Re: ANOTHER CANADIAN HEARD FROM.....

From: Lou (louc829@gmail.com)
Fri Mar 13 18:52:23 2009


At Fri, 13 Mar 2009, Heather Pfeil wrote: >
>Hi Geri
>
>I read your dilemna which sounds very much like mine, and incidentally
>I am also Canadian, however live on the other side of Canada. I am
>pasting some interesting literature that I read, which you might find
>useful.
>
>In November last year I went to visit my GP who put in a request for
>an appointment with a specialist for me, well I am still waiting. i am
>supposed to have annual scopes but of course am lucky if I get in
>every 3 or 4 years.
>
>I am experiencing enormous discomfort, not ... pain especially when I
>sit down on a low chair, the burning sensation is unbarable but I have
>been told to stretch and it should relieve it [obviously from some
>smart ass who has not ever experienced this pain] however here are the
>sites
>
>http://www.adhesions.org/images/DearBenefitsOfficerLtr_fromIAS..pdf
>
>http://www.thirdage.com/encyclopedia/lysis-of-adhesions-cutting-adhesions-adhesiolysis
>
>http://www.adhesions.org/
>
>http://www.adhesionrelateddisorder.com/BJD-Picture-Trail.html
>
>I am truly hoping to get some sort of relief, because it is definitely
>not getting any better and is quite debilitating
>
>take care
>
>On Tue, Mar 10, 2009 at 8:46 AM, Geri <ontariocrafter@yahoo.ca> wrote:
>>
>> Thanks Linda.. I will ask My doctor to check into this... Geri
>>
>> ------------------------------
>> *From:* Linda <lindahalford@comcast.net>
>> ------------------------------
>> ------------------------------
>> ------------------------------
>> *To:* Multiple recipients of list ADHESIONS <adhesions@mail.obgyn.net>
>> ------------------------------
>> *Sent:* Monday, March 9, 2009 2:11:54 PM
>> ------------------------------
>> *Subject:* Re: ANOTHER CANADIAN HEARD FROM.....
>> ------------------------------
>>
>> Geri, I had two hernia repairs but mesh didn't hold. Dr. Sevin, Mayo
>> Clinic, Jacksonville, FL used a double layer of Dura Mater to secure my
>> abdomen and I haven't herniated since. He also used it on my friend who had
>> herniated a few times. He taught doctors at the University of Miami for
>> many years before coming to Mayo Clinic. I don't know if he's still using
>> Dura Mater to secure hernias but if interested, you could contact him. Good
>> luck.
>> Linda
>>

>>>> ----- Original Message -----
>> *From:* Geri <ontariocrafter@yahoo.ca>
>> *To:* Multiple recipients of list ADHESIONS <adhesions@mail.obgyn.net>
>> *Sent:* Sunday, March 08, 2009 8:32 PM
>> *Subject:* Re: ANOTHER CANADIAN HEARD FROM.....
>>
>> Hi Lou...
>> My Bowel Perforated in Feb 2000...(What a way to start New Millenium..)
>> complete with Septic Shock and a tempprary colostomy.. and Hartman's
>> Procedure to reconnect bowel in September 2000...
>>
>> Have had 2 Hernia repairs since.. both didn't last... and NOW need a major
>> hernia repair.. (but I am avoiding it...)
>>
>> I have had pain ever since it all healed.. it was delayed closure.. No time
>> to close in the OR as I was dying and needed to get in ICU and on life
>> support..
>>
>> Spent 2 days in ER last week and NOT one Physican mentioned possibility
>> that pain was from Adhesions.. I got a million and one other suggestions
>> including a triage nurse who said I was probably just constipated... and let
>> me sit in a wheelchair for 3 hours...I didn't get any attention until I
>> nearly passed out....
>>
>> Ontario Health Care has sure changed in the last 20 years... So Sad... A
>> wonderful system gone bad from abuse and fraud....
>>
>> Now if you are low income you can't get good care... It is DEFINITELY a 2
>> Tier System...(I was a social worker who had to quit work as I was just too
>> sick...)
>>
>> Geri
>>
>> ------------------------------
>> *From:* Lou <louc829@gmail.com>
>> ------------------------------
>> ------------------------------
>> ------------------------------
>> *To:* Multiple recipients of list ADHESIONS <adhesions@mail.obgyn.net>
>> ------------------------------
>> *Sent:* Sunday, March 8, 2009 7:10:50 PM
>> ------------------------------
>> *Subject:* Re: ANOTHER CANADIAN HEARD FROM.....
>> ------------------------------
>>
>> At Sat, 7 Mar 2009, Geri wrote:
>> >
>> >Hi...
>> >I am new to the site, but not the pain...
>> >Geri
>> >Ontario, Canada
>> >
>> >________________________________
>> >From: LOU COOPER <louc829@gmail.com>=0ATo: Multiple recipients of list
>> >________________________________
>> >________________________________
>> ADHESIONS <adhesions@mail.ob> >a
>> >
>> >________________________________
>> >From: LOU COOPER <louc82gyn.net>
>> >________________________________
>> >________________________________
>> >Sent: Saturday, March 7, 2009 9:54:15 PM
>> >Subject: Re: The way to go!!!
>> >
>> >Hi Donna, from Lou,
>> >I am so sorry that you are having so much adhesion pain again, will
>> >the Dr. in Germany,
>> >be able to help you again,
>> >No one should face pain alone, you need the love and support of your
>> >family, sometimes things
>> >do not work out as we wish and it not your fault, do not go alone.it
>> >grieves me that you are suffering
>> >alone in silence, this kind of surgery their are no guarantees as you
>> >well know by reading the story's
>> >on the adhesion site
>> >Take care, Lou
>> >
>> >l
>> >On Sat, Mar 7, 2009 at 2:11 PM, Donna Johansen <donnajohansen@telus.net>
>> wrote:
>> >> Lou,
>> >> My surgeon tells me there are surgeons in Canada who will do it
>> >> but they are not capable of doing it properly and the adhesions
>> >> all come back with a vengeance..which we all know has a good
>> >> percentage of being fact. I personally know of one other local
>> >> woman (I live in a very small town) who has surgery every 6 months
>> >> to take them down. She was desperate a year ago, but I didn't
>> >> know about this IAS and can't remember her name. One year ago I
>> >> was completely alone in this, thinking I must be the only one
>> >> having to live in absolute pain. I know others exist out there,
>> >> suffering the only way they know how, in silence.
>> >>
>> >> Germany was great for me but I am having a real hard time right
>> >> now. Three weeks after returning I had a terrible fall. I have
>> >> bad arthritis and my knees don't respond like they should. We
>> >> were on our sailboat (45 footer) and I fell from the cockpit to
>> >> the bottom of the outside walkway. A long fall on a big boat. I
>> >> still suffer with the injuries on my arms and legs. Dr. K was
>> >> concerned about this fall and I remember reading literature about
>> >> falling so close to surgery...that adhesion growth could start
>> >> again with the injury. Interesting thing is that I have been on
>> >> large doses of Celebrex for the arthritis and my adhesion problems
>> >> seemed to be relatively minor last fall to recently. I have
>> >> continued to have painful and irritable bowel problems that are
>> >> now worse. Over a month ago I couldn't afford the Celebrex and so
>> >> have suffered with arthritis and NOW for the last three weeks I AM
>> >> SUFFERING WITH ADHESION PAIN AGAIN that keeps me awake or wakes me
>> >> before normal people should be awake! I am desperate to try to
>> >> reverse it and have doubled up on the Celebrex thinking that is
>> >> perhaps the reason for this reversal. I can't tell you how
>> >> devastated I am if this doesn't clear up...my family have all
>> >> sacrificed so much....I don't think I can tell them so I suffer in
>> >> silence.
>> >>
>> >> Donna
>> >>
>> >> -----Original Message-----
>> >> From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On
>> >> Behalf Of Lou
>> >> Sent: Saturday, March 07, 2009 9:14 AM
>> >> To: Multiple recipients of list ADHESIONS
>> >> Subject: Re: The way to go!!!
>> >>
>> >> At Thu, 5 Mar 2009, Donna Johansen wrote:
>> >>>
>> >>>Canada is the worst...Europe is probably the most aware and has
>> >> help
>> >>>too. I am not a hateful person but I hate my former surgeon who
>> >>>absolutely turned his back on me. Our medical system is mostly
>> >> great
>> >>>but this is something else!
>> >>>Donna
>> >>>HI DONNA FROM LOU MAR 7TH 11.48am
>> >> I FEEL THIER MUST BE A GOOD ADHESION LAP SCOPE SURGEON IN CANADA
>> >> SOMEWHERE, BUT TRYING TO FIND ONE ITS JUST IMPOSSIBLE, YOU SAID
>> >> YOU WENT TO GERMANY AND ARE FEELING BETTER.
>> >> THE THING I FIND STRANGE ARE WE THE ONLY TWO IN CANADA WITH THIS
>> >> PROBLEM,NEVER HEAR ON THE IAS OF MANY OTHERS WRITNG IN ,IF THAY
>> >> DID MIGHT FIND OUT MORE ANSWERS. I ENVY THE GIRLS IN THE US, SO
>> >> MANY GOOD DRS THAT DO ADHESION SURGERY LOU
>> >>
>> >>>-----Original Message-----
>> >>>From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On
>> >>
>> >>>Behalf Of Lou
>> >>>Sent: Thursday, March 05, 2009 1:32 PM
>> >>>To: Multiple recipients of list ADHESIONS
>> >>>Subject: The way to go!!!
>> >>>
>> >>>HI, THIS IS THE WAY TO GO, IT HAS TO CAME FROM YOU GUYS WHO ARE
>> >>>SUFFERING FROM THIS AWFUL PROBLEM + THE ONES THAT HAVE BEEN
>> >> CURED,
>> >>>THEIR ARE SOME FINE STORY'S TO BE TOLD ( WHAT ABOUT THE IBS
>> >> QUIT),IF
>> >>>THIS IS NOT TOLD, WHO WILL KNOW WHAT SUFFERING THEIR IS FROM FROM
>> >> ABD
>> >>>ADHESIONS.
>> >>>THE SQUEKEY WHEEL, AND ALL THAT MOST TIMES IT WORKS, BUT IF WE
>> >> REMAIN
>> >>>SILENT, NOTHING WILL BE DONE, DIVIDED WE FALL UNITED WE RAISE.
>> >>>LOOK AT TERRY FOX AND WE ALL KNOW WHAT HE DID AND TODAY ITS STILL
>> >> GOING
>> >>>ON, TO ALL DRS AND SURGEONS OUT THERE HOW DO NOT KNOW, ADHESIONS
>> >> DO
>> >>>CAUSE PAIN, PAIN AND MORE PAIN + ALL THE STUFF THAT GOES WITH IT,
>> >> THE
>> >>>UPSET GUT THAT NEVER GOES AWAY, THE FOODS WE LOVED TO EAT AND NOW
>> >> CAN
>> >>>NOT.
>> >>>ONE DAY YOUR LIFE IS GREAT - THE NEXT YOU CAN BE IN LIVING HELL,
>> >> THIS
>> >>>CAN HAPPEN TO ANY ONE, YOUNG OR OLD AT ANY TIME, LET HOPE AND
>> >> PRAY A
>> >>>CURE CAN BE FOUND SOON AND ADHESION WILL BE A THING OF THE PAST,
>> >> I ENVY
>> >>>YOU GUYS IN THE USA, YOU DO HAVE ALOT OF GOOD SURGEONS THAT DO
>> >>>LAP-SCOPE SURGRERY FOR THE REMOVEL OF ADHESIONS, I LIVV IN
>> >> CANADA, NOT
>> >>>ONE CAN BE FOUND I HAVE TRYED THE WEB, HOSPITALS +++ALL I FIND IS
>> >> A
>> >>>BRICK WALL, GOOD LUCK TO ALL WHO TRY TO GET ADHESIONS INTO Tn see
>> >> http://www.adhesions.org/forums/message.htm
>> >>
>> http://www.adhesions.org/forums/listcmds.htm
>>
>> --
>> HI GERI
>> WELCOME, NICE TO HEAR FROM YOU, THAT MAKE'S THREE OF US, I HOPE MORE WILL
>> ,
>> WRITE IN. ALSO IF YOU DO NOT MIND IF, I ASK YOU, WHEN DID YOU HAVE SURGERY,
>> AND WHAT PROBLEMS ARE YOU HAVING WITH ADHESIONS
>> ALL THE BEST---LOU
>>

Hi Heather. Welcome you are # 4 Canadian to write into this forum, I wish that their were more of us it would be of great help, what other pepole in this country are going though + the benefits, what we have tryed and experienced. I found out,Coviden a company that makes surgiacl stuff,based in the U.S I think,intoduced to the eu and easturn market's is a product called Spray Shield which when applied just before closeing up, stops surgical adhesions from forming, this is what we need,this would save us from suffering,having endless test that all come back neg,our time, the money that health service's would save and that is only a small part of it. But the biggest thing---to have our life's back. I have phoned my MP, waiting to hear from her, it my not do much good, but I have to try. Lou.


Enter keywords:
Returns per screen: Require all keywords: