Re: ANOTHER CANADIAN HEARD FROM.....

From: Linda (lindahalford@comcast.net)
Mon Mar 9 12:10:51 2009


Geri, I had two hernia repairs but mesh didn't hold. Dr. Sevin, Mayo Clinic, Jacksonville, FL used a double layer of Dura Mater to secure my abdomen and I haven't herniated since. He also used it on my friend who had herniated a few times. He taught doctors at the University of Miami for many years before coming to Mayo Clinic. I don't know if he's still using Dura Mater to secure hernias but if interested, you could contact him. Good luck. Linda

> ----- Original Message -----
From: Geri To: Multiple recipients of list ADHESIONS Sent: Sunday, March 08, 2009 8:32 PM Subject: Re: ANOTHER CANADIAN HEARD FROM.....

Hi Lou... My Bowel Perforated in Feb 2000...(What a way to start New Millenium..) complete with Septic Shock and a tempprary colostomy.. and Hartman's Procedure to reconnect bowel in September 2000...

Have had 2 Hernia repairs since.. both didn't last... and NOW need a major hernia repair.. (but I am avoiding it...)

I have had pain ever since it all healed.. it was delayed closure.. No time to close in the OR as I was dying and needed to get in ICU and on life support..

Spent 2 days in ER last week and NOT one Physican mentioned possibility that pain was from Adhesions.. I got a million and one other suggestions including a triage nurse who said I was probably just constipated... and let me sit in a wheelchair for 3 hours...I didn't get any attention until I nearly passed out.....

Ontario Health Care has sure changed in the last 20 years... So Sad... A wonderful system gone bad from abuse and fraud....

Now if you are low income you can't get good care... It is DEFINITELY a 2 Tier System...(I was a social worker who had to quit work as I was just too sick...)

Geri

------------------------------------------------------------------------------ ------------------------------------------------------------------------- From: Lou <louc829@gmail.com>

--
-------------------------------------------------------------------------  To: Multiple recipients of list ADHESIONS <adhesions@mail.obgyn.net>
  Sent: Sunday, March 8, 2009 7:10:50 PM
  Subject: Re: ANOTHER CANADIAN HEARD FROM.....

At Sat, 7 Mar 2009, Geri wrote: > >Hi... >I am new to the site, but not the pain... >Geri >Ontario, Canada > >________________________________ >From: LOU COOPER <louc829@gmail.com>=3D0ATo: Multiple recipients of = >________________________________

list ADHESIONS <adhesions@mail.ob >a > >________________________________ >From: LOU COOPER <louc82gyn.net> >________________________________ >Sent: Saturday, March 7, 2009 9:54:15 PM >Subject: Re: The way to go!!! > >Hi Donna, from Lou, >I am so sorry that you are having so much adhesion pain again, will >the Dr. in Germany, >be able to help you again, >No one should face pain alone, you need the love and support of your >family, sometimes things >do not work out as we wish and it not your fault, do not go alone.it >grieves me that you are suffering >alone in silence, this kind of surgery their are no guarantees as you >well know by reading the story's >on the adhesion site >Take care, Lou > >l >On Sat, Mar 7, 2009 at 2:11 PM, Donna Johansen <donnajohansen@telus.net> wrote: >> Lou, >> My surgeon tells me there are surgeons in Canada who will do it >> but they are not capable of doing it properly and the adhesions >> all come back with a vengeance...which we all know has a good >> percentage of being fact. I personally know of one other local >> woman (I live in a very small town) who has surgery every 6 months >> to take them down. She was desperate a year ago, but I didn't >> know about this IAS and can't remember her name. One year ago I >> was completely alone in this, thinking I must be the only one >> having to live in absolute pain. I know others exist out there, >> suffering the only way they know how, in silence. >> >> Germany was great for me but I am having a real hard time right >> now. Three weeks after returning I had a terrible fall. I have >> bad arthritis and my knees don't respond like they should. We >> were on our sailboat (45 footer) and I fell from the cockpit to >> the bottom of the outside walkway. A long fall on a big boat. I >> still suffer with the injuries on my arms and legs. Dr. K was >> concerned about this fall and I remember reading literature about >> falling so close to surgery...that adhesion growth could start >> again with the injury. Interesting thing is that I have been on >> large doses of Celebrex for the arthritis and my adhesion problems >> seemed to be relatively minor last fall to recently. I have >> continued to have painful and irritable bowel problems that are >> now worse. Over a month ago I couldn't afford the Celebrex and so >> have suffered with arthritis and NOW for the last three weeks I AM >> SUFFERING WITH ADHESION PAIN AGAIN that keeps me awake or wakes me >> before normal people should be awake! I am desperate to try to >> reverse it and have doubled up on the Celebrex thinking that is >> perhaps the reason for this reversal. I can't tell you how >> devastated I am if this doesn't clear up....my family have all >> sacrificed so much....I don't think I can tell them so I suffer in >> silence. >> >> Donna >> >> -----Original Message----- >> From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On >> Behalf Of Lou >> Sent: Saturday, March 07, 2009 9:14 AM >> To: Multiple recipients of list ADHESIONS >> Subject: Re: The way to go!!! >> >> At Thu, 5 Mar 2009, Donna Johansen wrote: >>> >>>Canada is the worst...Europe is probably the most aware and has >> help >>>too. I am not a hateful person but I hate my former surgeon who >>>absolutely turned his back on me. Our medical system is mostly >> great >>>but this is something else! >>>Donna >>>HI DONNA FROM LOU MAR 7TH 11.48am >> I FEEL THIER MUST BE A GOOD ADHESION LAP SCOPE SURGEON IN CANADA >> SOMEWHERE, BUT TRYING TO FIND ONE ITS JUST IMPOSSIBLE, YOU SAID >> YOU WENT TO GERMANY AND ARE FEELING BETTER. >> THE THING I FIND STRANGE ARE WE THE ONLY TWO IN CANADA WITH THIS >> PROBLEM,NEVER HEAR ON THE IAS OF MANY OTHERS WRITNG IN ,IF THAY >> DID MIGHT FIND OUT MORE ANSWERS. I ENVY THE GIRLS IN THE US, SO >> MANY GOOD DRS THAT DO ADHESION SURGERY LOU >> >>>-----Original Message----- >>>From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On >> >>>Behalf Of Lou >>>Sent: Thursday, March 05, 2009 1:32 PM >>>To: Multiple recipients of list ADHESIONS >>>Subject: The way to go!!! >>> >>>HI, THIS IS THE WAY TO GO, IT HAS TO CAME FROM YOU GUYS WHO ARE >>>SUFFERING FROM THIS AWFUL PROBLEM + THE ONES THAT HAVE BEEN >> CURED, >>>THEIR ARE SOME FINE STORY'S TO BE TOLD ( WHAT ABOUT THE IBS >> QUIT),IF >>>THIS IS NOT TOLD, WHO WILL KNOW WHAT SUFFERING THEIR IS FROM FROM >> ABD >>>ADHESIONS. >>>THE SQUEKEY WHEEL, AND ALL THAT MOST TIMES IT WORKS, BUT IF WE >> REMAIN >>>SILENT, NOTHING WILL BE DONE, DIVIDED WE FALL UNITED WE RAISE. >>>LOOK AT TERRY FOX AND WE ALL KNOW WHAT HE DID AND TODAY ITS STILL >> GOING >>>ON, TO ALL DRS AND SURGEONS OUT THERE HOW DO NOT KNOW, ADHESIONS >> DO >>>CAUSE PAIN, PAIN AND MORE PAIN + ALL THE STUFF THAT GOES WITH IT, >> THE >>>UPSET GUT THAT NEVER GOES AWAY, THE FOODS WE LOVED TO EAT AND NOW >> CAN >>>NOT. >>>ONE DAY YOUR LIFE IS GREAT - THE NEXT YOU CAN BE IN LIVING HELL, >> THIS >>>CAN HAPPEN TO ANY ONE, YOUNG OR OLD AT ANY TIME, LET HOPE AND >> PRAY A >>>CURE CAN BE FOUND SOON AND ADHESION WILL BE A THING OF THE PAST, >> I ENVY >>>YOU GUYS IN THE USA, YOU DO HAVE ALOT OF GOOD SURGEONS THAT DO >>>LAP-SCOPE SURGRERY FOR THE REMOVEL OF ADHESIONS, I LIVV IN >> CANADA, NOT >>>ONE CAN BE FOUND I HAVE TRYED THE WEB, HOSPITALS +++ALL I FIND IS >> A >>>BRICK WALL, GOOD LUCK TO ALL WHO TRY TO GET ADHESIONS INTO Tn see >> http://www.adhesions.org/forums/message.htm >>

http://www.adhesions.org/forums/listcmds.htm

-- HI GERI WELCOME, NICE TO HEAR FROM YOU, THAT MAKE'S THREE OF US, I HOPE MORE WILL , WRITE IN. ALSO IF YOU DO NOT MIND IF, I ASK YOU, WHEN DID YOU HAVE SURGERY, AND WHAT PROBLEMS ARE YOU HAVING WITH ADHESIONS ALL THE BEST---LOU

http://www.adhesions.org/forums/listcmds.htm

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