I hear ya loud & clear!!!! The medical community treats adhesion's like the common cold!!! I sometimes wish they would find something REALLY wrong with me so they'd take me serious!!!
Tracy
--- On Sun, 3/1/09, Donna Johansen <donnajohansen@telus.net> wrote: From: Donna Johansen <donnajohansen@telus.net> Subject: Re: Having a really tough flare-up To: "Multiple recipients of list ADHESIONS" <adhesions@mail.obgyn.net> Date: Sunday, March 1, 2009, 3:30 PM
Kris your comment about the worry of cancer .....As serious as cancer is, don't you feel it would be better in many ways if we were actually diagnosed with something that isn't ignored by the medical establishment? At least then we would be taken seriously and a solution would be found come hell or high water! I realize this sounds ignorant but I'm only stating what many of us believe.
Donna J
-----Original Message----- From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf Of Kris Sent: Friday, February 27, 2009 4:32 PM To: Multiple recipients of list ADHESIONS Subject: Re: Having a really tough flare-up
At Fri, 27 Feb 2009, HERB F DIXON wrote:
> No worries! I know exactly what it's like. My mom is alone, so
she really depends on me alot. My oldest son is 32 and has half
time custody of his 2 gorgeous sons, who are 5 and 2 1/2. i spend
alot of time with them. I also have a really demanding job with 35
employees. I'm single and sometimes it just feels like all i do is
take care of what everyone else needs! I take Zofran for nausea.
Wouldn't you know it that i hadn't gotten the refill because I had
been feeling better. I was coming back from an out of town trip
the day I threw up all over the car. Maybe if I'd had the anti
nausea medication I could have avoided that nightmare. Funny you
should say that about the heating pad. I was just looking for
mine. I think one of my sons took it home! I really appreciate you
responding to me. I was at the brink of tears when I posted my
first message. This truly is the silent disease, isn't it? The
only way i can explain it to anyone is to remind them that Bill
CLinton had to go!
in for surgery after his heart surgery to have scar tissue
removed. Then they kinda get it! However, as we all know, it's
tough to understand unless you live with it. I hope your
father-in-law is feeling better. I'm going to lay on the couch and
read a book. I also find that sitting for very long really makes
it worse for me. It feels like everything is squished and that I
have a huge lump under my ribcage. I'll stay in touch and let you
know how the surgery goes. It's my first one to have adhesions
removed and I hope it's the last! Take care of yourself and thank
you very much again for responding. i needed a sympathetic ear and
you really helped me! Kris
>Hi Kris, I'm sorry it is a rough day for you. Mine has been tough
too. I got up at 4:00 AM because it feels as if a sharp knife
keeps getting thrust deeper and deeper under my ribcage on left
side. I am so lucky that I never throw up, I do get extremely
nauseous though, take 1/2 of a Phenegren ( sp?) It is very hard
when our families and friends do not understand what we go
through. They always say Oh, you look so good. I guess that is why
its called the hidden disease! I do get afraid too, especially
when my pain is more intense, or different, I think it is just
normal. You also only have a few days til you have yet another
surgery. You want to be well so bad you can taste it. So, you need
some me time to relax, grab the heating pad, and take care of you!
I find too that when I am having a bad episode, and things are
going on, and I can't take care of myself,and I'm stressed out, I
end up worse off doubling over with pain, grouchy, short tempered
and then the tears start. !
You just can't win for losing with ARD. My Mother in Law passed
away in Dec. We also care for my Father in Law and he is sick with
the latest bug going around. I had to go get stuff for him at the
store, then made him Jello, and Puddings because he can hardly
swallow. Standing for periods of time don't help either. I am
taking my own advice, grabbing my heating pad and resting while my
Husband takes him to the Doctor. Sorry Kris, I had planned on
cheering you up, and got caught up about myself. Best of luck with
you on your surgery, You are in my thoughts and prayers. I hope
that this time next week, you will be a new person and PAIN
FREE!!! Cheryl D.
>
>> Date: Fri, 27 Feb 2009 17:42:14 -0600
>> From: krisl1204@yahoo.com
>> To: adhesions@mail.obgyn.net
>> Subject: Having a really tough flare-up
>>
>> Hi! I just need to vent as I'm going through a really tough
flare-up.
>> As I posted before, I'm having surgery on Tuesday and I cannot
wait.
>> The nausea has been so bad for the past few days. On Wednesday,
I
>> even puked all over in my car as I was driving home. Yesterday
was a
>> little better, but today is really rough again. At least I
haven't
>> gotten sick again. I've got the same pain that all of you go
through
>> in that it's like a vice grip is wrapped around my rib cage on
my
>> right side. I can feel these damn things pulling all the way
down to
>> my navel. It always scares me when these flare ups get so bad.
I
>> don't know about you guys, but I always worry that it's cancer
or
>> something! I have to remind myself of all the tests that don't
show
>> that and remember the other bad flare-ups. I have to say I've
never
>> actually thrown up before. I just need to get through until
Tuesday. I'm so hopeful for good results.
>> It's so hard for family members and friends to understand. I
even
>> just got crabby on the phone with my poor 83 year old mother. I
never
>> do that! Sometimes it's hard to remain cheerful and positive
when you
>> feel so bad in spite of trying hard to. Thanks for listening. I
know
>> you all understand! Take care! Kris
>>
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