Dr. Cook

From: IAS Admin (tracy.joslin@adhesions.org)
Mon May 11 21:34:25 2009


From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf Of CorcoranHeatwave@aol.com Sent: Friday, May 08, 2009 6:49 PM To: Multiple recipients of list ADHESIONS Subject: Re: Dr. Cook

Hi, everybody that is going through this nasty pain. I have been dealing with real bad pain since 1988. I always had severe pain with my menstal cycle which started at age 14. I delivered 4 children. By my 4th baby  my  uterus collapsed. and I was in severe pain. I was told  that I could never carry another baby again. I was  repeatly getting cyst on my ovaries that would burst. The doctor would tell me to go home and stay off my feet and the fluid will go away on its own. Of course that was not the case for me.  The poison from the cyst  spread and I ended up  having to get my apendixs out.My stomach would swell up so bad. I had a cyst the size of a baseball on my right ovary that burst which caused a hole in it . I blood so bad . I had to have my ovary removed. I went from doctor to doctor. I was in and out of the ERs so much.  My husband and children was so sick and tired of me being sick. Nobody really new want I was going through and they still dont .In 1995 I finally found a good doctor. GYN Dr. Lokey in Phila. She checked me out and took my health history. She said I pretty sure I know what is wrong with you but I have to cut your abdomen in order to see if you have endometrosis. So she did a scope on me and sure enough my whole abdomen was covered with endo. When she came in to see me after the operation she said she got all the endo except that it grew into my bowel and that was not her department. Not much sooner after all that I had obstruction of the bowel. Back into the operation room I went. I had about 17 operations since then. Several times I had adhesions removed that covered my entire abdomen. I am still suffering with adhesions wrapping around my bowel. Some pain meds do not work for me anymore or I have to double up on what they give me. I am looking for a doctor who will help me and not give up on me. I cant afford to travel any where. I am so tired of being in pain and not getting the right amount of sleep! I cant even hold a job because of all of this. I am tired of doctors saying that it is all in my head cause they cant see anything on the exrays. I wish they would do more research on adhesions.If anyone that has any info they can give me that might help please do so. Thanks (Sorry for my spelling)         Joan   In a message dated 5/8/2009 6:36:00 P.M. Eastern Daylight Time, tracy.joslin@adhesions.org writes: From: "lindahalford" <lindahalford@comcast.net> Subject: Re: Dr. Cook

Cheryll, I haven't yet gone to Dr. Cook but I like what he says he can do for people with adhesions.  His website is:  http://www.vitalhealth.com.  He explains the different kinds of adhesions and the procedure he uses to remove the adhesions that are actually causing the pain.  He does the procedure laparoscopically while the patient is awake.  I'm no doctor so I don't know how he can do it while one is awake.  In any event, I did speak to one of his staff who was very informative.  She said Dr. Cook is a very compassionate man and wants to help those of us who are suffering with painful adhesions.

We both have had surgery with what we believed to be the best Laparoscopic Adhesiolysis doctors there are.  The doctor in Germany comes highly recommended and I've read some reports on this site that were very favorable of him.  Patients who finally got relief from the adhesions causing their pain but you say you've gone twice and are still in pain.  So, who do we believe?  I wish I had an answer because my life is slowing slipping away and I'm having to live every day with pain.  I've even had a morphine pump but exhausted every medication the doctor could use and became immune to them so I had it removed.  Injections in the spine don't work.  A hot whirlpool feels good but who can stay in one indefinitely.  My pain specialist will only give me 3 Lorcet 10/650 mg. per day.  The little relief it gives only lasts a few hours and sometimes I get absolutely no relief from them.  I need a compassionate pain specialist who believes me when I say I am excruciating pain.  Many pain specialist treat you're a drug addict.  I believe Marinol may help us but alas, it is only for those dying of cancer.  Well, we are dying with horrific pain!  There's also a drug one can suck like a lollipop which, according to my physical therapist at Mayo, ACTIQ, is the best pain med.  It is also reserved for only terminal cancer patients.  I don't know about you, but I feel like I have a terminal problem.  At least, I feel like I'm dying sometimes.

I had a doctor tell me that it's not the adhesions that cause the pain but rather that they are pressing or entrapping nerves.  If we could just get rid of the adhesions that are responsible for the nerve pain, we could lead a normal life again.  I can't afford to travel to Los Angeles, California unless I could get an Angel Flight and a place to stay while there.  I believe I would be afraid to travel across the Rocky Mountains on a small Cessna.  It was scarey just flying to Pennsylvania in a small plane with just me and the pilot on one of the airplanes.  The pilots volunteer their services to Angel Flight to transport patients who cannot afford to travel over 100 miles for medical help.  You might want to visit their website. They are located in Orlando, Florida.  The pilots want to keep up their required flight hours.  They are retired, experienced pilots probably like the Pilot Skully who was able to land on the Hudson River.

Where do you live?  I live in Jacksonville, FL.  I've had two unsuccessful lysing of adhesions performed by Dr. Reich, Dr. Redan and Dr. Gerhart who all practiced together and I believe are tops in the Laparoscopic Adhesiolysis field.  However, the adhesions returned because there was no barrier used.  Dr. Redan may have used some Interceed the second surgery I had but I really don't recall but anyhow, they returned with a vengeance. My entire abdomen feels like one big charley horse.  The pain is so excruciating at times I just lie in bed in a fetal position with a heating pad, crying my heart out and praying the Lord will heal me of this horrific pain.  No one knows how much we suffer with this problem unless they live with it like we do day in and day out.  It seems we can't look forward to anything with joy because each day is like the last, we try to get the pain under control enough that we can do something.  This is no way for a person to live and I truly believe there is an answer to our problem somewhere out there in this great big Universe God made.  If there is anyone out there who has been healed from this problem, please let those of us who are suffering know where the answer can be found.  I believe in God's healing power but I also believe he gave us good doctors who care and are able to help us.

I hope this information has helped in some way and that you will be able to get relief from your pain.

Take care and May God Bless You.

>----- Original Message -----
From: "IAS Admin (Tracy)" <tracy.joslin@adhesions.org> To: "Multiple recipients of list ADHESIONS" <adhesions@mail.obgyn.net> Sent: Friday, May 08, 2009 5:49 AM Subject: Dr. Cook

> Sender: HerbCheryl1@msn.com (Cheryl)
> Subject: Dr. Cook
>
> This is to Linda Halford, Hi I haven't been on site in a while, too many
> family things going on, and have been down quite a bit with adhesions
> too.  The worst was on Easter.  I Made a dinner, took half down to My
> Aunt and Uncle that raised me 45 min.  drive.  Go them situated, and
> drove home.  The pain was so bad I was scared to death! I was just
> writhing in pain, rolling back and forth on my bed with the heating pad,
> and just sobbing, stabbing, felt rolling almost like contractions
> building up.  That was my closest time to want to end it ever.
> Anyway to get on woth my question to you, you said that you went to Dr.
> Cook in Ca.  I have been reading up on him, and what others have had to
> say on this website.  Been to Germany for 2 surgeries, and spray gel
> application, and cannot afford to go back.  I got hurt 7 weeks post op,
> returned to work 1 month too early, had my gallbladder removed, then
> tripped and fell.  So they have returned horribly.  Where did you see
> him at?


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