Hi Alta, I have to tell you that I was told that I had ovarian tissue grow back with a cyst on it on my right side. When I saw Dr. K. in Germany for my surgeries, I told him what I had been told about the cyst on ovarian tissue. He said NO that does NOT happen. After my surgery I was told that it was an adhesion water blister, and he removed it. I also deal with pain shooting down the front of my thighs, pains in my vaginal area that really SMART! I am so happy for you that things are better with your Husband. We always joke about for better or worse, or worse! It is so hard for our Husbands to see how much pain we are in and they can't help us at all. My Husband gets so frustrated. He invented a "Security Crypt Lock" for Mausoleum Crypts. He has been working really hard, and now building a website, trademark etc. He even donated a Crypt Lock to secure Michael Jackson's Mausoleum Crypt, and sent it to Forest Lawn Cemetery with a note for the Cemetery Manager, and the Jackson Family. Of course NO response. Not even that it had been received. It is hard being the little people trying to reach goals and get ahead. That's ok, we can deduct the costs on our taxes. I just feel bad for him. He was hoping that it would be used, get some recognition, and the product would take off. Sorry if this offends you. One time we even went to Las Vegas to work a Cemetery Convention. Let's say it was interesting. Sorry I got off track. I just basically wanted to show the desperation that Herb has to get me well! I know that other Husbands feel the same way. They just want their wives back. Between pain meds, pain, and falling asleep sitting up, he doesn't get a lot of attention that he deserves. He is pretty wonderful too! Thanks for letting me just go off in a totally different direction. You are right about keeping your sense of humor. Take Care. Thanks for the great info that you share. Cheryl D.
>----- Original Message -----
From: IAS Admin (Tracy) To: Multiple recipients of list ADHESIONS Sent: Sunday, September 13, 2009 7:20 PM Subject: Thank You and More From: "linda" <firstname.lastname@example.org> Subject: Re: Thank You and More
A tens unit helps pain; a whirlpool bath helps, heat and/or cold helps and a
swimming pool. Be careful not to put heating pads over medication or ointments...it can kill you. I became immune to Morphine after awhile so you may have to switch to percocet, ultram or another pain med. My pain specialists have switched me to so many different meds over the years but whatever helps control the pain, use it. A quality life is what we all want
and need. Take care and God Bless.
>----- Original Message -----
From: "IAS Admin (Tracy)" <email@example.com> To: "Multiple recipients of list ADHESIONS" <firstname.lastname@example.org> Sent: Saturday, September 12, 2009 5:12 AM Subject: Thank You and More
> Sender: email@example.com (Alta)
> Subject: Thank You and More
> I want to thank all of you for your support, advice and humor in
> response to my recent post. Hubby and I have talked things out and
> things are better. He has a hard time talking to me about all of this.
> He has watched me turn from the active person I once was to one that is
> not very active. He has also sat with me in the emergency room while I
> am in pain, not being believed by doctors until they see my records.
> Anyway, thank you.
> I am enjoying reading some of the recent posts. I have been having the
> pain in my thighs, mainly the front. My pain doc thinks it is related
> to the adhesion related. I am glad to know I am not the only one. Now
> I read about vaginal pressure. I don't have that exactly but I do have
> what I term pelvic congestion. I don't have any female parts left since
> they have all been removed but I feel congested where my uterus should
> be. No, it's not constipation. (I take Miralax for that.) I also have
> constant pain on mainly my left side. I also still get cysts and have
> had my ovary regenerate.
> Reading about the abdominal swelling was also a huge one. I have had
> this for two years. Doctors told me that I was just getting fat or it
> was in my head. For me this feels like when I hyper stimulated while
> going through IVF. I want to get my hormone levels checked because I
> wonder if they are related.
> Right now I am taking 15mg of morphine 3 times a day and 10/325 of
> hydrocodone for breakthrough (only allowed 4 a day). Some days this is
> fine but most it isn't. I just started working with this doctor a few
> months ago so we are getting into the groove of things. Bad thing is we
> moved 500 mile away so I have to find a new team of doctors at our new
> location because I cannot drive down to see him too much longer.
> Thank you all for keeping me sane during these insane times. You don't
> know how much it means to me to know you are all a type and click away.
> Stay strong, keep a sense of humor and don't let this overtake you.