Re: Adhesionalysis Surgery & surgeons

From: toni welsh (twelsh1@webtv.com)
Wed Nov 17 17:02:21 1999


At Mon, 15 Nov 1999, Christine M. Smith wrote: >
>At Mon, 15 Nov 1999, Beverly J. Doucette wrote:
>>
>>Peggy & Theresa and all:
>>
>>I can understand your enthuseasm about finding a surgeon who can deal
>>with adhesions, or who is willing to an adhesionalysis..and it would be
>>great if he too can do an adhesionalysis with a cure...never have heard
>>that to date.
>>
>>That is the miracle we all are looking for...BUT here are a few things
>>to think about and to ask about regarding him and to him..ok?
>>It is so important that when you elect to have another adhesionalysis,
>>that
>>you be given the best chance for a
>>" full " recovery as possible today! Even though those of us who had
>>surgery
>>under Dr. Reich don't know how the outcome will be, but we do know his
>>reputation for having a higher percentage of non reforming
>>adhesions...and
>>that gives him the edge on adhesionalysis surgery.
>>
>> That will bring me to our first point with this other surgeon...need
>>name so we can check him out further. Do not feel as though you " owe "
>>him
>>your total allegence for fear he will not accept you as a patient. Never
>>comprimise your needs for that...you must ultimatly be the one to find
>>out
>>EVERYTHING that you can about him and his procedure, experience in that
>>procedure and references for it! Get his name and do a bit of
>>tracking on him..ok?
>>
>>Next...you need to get his adhesionalysis procedure in writing. We need
>>to
>>see what is procedure includes that offer you something different then
>>any
>>other surgeon....you will be able to see that in the videos I am sending
>>you! Go back into the IAS postings of June and read or print out my
>>descrition of Dr. Reich's theory as to why adhesions reforem and why he
>>does
>>what he does in his surgery to decrease that from happenning...YOU must
>>be
>>knowledgable in all this in order to be able to know how good this new
>>surgeon is....it is all up to you!
>>Dr. Reich offers his procedure for review as this will give you the
>>opportunity to know just what he does and has done in the past. next
>>you ask
>>for a contact of another adhesion patient who HAS had his procedure
>>done...I
>>communicated with a woman who had her surgey under Dr. Reich a year
>>before
>>mine...it was a great way to learn about the surgery, DR. reich himself
>>and
>>I still keep in touch just to track her recovery, which is one year
>>ahead of
>>mine. You must also discuss with him how many laporoscopic
>>adhesionalysis
>>surgery's he does in a year, what is his track record for success with
>>these
>>surgeery's, and how DOES he track those results. Will he video the
>>surgery?
>>
>>If you think that you will offend him, or intimidate him by doing any of
>>this, then your with the wrong surgeon to begin with..this is not only
>>YOUR
>>body, but your LIFE!! You want to make darn sure YOU have all bases
>>covered before you go into any surgery this time. This time IS different
>>because now you do know what to ask your Dr. You do know much more
>>about your disorder and you do know the repercussions of going into an
>>adhesionalysis to quickly...think of what has happened to you in the
>>past!
>>
>>I know you just want to feel better...but is that going to be at the
>>risk of
>>getting worse in the future..NO! You are going to take control of your
>>medical care yourself this time....as you want this time to offer you
>>the
>>best you can get with having adhesion disorder!!
>>
>>If this surgeon is for real and offers hope to those of us who suffer
>>adhesion disorder, then we are another step ahead, ..do a good job
>>tracking these Dr.'s and you may just be opening another door for
>>yourself as
>>well as others!!
>>I have heard the claim that Dr. Semertzides has a good reputation
>>dealing with adhesions, but have never heard it from a patients of his
>>who has actually had any adhesionalysis done by him. Again, one would
>>want to gather as much information on the surgeon and his procedure and
>>statistics of success before agreeing to any further adhesion
>>surgery...unless it doesn't make any differnece to really know about
>>that surgeon and instead, just have surgery after surgery until you
>>cannot have any more at all. Check out everything for yourself and take
>>responsibility for your own future. You already have adhesion disorder,
>>doesn't mean you have to make it worse beacuase of desperation and
>>sufferring...not when you KNOW it could just be making things worse!
>>
>>If you have never SEEN abdominal / pelvic adhesions for yourself ( and
>>most of you have not I think ) then let me know and I'll send you my own
>>surgery and operative reports to study..free of charge! bnb@cybrzn.com
>>Then decide just how YOUR going to handle YOUR case!
>>
>>Just because you have agreed to a surgery doesn't mean you cannot put it
>>on hold until you are better educated and have a better chance to know
>>just what IS best for you!
>> Best of luck! Beverly
>
>Hi!
>
>I don't think you can really say there has never been an adhesionalysis
>that cured adhesions. I personally know of one person who had surgery,
>had an ileus post op, one week later opened up and was covered with
>adhesions. They were lysed and she never had a problem again. Now its
>true that unless they looked again there is no way for sure to know if
>they hadn't reformed, but since she never had pain again I don't think
>its too outrageous to say that perhaps the adhesions didn't reform.
>
>I know in my own personal case, the adhesion lysed during my first
>adhesionalysis had not reformed by 6 months. It doesn't matter if it
>never caused my pain, that is besides the point. The truth is that it
>didn't reform. So I would say that was a successful adhesionalysis. A
>small one I agree.
>
>I'm sure any surgeon could give you success stories as well as failures.
>I know my surgeon, when I asked if these were ever successful, said
>"Sure. Why else would we keep doing them? At least I hope we wouldn't
>keep doing them." I think he was honest.
>
>Just remember that the majority of people who have a successful
>adhesionalysis don't hang around support forums!
>
>Chris S.

Chris, how are you? Try not to stay here to long, when you say from the last surgery you had, same time I had mine, you had ONE adhesion, what do you mean by that? The gyn and all the drs I have seen have told me mine are to dense to even get a scope in, and the adhesions on the bowels are over an inch thick. I was wonering, cause I am thinking of surgery, but allittle scared this time.

I have been sitting here crying a and no one is home right now I have taken so many laxatives, that now NOTHING will move my bwels, the pain gets WORSE.

The gyn I had second opinion and he deals in pelvic pain and endo, said that my gyn perormed a very difficult operation,and he thinks very highly of him, he is from the east side of cinti, and I live on the west.

Just wanted to talk some, rough day. I think sometimes SOME people think we are hypocondriac. the pain is REAL!

Toni Who here is from Cinti?


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