Re: Having a really tough flare-up

From: Kris (krisl1204@yahoo.com)
Sun Mar 1 15:29:00 2009


At Sun, 1 Mar 2009, Tracy S wrote: > Thanks for asking! Nice guy, but there wre quite a few red flags! We had my grandson's 5th birthday party today. i managed to eat a few bites of a great meal. It was a really fun day, in spite of not feeling well. I'm down to counting the hours until surgery now! I hope today has been a good one for you!
>Hey Kris,
>
>How did the date go???? Hope today is a good day for you!!! :)
>
>Tracy
>
>--- On Sat, 2/28/09, Kris <krisl1204@yahoo.com> wrote:
>From: Kris <krisl1204@yahoo.com>
>Subject: Re: Having a really tough flare-up
>To: "Multiple recipients of list ADHESIONS" <adhesions@mail.obgyn.net>
>Date: Saturday, February 28, 2009, 6:24 PM
>
>At Sat, 28 Feb 2009, Tracy S wrote:
>>
>>Hi Kris,
>> 
>>My obstruction were all DX'ed by CAT scan...funny thing is none of them
>have showed up on a regular Xray though. Last weekend I had another
>bout....Throwing up Nausea AWFUL pain....So of course I called my PC who of
>course said go straight to the ER.
>>Important piece of info though...I had just been DX'ed w/ a partial
>bowel obstruction 10 days before by the SAME ER  doctor that saw me last
>weekend. He order a regular Xray which of course came up with nothing....Came in
>and told me he was going to send me home with Pain meds and Nausea meds....I
>question him why he was not doing a CAT scan and he replied that the Xray would
>show a complete obstruction and I was in no imediate danger. Of course I
>questioned him and explained none of my other regular Xray's had shown
>obstructions and they were only visible on the CAT scan., so he explained how
>having too many CAT Scan's was not good...cancer risks and blah blah
>blah....so he sent me on my way anyhow. Thinking back I should have insited that
>keep me but after being there just 10 days before and two weeks before that
>(which showed nothing that time) and a month before with a colon
>infection....you begin to think maybe they think your just looking for
>> drugs or something! He offered me pain med which I turned down explaining
>I still had pain med from my discharge 10 days before....Figured that would cue
>him in I was not there just looking for pain meds....I did feel better a few
>days later but I guess it's just the principle of feeling like you're be
>pushed away when you know your pain is real....Ok sorry to be so long
>winded....It's just so nice to have someone to talk to who knows it's
>not all just in my head!!!
>> 
>>Tracy
>>Hi Tracy! I just can't believe they wouldn't do surgery after
>definitively diagnosing obstructions! Don't you just hate the ER visits??
>The last time i went the first question the nurse asked me when I got there was
>if I was out of my pain meds. I whipped the bottle out of my purse and showed
>her that it had just been filled, but that it was like taking an aspirin for a
>C-Section. She mellowed out a little after that! I wish you could find a surgeon
>that would help you. It's so hard to keep trying to talk to doctors and
>explain your story over and over again.I wish tht none of us had a reason to
>have to explain the story! Believe me, I know it's not in your head! I feel
>the same way. I work so hard to keep a normal life. Today is another tough one.
>Believe it or not, I have a 2nd date with a guy I met through a girlfriend
>tonight. I'm 53. It seems weird to say date at this age! He knows all about
>my issues and appears to be understanding. He's been having abdominal pain
>and!
> had to go to the ER after we had our first date a few weeks ago! Maybe this is
>contagious!:) I guess his may be gall bladder. I really don't want to go,
>but it's all part of the working to be normal as best that I can.We're
>going out for dinner. oh joy. Eating! I'll just have him take me home early
>if I can't stand it any more. I'm just hanging in here until surgery on
>Tuesday. If this doesn't work, I don't know what I'm going to
>do.Find a way to cope, I guess. Thanks for your communication and support! I
>hope your day is going well! Kris
>
>>--- On Sat, 2/28/09, Kris <krisl1204@yahoo.com> wrote:
>>
>>From: Kris <krisl1204@yahoo.com>
>>Subject: Re: Having a really tough flare-up
>>To: "Multiple recipients of list ADHESIONS"
><adhesions@mail.obgyn.net>
>>Date: Saturday, February 28, 2009, 8:34 AM
>>
>>At Sat, 28 Feb 2009, Tracy S wrote:
>>>
>>>Kris,
>>> 
>>>I just wanted to let you know that I sooooo understand how you're
>>feeling!!!! I hope today is a better day for you!!!! Also I just had to
>tell you
>>how jealous I am that your having surgery!!!!
>>>Sure does sound like a crazy thing to say, but even after 4 partial
>bowel
>>obstructions and a zillion dr appts my Dr still says ...NO SURGERY!!!
>>> 
>>>But Tuesday is going to be a good day for both of us....Your hopefully
>>going to get the relief you so deserve and I'm having my first appt
>with a
>>NEW primary care DR!!!!! After 10 years of hearing NO....I'll keep
>switching
>>if I have to until one of these DR's HELPS ME!!!
>>> 
>>>Your in my thoughts and prayers!!! Be sure to keep us updated!
>>> 
>>>Hugs!
>>>Tracy
>>>
>>>--- On Fri, 2/27/09, Kris <krisl1204@yahoo.com> wrote:
>>>Hi tracy! Thanks so much for your kind words and your support. It's
>not
>>crazy at all to feel jealous about the surgery. It's the hope we've
>all
>>been asking for!When i posted about it, my thoughts were that I wish i
>could
>>take everyone with me on this site to this surgeon that I happened to be so
>>lucky to find. I can't believe they won't do anything after your 4
>>partial bowel obstructions! Did they diagnose through some type of test? I
>know
>>that I've been through at least 3 of them the last year, but most of my
>>tests have come back normal, except for one CT scan that showed
>inflammation in
>>the intestinal wall by my gall blader. That showed up on a Friday, but
>since it
>>was so close to the weekend, they at least left me in the hospital on IV
>pain
>>meds until Monday, when they did a barium enema, but showed no obstruction..
>So,
>>off they sent me home again with no answers. I know I had another bad one
>in
>>Dec. The runs for about 12 days, with stools finally forming into pencil
>thin!
>> ones for another week. After that I felt pretty good for about 3 weeks in
>Jan.
>>and actually thought about cancelling my surgery. The misery kicked in
>again and
>>I'm glad I didn't cancel it. Please keep looking for a new doctor
>who
>>will help you. I just thought of something...Maybe it would help if you
>brought
>>a couple of the articles along that Mark has shared, the one about
>adhesions
>>barriers becoming big business and the other about the Cine MRI. I think
>I'd
>>do that if I was still on the doctor hunt. After reading all ihave on here,
>>I've really realized how fortunate that I am to have found this surgeon
>>after only one year. If I didn't have the PCP physician that I have, I
>>wouldn't have ended up here. I hope you're having a pain tolerant
>day.
>>Thank you again so much for responding to me. Your kind thoughts and words
>mean
>>alot! It really helps to have the understanding of others who know what
>I'm
>>going through. On the other hand, I really wish none of us had to deal with
>th!
>>is! I'll be in touch soon! Kris
>>>From: Kris <krisl1204@yahoo.com>
>>>Subject: Having a really tough flare-up
>>>To: "Multiple recipients of list ADHESIONS"
>><adhesions@mail.obgyn.net>
>>>Date: Friday, February 27, 2009, 6:42 PM
>>>
>>>Hi! I just need to vent as I'm going through a really tough
>flare-up.
>>As
>>>I posted before, I'm having surgery on Tuesday and I cannot wait.
>The
>>>nausea has been so bad for the past few days. On Wednesday, I even
>>>puked all over in my car as I was driving home. Yesterday was a little
>>>better, but today is really rough again. At least I haven't gotten
>>sick
>>>again. I've got the same pain that all of you go through in that
>>it's
>>>like a vice grip is wrapped around my rib cage on my right side. I can
>>>feel these damn things pulling all the way down to my navel. It always
>>>scares me when these flare ups get so bad. I don't know about you
>>guys,
>>>but I always worry that it's cancer or something! I have to remind
>>>myself of all the tests that don't show that and remember the other
>bad
>>>flare-ups. I have to say I've never actually thrown up before. I
>just
>>>need to get through until Tuesday. I'm so hopeful for good
>results.
>>>It's so hard for family members and friends to understand. I even
>just
>>>got crabby on the phone with my poor 83 year old mother. I never do
>>>that! Sometimes it's hard to remain cheerful and positive when you
>feel
>>>so bad in spite of trying hard to. Thanks for listening. I know you
>>>all understand! Take care! Kris
>>>
>>>htm
>>
>>htm
>
>htm

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