--- On Thu, 3/19/09, Jess <jessicab_2878@yahoo.com> wrote:
From: Jess <jessicab_2878@yahoo.com> Subject: Re: feeling hopeless...... To: "Multiple recipients of list ADHESIONS" <adhesions@mail.obgyn.net> Date: Thursday, March 19, 2009, 6:14 PM
Thanks everyone for listing some stuff for me. I really appreciate it!!! I have had endo, prior to my hysterectomy...my very first procedure done was supposed to be a lap, but ended up being hip to hip because my whole pelvic area was full of endo. But the main reason for operating in the first place was suspicion of adhesions.... so on top of the endo, the adhesions grew my bladder and uterus together, flipped the uterus upside down, and had some bowel obstruction as well. About 1 year later, I had my uterus out because of more adhesions, and eventually I lost my ovaries one by one. It was awful. When the OB did my Lap last March he also thought maybe some more endo, but for the first time I was clear of everything. So now I just feel like a dog chasing my tail in circldes and getting nowhere. But I am going to research the doctors and Medical facilities you all suggested. Hopefully I can get somewhere. But I just wanted to Thank you all so much for taking the time to respond. It is a priceless act, and I am ever greatful!! Thanx again Love and Light, Jess
At Wed, 18 Mar 2009, Jess wrote:
>
>I was hoping that maybe some of you may have some more suggestions... I
>am beginning to feel like a helpless and hopeless cause. Last March was
>my last laporoscopy to search for adhesions. Been having chronic pain
>in my right lower pelvic for about 23 months now. The lap in March
>showed no adhesions, yet it still feels like adhesion pain. I have had
>14 operations in the past 10 years, including a full hysterectomy due to
>adhesions.
>It was a blessing to think that maybe I beat the adhesion problem, but
>now the doctors can't find a source for the pain. I have been dealing
>with my OB doctor, a neurologist, and a pain management specialist. All
>of whom are at a dead end road.
>We have done an MRI of the brain because my dad has MS, and having a 1st
>degree relative increased my chances of brain lesions...well the MRI was
>normal. Tried an illiolingual block, didn't cure anything. I am on a
>daily medication regimen for pain, and find that the only thing I am
>getting from that is probably an addiction. its been 23 months of pain
>med treatment as well. My team of doctors are clueless as to where to
>go next...just they all seem to agree to keep me on the pain meds.
>I was just hoping that maybe some of you may have other suggestions of
>things you have done or tried in the past, that maybe I could research,
>and just bring up to the docs.
>This feeling of fighting a losing battle is wearing me down. I will be
>31 on the 28th, and I feel that the fighting of this for the past 10
>years has really kicked my butt, in my mind, I say don't give up, but my
>body can't handle this anymore. My kids are living a nightmare with me
>cuz of this, and I don't think its fair, right, gosh, I could go on
>forever. So please help me if you can!!!
> thanks for taking the time to listen.
> Blessings,
> Jess
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