On Feb 26, 2013, at 9:24 PM, "International Adhesions Society" <tracy.joslin@adhesions.org> wrote:
>
> From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf
Of
> Maikki Gonzalez
> Sent: Monday, February 25, 2013 2:15 AM
> To: adhesions-request@adhesions.org
> Subject: Re: Help finding a physician
>
> What new regulations?
> On Feb 24, 2013 9:21 PM, "International Adhesions Society"
> <tracy.joslin@adhesions.org> wrote:
> Sender: edwardwhitlow@aol.com (Edward Whitlow)
> Subject: Help finding a physician
>
> My wife has been suffering from adhesions since her C-section in 1990.
> Since then she has been misdiagnosed, had laporoscopies for lysis of the
> adhesions where the doctors looked and just closed her up because they
> were too dense. Her last surgery (for adhesions) was a hysterectomy
> after being misdiagnosed with endometriosis and a tumor (it was just a
> grapefruit sized mass of adhesions). We have had numerous doctors tell
> us that adhesions don't cause pain or that they won't do surgery unless
> it becomes a life threatening situation. They won't even do what we
> told were "routine" procedures for her rectecele or enterecele.
>
> For the last 7 or 8 years she has been on narcotics for the pain. We
> have been saving for a trip to Germany to see Dr Kruschinski, since
> insurance won't cover it. We are been planning on summer 2014. However,
> just recently her doctor will no longer be prescibing pain pills due to
> new DEA regulations. She has started tapering down on pain meds but as
> she does the pain level has been going up. We now need a new doctor in
> New York that believe adhesions do cause pain, or a good surgeon to do a
> laporoscopy for her adhesions.
>
> Any suggestions or help would be greatly appreciated.
>
> --
> Thank you,
> Ed Whitlow
> edwardwhitlow@aol.com