Questions here

From: IAS Admin (
Fri Mar 26 19:09:34 2010

From: [] On Behalf Of Marlene Wheeler Sent: Thursday, March 18, 2010 1:56 AM To: Subject: Re: Questions here

Karin, You came to the right place to learn all you can about this disease..Their are so many of us out there that live with this at varying degrees of severity. Stress causing this! No not really.. It's pretty much the way our bodies heal from the trauma of surgery..of course if someone wanted to argue about it.. stress on the body from surgery.. but to my knowledge stress itself doesn't cause adhesions. Reading your history of Endometriosis etc. It doesn't surprise me that you have adhesions.  For some reason this disease hit's us females, from what I've heard, more than males, because we have things like endometriosis etc.. Yes it does hit males also..It's the way our bodies heal after surgery.. Many people get adhesions, probably more than we know, after surgery, but where the problem comes in is when the adhesions decide to attach themselves to other organs or abdominal wall, thus causing all sorts of problems.. for example in the digestive process.( thus your  small bowel obstruction.)  Anyway that all aside. I don't pretend to be an expert at this disease.. I just happen to be a Nurse that's worked in an Operating room and has seen these things.. and has had major problems with them myself. My suggestion to you is to first off find a good pain specialist that can help you feel more comfortable without having to be on all sorts of Drugs that just make you sleepy. There are many Docs out there that deal with adhesions on a regular basis.. I don't know of any one in the Rochester area of Ny.. But my Doc happens to be in Pa..within a decent drive from you.. Also from what I've heard from here theirs a Doctor in Fla, Ohio. Their out there. I just would suggest if you ever need to have them taken care of again not to go to just any surgeon. You need to find someone who's up on the good barriers etc to help keep these things from returning with such a vengence.. Since your a fairly new post op patient..If you want it's not going to hurt to at least get some advice from one of these Docs..Everyone on this site is going to have varying opinions on who's good etc.. All I can say is I ended up going to Pa from Ut to see Dr Gerhart, and I have not had one moments regret of taking those trips.. Yes I had to go twice within a six month period.. But that's been over three years ago..He is a wonderful Doctor, knows a lot about adhesions..In my case I won't let anyone else touch me when it comes to dealing with them if I need surgery. I unfortunately, before I saw him, had Three surgeries here for some of the same problems, and I ended up in really bad shape.. I don't blame anyone.. I'm not that type of person, but with adhesions you really need a Surgeon who knows how to deal with them.... No their are not any cures for these things, and yes they can come back, but at least their are treatments.. I feel so much better than I did in 2006 before I made the decision to see a specialist for these..I would most likely have not made it if I had just sit here and let things ride..(Long Story) Anyway! Good Luck! Don't  be afraid to email me at any time if you need to talk.. You also may be a little bit early post op.. I wouldn't rush right into another surgery, but if you want to send your info to Dr G, or just get some advice from them.. the web site is He's in Wilksbarre Pa..I'm guessing about..oh maybe a six hour drive from you..( I grew up in Northern Pa..know the area fairly well.) Take Care Marlene

Fyi, Taking and endurance class?? This is one where everyone is going to have a different opinion..It may be a bit too early for that.. If the adhesions are trying to come back.. In my experience doing that could make things worse..!! Our bodys need time to heal..Sometimes it takes much more than just the usual, 6 wks or whatever.. Some times it literally takes as long as six months, or even longer depending on what was done.. before jumping into that I'd talk to your Doctor. 

> Date: Sun, 14 Mar 2010 23:34:15 -0500
> From:
> To:
> Subject: Questions here
> Sender: (nnmfam)
> Subject: ?'s n ew
> I was just told this december that I have adhesive disease after
> developing severe abdominal pain vomiting and a small bowel
> obsstruction. I lost 23 lbs before a dr went in and peaked around to
> find my intestine and gallbladder in aknot. He told me my belly was
> full of adhesions .
> I am now in pain again it is only 2 months post op. I went today for a
> colonnoscopy and was todl I had some benign polyps. I asked a nurse why
> people get adhesion she told me stress. Makes no sense to me I have no
> unusal stress.
> I do not know what to think or expect ? What do you people do to deal
> with these?
> My previous history is ruptured appendex at age 3. Lap for endometrosis
> age 32,Hysterectomy age 36 had my incison evicerate, The recent surgery
> december 23 . I also have a huge list of severe allergies that casue me
> to go into shock.
> I am looking for any suggestions? I wnat to take an endurance class will
> that cause trouble? Any drs in the rochester, NY area that deal with
> adhesions?
> How do you deal with the pain and the pain meds they make me so grogged?
> Thankyou,
> Karin

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