Fibromyalgia vs. Adhesions

From: Gina (gina@maine.rr.com)
Tue Dec 28 08:15:13 1999


Hi, I have been having ALOT of severe pain the past week or so. I saw my PCP and he says he thinks I have fibromyalgia. He did not do the test for it or anything, but told me I'd have to find my own ways to cope with it (I do take ultram for pain with alleve and phenergen for the nausea these meds cause). He wants me to lose weight, exercise, etc. Well I eat less than 1800 calories a day, so eating isn't the problem, it's exercise. I'm in too much pain to exercise and every time I try to do exercises I tear muscles and am down for another week. No matter, he wants me to find a way to exercise and lose weight (I lost 50 lbs. last summer, gained 20 back, losing 50 lbs. did not solve my problems so I don't believe it would now either). I think my doc doesn't know what to do so he falls on the age old diet-exercise-quit smoking solution to every problem, the next thing was antidepressants, the new fix-all-cure for everything that ails you. Luckily I can't take them because of constipation problems.

I am convinced that I have a new adhesion from my vagina to my omentum, which is same thing they removed at my last surgery. I believe it reformed because within a few weeks after surgery I started having pain with sex again, and my belly moves with my vagina during sex. It ain't normal! Yet my doc ignored this the 3 times I have told him of the problem now. He also said he wants me to avoid any more surgeries, at all costs.

I feel abandoned and totally left on my own with these problems, no relief in sight since no one is treating or doing diagnostics on my pain problems. It is way too soon to just give up and accept chronic pain as a diagnose! I do have many of the symptoms of FMS but not most of them. I don't have migraines, I don't feel fatigued (except when in pain), the 18 trigger points weren't checked (and I looked up a pic of the trigger points yesterday, and only 6 of them hurt).

Most all my pain is on my right side, pelvic area and buttock, hips and thigh. It sometimes moves to the left as well as right, but the right ALWAYS hurts all the time, sometimes it's dull, sometimes sharp and unbearable. My bowels aren't working again, but a colonoscopy showed no problems (no blockagesm no diverticultis, no colitis, etc). I don't have an ulcer yet everything makes me nauseous. I sometimes limp when I try to walk, from the pain which shoots down my legs. My lower spine xray came back normal. I asked for an MRI and my PCP won't refer me for one because he says my insurance co. probably won't approve it--isn't that between me and my insurance co., not his business?

I'm frustrated! Upset & angry! At a total loss as to what to do next about this.

Today I am seeing the GI specialist to go over procedure results, plan what's next and probably schedule a liver biopsy (I have chronic hep c as well). Maybe he will have some answers for me today, but I am trying hard not to get my hopes up because the crash is unbelievable. Gina


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