One reason that it is hard is that if it doesn't show up on tests, they are hesitant to say adhesions or some Drs. don't believe they cause pain. And I feel that becuz it affects women more, there is less research done. Some times I think we are labeled depressed, drug searchers etc.. It took me many Drs to finally get a diagnosis. Hang in there. I think the best option right now is pain management unless of course you get blocked. There are adhesion specialist's out there that do surgeries. Some people get cured and others get them back.
Kelly
> Date: Wed, 22 Apr 2009 20:20:29 -0500
> From: tracy.joslin@adhesions.org
> To: adhesions@mail.obgyn.net
> Subject: FW: why is it so hard?
>
> Sender: sewilson@ameritech.net (Susan)
> Subject: why is it so hard?
>
> I am having a first time experience with abdominal adhesions, in Jan. of
> this year I had not had a bowel movement for almost 6 weeks, I went
> crazy. I was in and out of emergency rooms, and have had a million
> tests. My family doctor mentioned adhesions, but every other doctor I
> went to talked about my colon. I just underwent the most awful tests to
> see if my colon should be removed. My colon should NOT be removed. I
> have finally called my sister-in-laws doctor because of something she
> told me. Her doctor mapped out the adhesions and if any of them give
> her trouble her doctor is there. I am praying I can hold on until my
> appt. I am really scared. My Mom had endometriosis (sp?) for 20 yrs. I
> have been doing research on adhesions and you can die!!!!! Why, why are
> we blown off about these? I feel like I have been laughed at by some of
> these doctors as being silly! They had me doubting myself. At my worst
> point I really wanted to take a knife and cut into myself to relieve the
> pain and bloating. I have had a hernia operation, two c-sections and a
> tubal ligation. Is there any more of a hint as to what could be my
> problem? The doctors ask me to pinpoint pain, I can't it's my whole
> middle. I feel like my c-section scars are attached to my ribs,
> sometimes it feels like it's trying to pull my breasts and heart and
> lungs down. We women need to be much louder about this.
>
> --