On Sat, Feb 28, 2009 at 12:53 AM, Jenny <kummer_jennifer1@hotmail.com> wrote:
> Hi Lou - you know, long story short, I don't know what kind of mesh I
> have, I will have to find out. Thank you for the info....
> And Hi Cheryl,
> I had my hysto back in 2006 - it's not a lot of blood, more like
> spotting (like the first/last day of a period...) I guess, I just am
> tired of all this. I really thought I was on the mend and now ---- I
> feel like I may be headed back to square one, or worse!! I will call my
> Dr., and as I know more - I will keep you informed! Thanks soo much for
> repling!
> God Bless!!!!!
> Jenny
>
> At Fri, 27 Feb 2009, HERB F DIXON wrote:
>>
>>Hi Jenny, I noticed you wrote AFTER hysterectomy all in caps? For clearance, did you just recently have surgery? I was told by my Gyn. That if I ever had vaginal bleeding (after my hysterectomy, and initial healing time) That I would need to be seen right away. Don't mean to scare you. I never asked why, it was post op and my brain wasn't fully functioning yet. I wouldn't mess around though. After you find out what is going on, let me (us) know. Good luck, Cheryl D.
>>
>>> Date: Fri, 27 Feb 2009 22:02:40 -0600
>>> From: louc829@gmail.com
>>> To: adhesions@mail.obgyn.net
>>> Subject: Re: Let's talk about symptoms!
>>>
>>> HI Jenny,
>>> Yes I have nausea daily, no vomiting, what kind of mesh did you have put in?
>>> I had sepramesh which is made of polypropylene ++made by Genzyme,
>>> if you go to Hernia Forum on the web+ look up mesh problems you might find this
>>> helpful, some meshes have been recalled by the FDA.
>>> Take care
>>> Lou
>>>
>>> On Fri, Feb 27, 2009 at 10:35 PM, Jenny <kummer_jennifer1@hotmail.com> wrote:
>>> > Hi Lou, I just recently had surgery for hernia repair and of course
>>> > lysis of adhesions, the Dr. did put a mesh in me. I was pain free
>>> > (after recovering from the tremendous surgical pain) until about 2 or 3
>>> > days ago. And my pain, although not as severe (yet) is there. I have
>>> > also had some nausea and vomiting. I was wondering about the mesh -
>>> > have you heard, or has anyone reading this heard of adhesions attaching
>>> > to the mesh??? This would be my biggest nightmare! Also - on a slightly
>>> > different note, has anyone ever heard of or had vaginal bleeding AFTER a
>>> > hysterectomy (I have everything out, including ovaries!)
>>> >
>>> > Thanks so much
>>> >
>>> > Jenny
>>> >
>>> > At Fri, 27 Feb 2009, LOU COOPER wrote:
>>> >>
>>> >>HI Linda,
>>> >>I think you are right about the use the spaygels, I have had 3
>>> >>surgery's for adhesions all without
>>> >>any barrier, # 4 surgery in 07 I had a very lg ins hernia a 8x4 mesh
>>> >>was put in just under the ribs
>>> >>this had a adhesion barrier with it, it has not worked and the
>>> >>adhesions are back in full force
>>> >>it feels like a rubber band pulling, I have heard bad stories about
>>> >>these meshes and many people
>>> >>have had them removed,
>>> >>I do not know what is happening today so many people are getting
>>> >>adhesions after surgery,age
>>> >>makes no difference, I had abd surgery,5 in all the last one was
>>> >>1984, with no problems.
>>> >>My feeling is that some Drs are to heavy handed + to many ops in one day,
>>> >>also the use of to much CO2.,this also my cause adhesions to form +
>>> >>maybe saline,
>>> >>It would be great if the gel was used as the norm with all Drs no
>>> >>matter were we live,to have this
>>> >>on the doorstep would save on the travelling which can be hell and it
>>> >>would stop the suffering,also the Drs would be more helpful knowing
>>> >>their is help out there.
>>> >>The last time I went to my G.P, he gave me no hope,I said to him what
>>> >>can I do now, all he
>>> >>said do your own research and keep takeing the pills.
>>> >>Lou
>>> >>On Fri, Feb 27, 2009 at 6:22 PM, Linda <lindahalford@comcast.net> wrote:
>>> >>> Hello Joy,
>>> >>>
>>> >>> Some people on this site have gotten relief after having laparascopic
>>> >>> adhesiolysis using spraygel/sprayshield. I'm interested in finding out
>>> >>> the percentage of success these doctors have had using this
>>> >>> substance. Perhaps the doctor who has this website would know.
>>> >>>
>>> >>> As soon as I can get ahead financially, I'm going to Dr. Semertizides in
>>> >>> Cincinnati, Ohio. For those of you who don't know, Angel Flight, Orlando,
>>> >>> FL will transport patients free of charge to hospitals located over 100
>>> >>> miles from home. They flew me to Scranton, PA where Dr. Redan and Dr. Reich
>>> >>> performed laparascopic adhesiolysis on my abdomen. Unfortunately, the
>>> >>> adhesions returned because at that time, the only barrier was interceed by
>>> >>> Johnson and Johnson. Also, there's a "Cine MRI" that detects adhesions.
>>> >>>
>>> >>> I'm miserable with these massive adhesions throughout my abdomen. My
>>> >>> abdominal wall feels like one big charley horse. Some days I feel I can't
>>> >>> go on any longer but somehow the good Lord gives me strength to make it
>>> >>> through another day. I'm an outgoing, happy person but these painful
>>> >>> adhesions have robbed me of a normal life.
>>> >>>
>>> >>> Unless the doctor you're planning to do your surgery uses
>>> >>> spraygel/sprayshield, it's doubtful your condition will get better.
>>> >>>
>>> >>> May God bless all of you and help you find a way to get well.
>>> >>>
>>> >>> Sincerely,
>>> >>> Linda in Jacksonville, FL
>>> >>>
>>
>>>>> >>>> ----- Original Message -----
>>> >>> From: Joy Thomas
>>> >>> To: Multiple recipients of list ADHESIONS
>>> >>> Sent: Monday, February 23, 2009 12:46 PM
>>> >>> Subject: Re: Let's talk about symptoms!
>>> >>> jetstamp,
>>> >>>
>>> >>> As for the name, I never heard "ARDS" before coming to this site. My
>>> >>> doctors have all just called it "adhesion disease."
>>> >>>
>>> >>> On Sun, Feb 22, 2009 at 3:06 PM, jetstamp <jetstamp@yahoo.com> wrote:
>>> >>>> At Sun, 22 Feb 2009, jetstamp wrote:
>>> >>>>>
>>> >>>>>At Sat, 21 Feb 2009, WendyEbbe3@aol.com wrote:
>>> >>>>>>
>>> >>>>>>Kelly and Debbie,
>>> >>>>>>The Bee Gee brother died from a bowel obstruction? No one should ever
>>> >>>>>> have
>>> >>>>>>to apologize for venting how they feel. I know that I'm almost to the
>>> >>>>>> point
>>> >>>>>>where I don't want to live any more if this is as good as it gets. I'm
>>> >>>>>> only
>>> >>>>>>hanging on waiting to get an appointment to see a Social Security Judge
>>> >>>>>> and then
>>> >>>>>>find a Surgeon in Minnesota that has the skills and knowledgeable on
>>> >>>>>>adhesions. Hoping that there is a Surgeon out there that can give me my
>>> >>>>>> life back.
>>> >>>>>>I've already lost a good job at Andersen Windows and I have two girls,
>>> >>>>>> one is
>>> >>>>>>in college and the other a Senior in High School. I can't make ends
>>> >>>>>> meet on
>>> >>>>>>disability. I'm so lucky my parents own the house I live in. I'm so
>>> >>>>>> lucky I
>>> >>>>>>still have them. My Mom takes me to most of my appointments. I always
>>> >>>>>> dream
>>> >>>>>>of winning the lottery or just coming into a lot of money so I could
>>> >>>>>> start,
>>> >>>>>>dang it I have a hard time remember things. I lost a lot of my mind
>>> >>>>>> while I
>>> >>>>>>was on Lyrica. I would like to set up some funding for research to find
>>> >>>>>> a cure.
>>> >>>>>>Maybe even to help out people who can't afford all the tests they put
>>> >>>>>> you
>>> >>>>>>through or even surgery. Maybe even educate these Dr's. that don't
>>> >>>>>> believe they
>>> >>>>>>cause pain. I'll keep dreaming and in the mean time, Take Care All!
>>> >>>>>>Wendy Ebbe
>>> >>>>>
>>> >>>>>Wendy,
>>> >>>>>
>>> >>>>>I live near the Minnesota/Wisconsin border. I am employed full-time and
>>> >>>>>have what I call fairly good insurance- not an HMO and I have the
>>> >>>>>freedom pretty much to make apppointments with 'most' specialists
>>> >>>>>without a referral. However, per my recent post I called 'HYPE!!' you
>>> >>>>>can see that in my 25 years with this I have been totally unsuccessful
>>> >>>>>in locating a physician who will even acknowledge the issue of
>>> >>>>>adhesions- I've been to Mayo and been pretty much brushed off just like
>>> >>>>>everywhere else.
>>> >>>>>
>>> >>>>>So, if either one of us ever manages to find a doc in our area we must
>>> >>>>>be sure to let the other know about it. After my disaster last week, I
>>> >>>>>am currently 'boycotting' the medical system (again!) and have no idea
>>> >>>>>of how to search for a doc who would even remotely consider the issue of
>>> >>>>>adhesions. Only people who will talk about them are physical
>>> >>>>>therapists- who interestingly can feel them immediately upon abdominal
>>> >>>>>examination- apparently no laparoscopy is needed for them to recognize
>>> >>>>>adhesions! Also the interpreting physician of my last CT and MRI
>>> >>>>>suggested adhesions- of course that makes sense because he is a
>>> >>>>>radiologist and doesn't have to deal with the patient in
>>> >>>>>addressing/solving them so it makes sense that he would have no problem
>>> >>>>>being honest.
>>> >>>>>
>>> >>>>>--
>>> >>>>>jetstamp
>>> >>>>
>>> >>>> P.S.
>>> >>>>
>>> >>>> I also have noticed when I search the term 'ARDS' most of what comes up
>>> >>>> seems to be 'Acute Respiratory Distress Syndrome'- anyone else notice
>>> >>>> this? Maybe we need a new name for the horrible symptoms adhesions
>>> >>>> cause! We definitely do not need any more confusion about this.
>>> >>>>
>>> >>>> jetstamp
>>> >>>>>>
>>> >>>>>>========Original Message========
>> Subj: Re: Let's talk about
>>> >>>>>> symptoms!
>>> >>>>>>Date: 2/20/2009 10:23:27 P.M. Central Standard Time From:
>>> >>>>>>_klmurray_61@msn.com_ (mailto:klmurray_61@msn.com) To:
>>> >>>>>> _adhesions@mail.obgyn.net_
>>> >>>>>>(mailto:adhesions@mail.obgyn.net) Sent on:
>>> >>>>>>
>>> >>>>>>I know what you mean. How do we know if it is a life or death
>>> >>>>>> situation.
>>> >>>>>>Remember the BeeGee brother died from a blockage and it seems like
>>> >>>>>> someone
>>> >>>>>>else that was famous did.
>>> >>>>>>Some times I think maybe I better go and get it checked out but do not
>>> >>>>>> want
>>> >>>>>>to go and it ends up passing.
>>> >>>>>>I am not in awe of any dr. anymore. I realize they don't sit higher
>>> >>>>>> then we
>>> >>>>>>do.
>>> >>>>>>
>>
>>>>> >>>>>>>>>----- Original Message -----
>>> >>>>>>From: _BBLDEB@aol.com_ (mailto:BBLDEB@aol.com)
>>> >>>>>>To: _Multiple recipients of list ADHESIONS_
>>> >>>>>>(mailto:adhesions@mail.obgyn.net)
>>> >>>>>>Sent: Friday, February 20, 2009 8:07 PM
>>> >>>>>>Subject: Re: Let's talk about symptoms!
>>> >>>>>>
>>> >>>>>>Kelly,
>>> >>>>>> I too have blockages. Most of the time I can go up to 3 weeks or
>>> >>>>>> more
>>> >>>>>>before having a bowel movement. Needless to say, that explains why I
>>> >>>>>> have so
>>> >>>>>>much nausea and vomiting. And for the most part, I go up to 3 or more
>>> >>>>>> days
>>> >>>>>>at a time without eating. And when I do try, other than a teaspoon,
>>> >>>>>> maybe a
>>> >>>>>>tablespoon, it usually comes back up. My question to my surgeon was "how
>>> >>>>>>long do I have to go without having a bowel movement before you consider
>>> >>>>>> it to
>>> >>>>>>be a blockage?" To this day, no doctor has ever answered that
>>> >>>>>> question. They
>>> >>>>>>know I am full of adhesions, (28 abdominal surgeries to date) and now
>>> >>>>>> they
>>> >>>>>>tell me the only way they will operate again is if I have a blockage.
>>> >>>>>> Well,
>>> >>>>>>if 3 weeks is not a blockage, then I have no clue what is! And what is
>>> >>>>>> so bad
>>> >>>>>>about it, I am very knowledgeable in medical /prescription areas.
>>> >>>>>> It is unbelievable what some doctor's will say in order to rid of a
>>> >>>>>>patient that they can't figure out or can't help or have no clue on how
>>> >>>>>> to treat.
>>> >>>>>> I am sorry, but to me, if they are a surgeon, then this is something
>>> >>>>>> they
>>> >>>>>>"ALL" should be able to deal with. They cause them every time they do
>>> >>>>>>surgery! (Venting for a moment, sorry).
>>> >>>>>> The worst part is they know about my blockages, but the doctor says
>>> >>>>>> that
>>> >>>>>>he wants it to be a "Life or Death" situation before he will do
>>> >>>>>> anything.
>>> >>>>>>Well, to me, going 3 weeks in that kind of pain is "DEATH" every day for
>>> >>>>>> the
>>> >>>>>>most part. When gas passes, that is the only relief for a blockage,
>>> >>>>>> when a
>>> >>>>>>doctor won't do anything at all. I have 4 kinks in my bowel from the
>>> >>>>>> adhesions
>>> >>>>>>(that I know of).
>>> >>>>>> Good luck to all of us and hopefully we will find help soon.
>>> >>>>>>
>>> >>>>>>Sincerely,
>>> >>>>>>Debbie
>>> >>>>>>
>>> >>>>>>____________________________________
>>> >>>>>>Need a job? _Find an employment agency near you_
>>> >>>>>>____________________________________
>>> >>>>>>____________________________________
>>> >>>>>>____________________________________
>>> >>>>>>____________________________________
>>> >>>>>>
>>> >>>>>>--
>>> >>>>>>____________________________________
>>> >>>>>>(http://yellowpages.aol.com/search?query=3Demployment_agencies&ncid=
>>> >>>>>>____________________________________
>>> >>>>>>____________________________________
>>=emlcntusyelp00000003)
>>> >>>>>>____________________________________
>>> >>>>>> .
>>> >>>>>>____________________________________
>>> >>>>>>____________________________________
>>> >>>>>>
>>> >>>>>>____________________________________
>>> >>>>>>%3D62%26bcd%3DfebemailfooterNO62)
>>> >>>>>>____________________________________
>>> >>>>>>
>>> >>>> http://www.adhesions.org/forums/message.htm
>>> >>>>
>>> >>> http://www.adhesions.org/forums/message.htm
>>> >>>
>>> >>> ________________________________
>>> >>>
>>> >>> ________________________________
>>> >>> ________________________________
>>> >>> ________________________________
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>>> >
>>
>>m
>>age.htm
>>> >
>>>
>>e.htm
>