Re: FW: FW: low back and hip muscle pain
From: DawnB (whity631@yahoo.com)
Sun Sep 11 20:10:20 2011
At Thu, 8 Sep 2011, IAS Admin wrote:
>
>From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf Of
>annmarie bluett
>Sent: Monday, September 05, 2011 1:26 PM
>To: adhesions-request@adhesions.org
>Subject: Re: FW: low back and hip muscle pain
>
>Yes me!
>
>My lower right groin, hip and lower back are painful -- all the time! I
had
>a hyst 5 years ago followed by a adhesion take down two years ago -- bowel
>and bladder involvement. It feels as if I've got continual appendicitus
but
>no one will do anything about it as, like you, they will only operate again
>if I have any more bowel obstructions. I am beyond fed up and not looking
>forward to living the rest of my life in so much pain;(
>
>Hugs
>Ann-Marie xxxx
>
>--- On Mon, 5/9/11, IAS Admin <tracy.joslin@adhesions.org> wrote:
>
>From: IAS Admin <tracy.joslin@adhesions.org>
>Subject: FW: low back and hip muscle pain
>To: "Multiple recipients of list ADHESIONS"
><adhesions@mail.medispecialty.com>
>Date: Monday, 5 September, 2011, 18:48
>Sender: pixiekabb@yahoo.com (Karen Ricci)
>Subject: low back and hip muscle pain
>
>I've had 2 exploratory laparotomies and many flare ups since.
>For the past 2 years I've had problems with my back. The left side of
>my back muscle had been knotted-up constantly. Pills, therapy, TENS
>unit, injections haven't worked. I believe that adhesions have attached
>to this muscle group. I believe it can't release at all. Constant pain
>and difficulty moving are my companion.
>
>This is the side of my body that has had the worst of adhesions! I don't
>know what type of doctor to see anymore. The last surgeon, few years
>ago, said he wouldn't operate on me. Unless, I had another bowel
>obstruction.
>
>Woe is me! Anyone else have this issue?
>
>--
>Thanks,
>Karen Ricci
>
--
Yes, I have nerve damage on the left side that is in my back and extends
down into the left leg. I've had eight surgeries, and like most others I too
have been told that surgery isn't an option again unless something happens
that is life threatening, and to have surgery again is also life
threatening. After my last surgery I almost died due to some "unknown"
infection that was never found, had a fever that went up to 107. I too, have
tried every form of treatment known over the years, and still have the pain,
some days worse than others. It's a tough life, for sure. I've had PT which
helped briefly, but basically nothing has helped. The only thing I can
suggest is pain management and limit your activity, those things that you
know are gonna make you hurt worse. I know sometimes that's not always
possible though. This nasty disease has taken my life from me, and I just
try to deal with it day by day (some days not so well) I had to quit working
finally, I just couldn't handle it anymore and did get approved for SSDI.
Luckily, I have a very supportive family, and finally have a family doc that
does listen to me.
One thing to think about, or have checked is for pelvic floor disorder. You
would think most gyn's would recognize this, but I found that they don't.
This is where the pelvic floor muscles stay in a constant state of spasm and
tight like a rubber band. It causes spasm, leg and back pain and can extend
into the abdomen. I have this as well. Took many docs to figure that one
out, and I had Botox to the pelvic floor which did help quite a bit with
that issue but still have the pain due to the extensive adhesions.
Life with this is so difficult, everyday.
Wishing you a "less" pain filled day,
Dawn