Re: Positive thoughts, Toni--Keep fighting!

From: Michele (michele@iccom.com)
Mon May 24 23:13:50 1999


Hi Toni- The good news is that the "apron" of the omentum had mostly wispy adhesions. With the scope, just moving it, some of the adhesions broke lose, but it only takes one nasty one to move something where it ought not to be. (Like I need to tell you that, sounds like you've been through so much). With the large bowel, it's already to the left and move it further up and left. From reading your post, I'm glad it had never gone to the right.

I think the positive thought is that although adhesions were found pelvically and abdominally, I was believed. I didn't have pain with bowel movements...a little after but not that much. I'm here and still fighting. Doctors sold me hysterectomy as a solution and I believed them. No children. With ORS, it took me a year to find someone to do an ultrasound. For me, the darkest times were when I was not believed and no one was doing anything.

At least I was believed by this doctor. I don't think he's without flaws, I think it just took me too much time to find someone who heard me. I'm 33 yrs old, and have had endo since my teen years.

I'm really sorry you are going through so much--I think it's nice to know that you are being thought of and not alone. I hope to God these gels and new films help.

Take Good Care, Michele

>>
>Hi Michele,
>
>I had adhesions so bad on the omentum, that the dr did an omenectomy, he
>removed it hoping thatthis would keep the adhesions rom forming so easy.
>he had said that this is wherethey seem to be when he does alot of gyn
>surgery.
>
>That wqs done th efirst laparotomy in april, because adhesons had
>adhered to the last ovary, and the bowels was all shifted to the right
>side and he could not find the ovary. He then removed the last ovary,
>but i was still in pain after the surgery, so he did a laparoscopy in
>august to findthat he could not get through to far due to very dense
>adhesions, he thought they would still be wispy, so he schedued
>anotherlaparotomy in sept. I had extensie adhesons all over the loops
>of small bowel, and the adhesions had pulled the tranverse colon(lg
>bowel) and was stuck to the pelvic floor, and he said it was smothering
>my small bowels. Now I see a pain dr, and she is tryig to help with
>meds and counseling, now I struggle with even moving bowels, I suffered
>so bad I hadd taken a laxative, and tonss of prune juice which usually
>makes me go within an hour, ut I finallt told my husband to getme an
>enama, and I did go after that, but it still hurts bad to have a bowel
>movement. I too m looking for positive thoughts, if anyone has ANY!!


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