Dear Chris:
My name is Cyndy...I have been an adhesion suffer for 10 years...I am
39 years old and have had 21 abdominal surguries for.....many problems
not even related to the adhesions....but for the last 10 years I have
been looking for an answer to this problem....I am now seeing a doctor
at UCLA in california...he just treats the problem with pain meds...I
have a 18 year old and a 14 year kids....they have been going through
this along with my husband and they just want their mom to be PAIN
FREE..I am very ashamed to say last week my 18 year old son got me a
wheel chair and we took my 14 daughter to Universal Studios for the
first time in her life...she has never gone to Disney land or any
amusement park....I am just not able to go do things because I am in
Pain all the time....
My husband and I have done alot of homework...on this subject...We found
a doctor who is doing alot of work with Barriers....and adhesions...I am
alittle afraid....of that because I am not sure of the long term
benifits versus the quality of life I have now...I am on Disabilty from
work....and very fustrated........
I have been reading all the postings people are writing and decided to
write myself....I am so glad that there are others out there like myself
I am so,so tired of Doctors saying, "YOU MIGHT HAVE TO JUST LIVE WITH
THIS...." I wonder if they (the doctors) have to LIVE every day like we
do with severe pain...If the doctors would like to "JUST LEARN TO LIVE
WITH IT..."
Well I for one am very glad this forum is here and my husband truely
enjoyed the one letter from the spouse.....