm patients,especially
>patients who have myofascial syndrom pain along with it. Gentle
>stretching and knowing which part of the body you can also stretch is
>very important.
>Diet,quit smoking,exercise I swear those are automatic responses by all
>doctors,Yes they help things but they are not a cure to all problems.
>Its possible you may have Fm,or you may not,but its not a source of
>every problem that is running through the body. Most patients who FM
>have other health problems that go along with it,One of the main reasons
>they came down with FM in the first place. All your pain and problems
>need to be addressed,and it gets so frustrating when the doctors don't
>listen, Been there am There.
>The area of the pain you are describing are a few of my bad areas,what
>about lower back pain and does it radiate at all?
>Hugs and hope you find some help and relief soon
>Kimmi

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