Re: Helen chalmers, Still in pain

From: Sister of Helen jackson Chalmers (debalyssa@aol.com)
Tue Mar 24 13:18:20 2009


My Dearet Helen died Apr 07, I am finding out today, her sister. I moved and they couldnt find me. Helen couldnt take the pain friends.

Debbie

At Sat, 04 Nov 2000, Linda Halford wrote: >
>Dear Kath,
>
>Did Dr. Reich and Dr. Redan do your "Adhesiolysis?" If so, when? I would
>like to have information from prior patients who had their surgery with
>these doctors over the past 20 years. I am looking for the statistics of
>successes and failures using Dr. Reich's procedure for removal of adhesions.
> I am so hopeful that I can get the necessary funds to have them perform
>"Adhesiolysis" on me.
>
>Please respond to me personally. Thank you and may God Bless you.
>
>Sincerely,
>
>Linda in Jacksonville, FL
>
>>From: "Kath Findlay"
>>To: Multiple recipients of list ADHESIONS
>>Subject: Helen chalmers, Still in pain
>>Date: Sun, 15 Oct 2000 18:34:13 -0500
>>
>>Dear Helen,
>>I have just read your letter which was re posted by Helen Dynda, and hope
>>that you are indeed on the road to recovery. You say that you still have
>>some pain, but don't attribute it to your adhesions. My question is how can
>>you be sure? The reason I ask this question is that I have had several
>>separations of my adhesions and after I had it done the first time I still
>>had a decree of pain afterwards. I had an ovarian cyst removed at the same
>>time and the doctors told me this was more likely to be causing the pain.
>>They said that they had removed all the adhesions and I shouldn't feel any
>>more pain from this. I would like to say at this point that the pain was
>>not as bad as before, sometimes it depended on what I was doing. After
>>three months, a trip to the psychiatrist and a bone scan, I managed to
>>convince the doctors that I was still in pain so they eventually agreed to
>>give me a laperotomy to see if perhaps I had another cyst. They were
>>adamant that the Adhesions would not be the culprit. After the exploratory
>>op they came with their tails between their legs and apologised to me .
>>They told me that the whole of my left side was one large mass. my
>>adhesions had returned.
>>
>>One week later I had my next op. It was new micro laser surgery. It took
>>the pain away instantly but it returned within three months worse than
>>ever. I was then told that a hysterectomy was the only option left to cure
>>my adhesions. I had the hysterectomy and I was cured. I had 4 glorious
>>years. I ran my Guest House. I did 9 learning modules that entailed 32
>>exams. I was chairman of a marketing group. I was a workaholic, I loved
>>life and the last thing on my mind was Adhesions.
>>
>>I woke up one morning and the dreaded pain was back. It took a year to
>>convince them again, where the pain was coming from. After a visit to the
>>psychiatrist again and yet another bone scan. Adhesions shouldn't give you
>>this kind of pain, it must be something else. After the surgery the doctor
>>visits my bed with a big smile on his face like he's just struck gold. You
>>wont believe what we found. ( Yes I will, I have been trying to tell you
>>for years.) We found that your Bowel was wrapped around your ovary and your
>>bowel, bladder, appendix, well everything actually were all stuck together.
>>I didn't Know whether to laugh or cry. I could not be mad at this man who
>>had just taken all my pain away. Indeed once again I was cured instantly
>>pain free and after a few weeks of the heeby geebies.( coming down from the
>>pain medication) I was once again swinging from the chandeliers. I was
>>definitely cured this time not an ounce of pain.
>>
>>I carried on with my Guest House. I started up an Au-pair agency, Built up
>>and directed, another marketing group throughout the country and went to
>>lots of meetings. Once again my life was worth living and yes I was
>>complacent. Once again, Adhesions were the last thing on my mind. Did I
>>speak too soon? where was this pain coming from. it wasn't even 3 years
>>since the last op. I carried on suffering in silence for a while ( maybe it
>>will eventually fade away as quick as it came. ) No! but surly this time
>>I wont have to go for a bone scan. Oh yes you will ! I wont have to go
>>and see a psychiatrist again. Surly not after the third time right, about
>>where the pain was coming from before. Sorry Adhesions don't cause that
>>type of pain in fact we're not sure they cause pain at all. ( It does, it
>>does, Honest it does.) It must be in your head. We have an appointment for
>>you to see a psychiatrist. We think woman sit at home with nothing to do
>>but invent pain. ( are we crazy, or are they crazy.) ( please say them )
>>Wrong! We are the crazy ones for putting up with all this.
>>
>>When I eventually convinced them that I was in agony, it was real pain, not
>>in my head, and my bones were perfect, They couldn't find a surgeon willing
>>to take the risk of operating. They eventually found a bladder surgeon who
>>said he would do it. He advised me to have my remaining ovary removed and
>>to cut down on the Hormone R Therapy, saying that it would aggravate my
>>adhesions. Why had none of the Gynie Docs ever suggested this before.
>>Although I didn't wish to go into premature menopause, I agreed. I will do
>>anything, just take the pain away. By this time ( one year after going back
>>to the doc, to tell him my pain was back ) I was just about climbing the
>>walls. The night before my surgery, I slept like a log. Yes I was quite
>>complacent. ( again, you say. I am afraid so. ) Tomorrow it will all be
>>over. No more pain. Back to leading a normal life with my family again.
>>
>>I have, had this surgery several times before and each time the pain had
>>gone instantly. Yes I had a little pain from the surgery, but that would go
>>in a few weeks, it always did. Except this time it didn't. It was mild at
>>first and I couldn't make up my mind if it was the surgery or the dreaded
>>adhesions. Some days were better than others and after a month I had to
>>come to terms with the reality of my life. It was here to stay, this time.
>>
>>I was told that I couldn't go on having operations for my adhesions. That
>>each time I was doing more damage to my body. Its been 2 years since my
>>last op, which means three years in pain. No more swinging from the
>>chandeliers. I spend each day on the couch with my lap top, I write books
>>and sometimes I paint. I am classed as severely disabled. I can only go out
>>in a wheelchair. I have not only ruined my life but I have ruined my
>>husbands life too. We had to sell our home and he has had to give up his
>>career, to look after me. And the ironic thing is it probably could have
>>been avoided if only I hadn't been so trusting and believed everything that
>>the docs told me. If only I had asked more questions. If only I had taken
>>charge of my own body.
>>
>>I am sorry that this is so long, I don't wish to bore you all, but if I can
>>stop some of you from making the same mistakes as I have, then its worth
>>it.
>>
>>Helen I don't know how long it is since you had your surgery, but I will
>>pray that the pain you still have is from your wound and not your
>>Adhesions.
>>
>>Best Wishes to you. Hope the pain goes away soon. Kate.
>>


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