at wit's end

From: Jesse and Maria Schulz (
Thu Dec 6 20:11:22 2012

I have had endometriosis and many surgeries...successful removal by Dr Nezhat in atlanta 1998 and did well until 2009 when I developed a partial bowel obstruction. Eventually saw Dr Semertszides who at laparoscopy found my bowel is adhered to my left iliac vein. He had to go back in with laparotomy a few weeks later but was only able to free up a kink but had to stop as he felt damage to the vessel was likely to occur. This would disrupt blood flow to my left leg. That was in 2010, january. this spring i felt back to square one with weekly severe bouts of pain. I have a wonderful GI doc who put me on amitiza to help my bowel to empty almost daily, but now I still have attacks 1 or 2 times a month where I nearly pass out. No one wants to touch me unless I am critically ill but when I have these attacks I fear death from a rupture , the pain is so intense I nearly throw up and pass out. As a nurse, i wonder if the colon could be resected around the adhesions and then reattached back together? Dr Semertsides wasnt much help last time I spoke to him as you know he has no surgical privileges any more. I live in the Louisville Kentucky area. would really like another surgeon who understands the adhesion issue to sit down with me. I fear getting into an emergency situation and either dying or being critically ill from a rupture. but no one locally wants to even discuss it with me

>----- Original Message -----
From: IAS Admin <> To: Multiple recipients of list ADHESIONS <> Sent: Mon, 03 Dec 2012 00:59:33 -0500 (EST) Subject: 20years of abdominal adhesions

From: [] On Behalf Of kelly murray Sent: Saturday, November 24, 2012 3:37 PM To: Subject: Re: 20years of abdominal adhesions

Patricia, You have my sympathy.  You sound alot like me. The only advise I can give you at this point is have pain management.  I would not get another surgery unless you have a blockage.  I have a pain pump which helps some but I still have alot of pain and digestive issues but you don't get the side affects from taking the oral meds. I hope you can get some relief.

Kelly   > Date: Sat, 24 Nov 2012 12:38:29 -0600
> From:
> To:
> Subject: FW: 20years of abdominal adhesions
> Sender: (Patricia)
> Subject: 20years of abdominal adhesions
> Hello,
> My name is Patricia and I have been researching trying to find
> answers/help with abdominal adhesions. I found your name on the IAS
> site to contact. I am from Illinois and I have been fighting abdominal
> adhesions for over 20 years.
> My problems first began about 20 years ago to my knowledge, pain, upset
> stomach and all the related issues that adhesions bring. After 10 years
> of going to doctors with various issues and beginning to think they
> thought I was crazy because nothing showed to explain the problems I
> began having serious issues with my female parts and went to my OB/GYN
> at that time (since retired) and he told me what he suspected and the
> only way to know was laproscopic surgery. We did this in 2001 only to
> find a serious mess of adhesions and said he wish he had cut me wide
> open. This helped for several years, but I had to undergo 2 more
> surgeries after for an appendectomy and another c-section. A few years
> later my family physician and I determined that the adhesions were back,
> after seeking counsel from a local surgeon and researching other doctors
> to try and get help no one wanted to do anything because they say its a
> losing battle. Everytime we go in it's gonna create more, while I
> understand this they need to understand my position as well. So another
> 10 years down the road and I am in so much pain I can not stand it
> anylonger. I am barely able to eat, mainly soft foods because I end up
> in extreme pain after eating, i am completely nauseated and begining to
> regurgitate when I really have nothing in me. It is even effecting my
> bladder, it has effected my bowels for sometime but it has not gotten to
> the point that I never know when or how the consistency is going to be.
> I am at a loss as to what to do at this point.
> I am looking for anyone who can help or give me advice on someone to see
> for this to help.
> Thank You,
> Patricia

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