Linda, Sorry I misunderstood you. I thought you had gone to see him.
(Dr.Cook). I have only been to see Dr. Kruschinski once, but he performs 2
surgeries. The first one to remove adhesions, 2nd look to see if the
adhesions had returned. I would love to go back to that time 4 years ago
now, and not have pain except the soreness from surgeries. It was heaven,
then when my Husband said look at you, you are standing up straight, not
doubling over, and I put my buddy away. (heating pad) Once things started
happening : getting hurt, returning to work too soon, Gallbladder out, then
getting hurt again its like it was all a dream and never happened. If I
could afford it, I would probably most definately go again. So many things
that you have said, I can identify with. Pain meds, treated like crap
because we are lying drug addicts, the fetal position laying down with
heating pad. I just want my life back again so bad. I have had a quite a few
days when I have wished to end it all. I could never hurt my Husband or
sons. nor am I a selfish person. Just a break would be nice. I can't handle
whirlpools, hot tubs, or even the vibrating chairs with heat. They intensify
my pain making me want to scream. I live in Salem, Or. My Gastro believes in
me, and that I have adhesions again. My family doc wants me to read the book
"They don't know whats wrong with me". I am sticking it out with him until I
get Ins. I am looking for a female doc. The ones that I have seen totally
understand and sympathize with the illness. I also agree about being awake
during surgery. It makes sense, but scares me to pieces. If I had a Choice
instead of a new doc Dr. Cook, I would go to see Dr. K in a heartbeat. My
husband has started a fund for our family to toss in loose change etc.
Anything to help. I cried reading your note. You do feel like you are the
only one that suffers ARD. Someday we will be well again. My Gastro says to
keep checking every month for a new surgeon, because you just never know.
Wishing you well, rest and pray for our good health. Takr Care, Cheryl D.
> Date: Fri, 8 May 2009 17:35:33 -0500
> From: tracy.joslin@adhesions.org
> To: adhesions@mail.obgyn.net
> Subject: Dr. Cook
>
> Sender: "lindahalford" <lindahalford@comcast.net>
> Subject: Re: Dr. Cook
>
> Cheryll, I haven't yet gone to Dr. Cook but I like what he says he can do
> for people with adhesions. His website is: http://www.vitalhealth.com. He
> explains the different kinds of adhesions and the procedure he uses to
> remove the adhesions that are actually causing the pain. He does the
> procedure laparoscopically while the patient is awake. I'm no doctor so I
> don't know how he can do it while one is awake. In any event, I did speak
> to one of his staff who was very informative. She said Dr. Cook is a very
> compassionate man and wants to help those of us who are suffering with
> painful adhesions.
>
> We both have had surgery with what we believed to be the best Laparoscopic
> Adhesiolysis doctors there are. The doctor in Germany comes highly
> recommended and I've read some reports on this site that were very
favorable
> of him. Patients who finally got relief from the adhesions causing their
> pain but you say you've gone twice and are still in pain. So, who do we
> believe? I wish I had an answer because my life is slowing slipping away
> and I'm having to live every day with pain. I've even had a morphine pump
> but exhausted every medication the doctor could use and became immune to
> them so I had it removed. Injections in the spine don't work. A hot
> whirlpool feels good but who can stay in one indefinitely. My pain
> specialist will only give me 3 Lorcet 10/650 mg. per day. The little
relief
> it gives only lasts a few hours and sometimes I get absolutely no relief
> from them. I need a compassionate pain specialist who believes me when I
> say I am excruciating pain. Many pain specialist treat you're a drug
> addict. I believe Marinol may help us but alas, it is only for those dying
> of cancer. Well, we are dying with horrific pain! There's also a drug one
> can suck like a lollipop which, according to my physical therapist at
Mayo,
> ACTIQ, is the best pain med. It is also reserved for only terminal cancer
> patients. I don't know about you, but I feel like I have a terminal
> problem. At least, I feel like I'm dying sometimes.
>
> I had a doctor tell me that it's not the adhesions that cause the pain but
> rather that they are pressing or entrapping nerves. If we could just get
> rid of the adhesions that are responsible for the nerve pain, we could
lead
> a normal life again. I can't afford to travel to Los Angeles, California
> unless I could get an Angel Flight and a place to stay while there. I
> believe I would be afraid to travel across the Rocky Mountains on a small
> Cessna. It was scarey just flying to Pennsylvania in a small plane with
> just me and the pilot on one of the airplanes. The pilots volunteer their
> services to Angel Flight to transport patients who cannot afford to travel
> over 100 miles for medical help. You might want to visit their website.
> They are located in Orlando, Florida. The pilots want to keep up their
> required flight hours. They are retired, experienced pilots probably like
> the Pilot Skully who was able to land on the Hudson River.
>
> Where do you live? I live in Jacksonville, FL. I've had two unsuccessful
> lysing of adhesions performed by Dr. Reich, Dr. Redan and Dr. Gerhart who
> all practiced together and I believe are tops in the Laparoscopic
> Adhesiolysis field. However, the adhesions returned because there was no
> barrier used. Dr. Redan may have used some Interceed the second surgery I
> had but I really don't recall but anyhow, they returned with a vengeance.
> My entire abdomen feels like one big charley horse. The pain is so
> excruciating at times I just lie in bed in a fetal position with a heating
> pad, crying my heart out and praying the Lord will heal me of this
horrific
> pain. No one knows how much we suffer with this problem unless they live
> with it like we do day in and day out. It seems we can't look forward to
> anything with joy because each day is like the last, we try to get the
pain
> under control enough that we can do something. This is no way for a person
> to live and I truly believe there is an answer to our problem somewhere
out
> there in this great big Universe God made. If there is anyone out there
who
> has been healed from this problem, please let those of us who are
suffering
> know where the answer can be found. I believe in God's healing power but I
> also believe he gave us good doctors who care and are able to help us.
>
> I hope this information has helped in some way and that you will be able
to
> get relief from your pain.
>
> Take care and May God Bless You. Cheryl D.
>
>> ----- Original Message -----
> From: "IAS Admin (Tracy)" <tracy.joslin@adhesions.org>
> To: "Multiple recipients of list ADHESIONS" <adhesions@mail.obgyn.net>
> Sent: Friday, May 08, 2009 5:49 AM
> Subject: Dr. Cook
>
> > Sender: HerbCheryl1@msn.com (Cheryl)
> > Subject: Dr. Cook
> >
> > This is to Linda Halford, Hi I haven't been on site in a while, too many
> > family things going on, and have been down quite a bit with adhesions
> > too. The worst was on Easter. I Made a dinner, took half down to My
> > Aunt and Uncle that raised me 45 min. drive. Go them situated, and
> > drove home. The pain was so bad I was scared to death! I was just
> > writhing in pain, rolling back and forth on my bed with the heating pad,
> > and just sobbing, stabbing, felt rolling almost like contractions
> > building up. That was my closest time to want to end it ever.
> > Anyway to get on woth my question to you, you said that you went to Dr.
> > Cook in Ca. I have been reading up on him, and what others have had to
> > say on this website. Been to Germany for 2 surgeries, and spray gel
> > application, and cannot afford to go back. I got hurt 7 weeks post op,
> > returned to work 1 month too early, had my gallbladder removed, then
> > tripped and fell. So they have returned horribly. Where did you see
> > him at?
>
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