From: Linda <lindahalford@comcast.net> Subject: Re: feeling hopeless...... To: "Multiple recipients of list ADHESIONS" <adhesions@mail.obgyn.net> Date: Thursday, 19 March, 2009, 3:20 PM
Endometriosis cannot be detected by a Pap Smear. I learned this the hard way! My body told me I was going through the change (all the signs were there). The male GYN I was going to said my pap was fine and I wasn't going through the change. I found a good, Christian female doctor who IMMEDIATELY said she believed from all the symptoms that I may have Endometriosis which is the first signs of cancer. She said she wanted to do a test for it because Pap Smears don't detect Endo. She did the test on my first visit to her and said it showed I had Endo. The male GYN had me on hormones which she told me to stop taking immediately as it would make the Endo grow faster. She said I needed a hysterectomy ASAP. After the surgery, I felt so much better. I never went back to that male GYN...he didn't even bother to check me further nor did he tell me Pap Smears don't show Endo. If you must have a hysterectomy and you don't plan to have anymore children, you may want to have a total one so you won't have to worry that cancer cells spilled over to the ovaries. Do men have as many problems as we women? If so, I don't hear about them that much.
>----- Original Message -----
From: Jess To: Multiple recipients of list ADHESIONS
Sent: Wednesday, March 18, 2009 8:01 AM
Subject: feeling hopeless......
I was hoping that maybe some of you may have some more suggestions... I am beginning to feel like a helpless and hopeless cause. Last March was my last laporoscopy to search for adhesions. Been having chronic pain in my right lower pelvic for about 23 months now. The lap in March showed no adhesions, yet it still feels like adhesion pain. I have had 14 operations in the past 10 years, including a full hysterectomy due to adhesions. It was a blessing to think that maybe I beat the adhesion problem, but now the doctors can't find a source for the pain. I have been dealing with my OB doctor, a neurologist, and a pain management specialist. All of whom are at a dead end road. We have done an MRI of the brain because my dad has MS, and having a 1st degree relative increased my chances of brain lesions...well the MRI was normal. Tried an illiolingual block, didn't cure anything. I am on a daily medication regimen for pain, and find that the only thing I am getting from that is probably an addiction. its been 23 months of pain med treatment as well. My team of doctors are clueless as to where to go next...just they all seem to agree to keep me on the pain meds. I was just hoping that maybe some of you may have other suggestions of things you have done or tried in the past, that maybe I could research, and just bring up to the docs. This feeling of fighting a losing battle is wearing me down. I will be 31 on the 28th, and I feel that the fighting of this for the past 10 years has really kicked my butt, in my mind, I say don't give up, but my body can't handle this anymore. My kids are living a nightmare with me cuz of this, and I don't think its fair, right, gosh, I could go on forever. So please help me if you can!!! thanks for taking the time to listen. Blessings, Jess
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