Re: Surgery reports & adhesions

From: Gina (gina@maine.rr.com)
Sun Nov 7 07:14:21 1999


Beverly, I knew they were removing adhesions and they certainly had my permission! Maybe you were responding to someone else? It had been suspected that adhesions were a large part of my problems and pain but I didn't find a dr. to do anything about it until this year. Now my fear is I will be on a surgery merry-go-round removing adhesions again and again. I've decided that if the pain is bearable I will leave them alone until there is a proven way to prevent them growing back. Of course if the new adhesions affect my bowels or other organs, I will be forced to have them removed. Gina

At Thu, 4 Nov 1999, Beverly J. Doucette wrote: >
>At Thu, 4 Nov 1999, Gina wrote:
>>Hello Gina and all:
>I read with interest and sadness about your discovery at having had an
>adhesionalysis without your knowledge. This is very unfortunate but far
>from uncommon Gina! I to discovered that I did indeed have adhesions the
>same way. I cannot count on both hands how many times I have heard that
>same story repeated from adhesion sufferer's. Far to often of a
>happening.
>
>If you have presented to a Dr. with pain and symptoms that accured
>following an invasive medical procedure, even years after it, and have
>undergone diagnostic testing that resulted in no abnormal pathology
>being the cause of the symptoms, you must secure your operative repots!
>Many a surgical proceedure that is done for pain unassociated with any
>abnormal pathology detected results in a removal of the " offending "
>organ, and then that organ is found in pathology as NOT being the cause
>of your symptoms! You'll never know that. You may be told that the
>organ was removed, or that the organ is the cause of your symptoms, only
>to present again in a year or so, or less with the very same symptoms as
>before..and you wonder why? ...
>
>I have stated before the importance of finding out as much as you can
>about your medical condition, to educate yourself as to reasons for your
>symptoms and suffering, to take responsibility for your medical
>care...ultimatly it is your responsibility to know what, when and how
>your medical provider is handling your case.
>
>By securing your own operative reports, and ALL associated pathology and
>any cytology reports, you are beginning to take on the responsibility of
>educating yourself. You will be able to understand if you had adhesions
>for a fact, you will be able to understand just what organs have been
>affected by adhesions, and you will better understand why you feel the
>symptoms that you present to your DR. with!
>You can also bet that you are more invloved with adhesions then you are
>reading as Denovo adhesions as well as reformed adhesions are presnet as
>a result of the surgery.
>
>If you saw that you had adhesions attached to a bladder, and your
>presenting with frequent urination or pressure, then you know that there
>is a high probability that the dhesions that were lysed around or on a
>bladder have reforemd, this is as long as you have NOT been diagnosed
>with any other means of a cause for the symptom! You will be able to
>recognize what to discuss with your Dr. as possibilities for your
>symptoms by securing and reading your operative reports.
>
>You can secure your reports by signing a release form at the medical
>facility the surgery was performed at. You should NOT be charged for
>these records as you are entitled to have them for a second opinion. And
>who isn't getting a second opinion right? one never knows when they will
>be looking for a new care provider, so you actually ARE securing the
>records for that purpose! And in the event you will be taking them to
>another Dr...make copy's!
>
>Please do this now, be sure to request ALL associated pathology,
>cytology, post surgical. And all pre surgical ultra sounds or any other
>diagnostic tests that you had prior to the surgery.
>
>If you have any questions as to your reports, ask for assistance in
>understanding them..ask on this forum, look up the question on the net,
>ask me: bnb@cybrzn.com
>
>But whatever you do, secure your records!
>
>Adhesion disoder is NOT so elusive that surgeons and Dr.'s don't know
>it's there at all...it is just difficult to diagnose for a fact. And if
>all else proves negative as to your cause of symptoms, and especially if
>you have had prior adhesionalysis, and the symtpoms are much the
>same...you can bet that you have them back! YOU can bet that..a Dr.
>cannot! But be sure to at least know for a fact that you did indeed have
>adhesions at one time!
>
>And don't wait for your surgeon or Dr. to tell you that..as you may
>just wait forever!
>
>My best regards to all of you and I pray for an answer for each of you
>in your sufferring...peace within your pain can be found if you take
>responsibility for understanding it as much as you can! God speed be
>with you all! Bev


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