Re: Tugging pain that has returned

From: lindahalford (lindahalford@comcast.net)
Fri May 1 17:42:57 2009


My physical therapist at Mayo Clinic recommended Actiq as the best pain medicine. My pain specialist said it is only given to cancer patients who are terminal. If Actiq will help anyone in pain, they should be able to have it. How can I disprove what my pain specialist said as to who gets Actiq? I would appreciate any information you may provide. Thanks so much.

Linda

>----- Original Message -----
From: "IAS Admin (Tracy)" <tracy.joslin@adhesions.org> To: "Multiple recipients of list ADHESIONS" <adhesions@mail.obgyn.net> Sent: Thursday, April 30, 2009 4:49 AM Subject: Tugging pain that has returned

> Sender: DWRon@aol.com (Ron/Barbara Paul)
> Subject: Tugging pain that has returned
>
> Hi. We have posted on the message board a number times over the last 8
> years. We have gotten tremendous support and truly appreciate the
> concern. My wife Barbara started to get tugging pains about 1 above her
> navel in 1995. Diagnostic tests could not find anything. Three
> laparascopic surgeries over 3 years found few adhesions, and the pain
> kept coming back in shorter intervals after each surgery. We tried pain
> management and had some success. We saw Drs. Reich and Redan with
> surgery done in 2000. They found very few adhesions, removed her gall
> bladder and was pain free for 4 years. When the pain returned we found
> an understanding pain managment doctor who prescribed Fentanyl patches.
> My wife was basically pain free for 3 years at the cost of increasing
> strengths of the patch and later,the need to use Actiq for outbreak
> pain. She is now at a point where she gets this disabling tugging pain
> after she moves her bowels and after she eats or drinks. She does not
> always get relief from the patches and Actiq. Our medicinal pain
> management doctor does not want to give her more than 300 mcg of
> Fentanyl. Her surgeon, who we like and trust, did not want to operate
> when he looked at her CT a year ago - he did not see anything.
> We would like to know if there is anyone who has or is suffering this
> type of debilitating pain and what they have done. We are thinking of
> making an appointment to see Dr. Redan again in Florida (we live in
> Arizona) . Thanks for your help.
> Ron & Barbara Paul
>


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