Re: feeling good and wondering why.

From: Mary (acbcsrt@kansas.net)
Wed Jul 21 18:11:07 1999


At Wed, 21 Jul 1999, HAM.SUE wrote: >
>Hi Mary,
>Thanks for your flattery about Vets. I always like to say to people that
>although our patients can't talk they can't lie or delude themselves also -
>so there must be times when we have the advantage!!
>I feel the same way about the experiences that this disorder has had me go
>through - if some good has come out of it's been in terms of my empathy with
>others and my knowledge of myself.
> Ive also been interested in the postings regarding Fibromyalgia. I found
>that for a long time after surgery I had extreme "tension" for want of a
>better word throughout most of the muscular system and major fatigue. Often
>the ribcage was tight to the extent that I couldn't sleep and had to get out
>of bed and into the spa pool in order to get relaxed enough to breathe
>without effort.
> I wondered about fibromyalgia at the time after reading an article by a Dr
>who had suffered with it after a car accident. At the time however I put it
>down largely to a sudden transition from being very active to being
>inactive, plus after effects of anaesthesia etc. I was also having night
>sweats etc and battling with being sent to see a psychiatrist regarding my
>continued abd discomfort So I wonder how much it is all related.
>I found therapeutic massage to be a lifesaver and also had acupuncture which
>seemed to help.
>Best wishes to all, Sue
>PS What is the compound the Dr and pharmacist cooked up that is rubbed on
>the skin??

Sue--The compound is Ketamine and Gabapenti. The suggestion to try it came from the pharmacist who has found this and similar compounds to be very helpful for fibromyalgia pain. He talked to the doctor at my request. The doctor had not used the compound before but is interested in learning how it works for me. I feel fortunate with my MD...he is one of the founders of the International Pelvic Pain Society...and is the first doc who takes me at face value when I said I was miserable and that it's NOT in my head and that there is NO reward for me in being a sick person. A physical therapist who I went to over a 3-4 month period last year ( I liked her...thought she was good) once said to me, "You are unusual for a pain person. You have no emotional attachment to the pain. You really just want it gone." I have thought about that statement a lot. It's sad to me that the sentiment exists in the health care community that we somehow want or need our pains.


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