________________________________ From: Adhesions Society <adhesions@adhesions.org>=0ATo: Multiple recipients of list ADHESIONS <a= Kris
________________________________ From: Adhesions Sociedhesions@mail.obgyn.net> Sent: Monday, February 23, 2009 12:07:15 AM Subject: ADHESIONS digest 933
ADHESIONS Digest 933
Topics covered in this issue include:
1) Re: ADHESIONS digest 923 by jetstamp@yahoo.com (jetstamp)
---amp) To: adhesions@obgyn.net Subject: Re: ADHESIONS digest 923 Message-ID: <200902230604.n1N64En24083@mail.obgyn.net>
At Sun, 22 Feb 2009, Kristine Lovaas wrote:
>
>Was his name Dr. Ron Peterson? I live in MN, had him as an OB/GYN. He did surgery on me 5 years ago for a right side ovarian cyst. It ruptured before the surgery was scheduled, and we had to move the date up. i never had any pelvic pain until after that surgery, in spite of having an appendectomy in 1973, 2 C-sections in 1977 and 1978, and ectopic pregnancy in 1986 and a partial hysterectomy in 1991. i started having the awful pain and nausea that all of us go through about 2 1/2 years ago. I had a colonoscopy 2 years ago that took the doctor an hour and half to complete because of adhesions. i'd never even heard of the the condition prior to that. i'll make the long medical saga short. After so many tests to rule out everything else, i'm having surgery on Tuesday, March 3rd in Minneapolis to have adhesions removed. I've researched the surgeon and had conversations with several doctors who allspeak to his success. I'm really hoping for good results. I've
> read so much on this site and haven't responded before. Take care, everyone. i wish you all pain tolerant days! Kris
Kris,
No, this guy's name was not Peterson- not sure if I should give his name but as I mentioned he was listed as a member of the International Pelvic Pain Society and also had positive feedback from the local Twin Cities endometriosis support group. While I'm not sure whether endo is or ever was involved in my case, I know endo causes adhesions, and I just assumed it wouldn't matter what the cause of them was- if adhesions are present and causing issues, they need to be addressed no matter what the cause.
Since my pain is primarily pelvic, even though I have been told by physical therapists that my abdomen is very tight and I probably have abdominal adhesions (which can refer pain to the pelvic area),and I also read at the clinic's website that he had extensive experience with laparoscopy and had even trained others, I thought that this doctor might be the one who would take my complaints seriously and initiate some investigation.
Obviously I was wrong.
Hope your surgery resolves your adhesions. But at least you are way ahead of me in having found a doctor who acknowledges them in the first place besides being willing to refer you to a surgeon. Anytime I mention adhesions, my visits with physicians goes from civil to hostile and the appointment is immediately over.
jetstamp
>
>__________________ltiple recipients of list ADHESIONS <adhesions@mail.obgyn.net>=3D0ASent: Thur=3D=0A>e. i wish you all pain tol=
jetstamp
>
>__________________ltiple recipients of list ADHESIONSerant days! Kris
>
>__________________sday, February 19, 2009 5:16:35 PM=0A>Subject: ADHESIONS digest 923=0A>=0A>=A0=A0=A0 =A0=A0=A0 =A0=A0=A0 =A0=
erant days! Kris
>
>__________________sday, February 19, 2009 5:16:35 P ADHESIONS Digest 923
>
>Topics covered in this issue include:
>
> 1) Hype!!
> by jetstamp@yahoo.com (jetstamp)
> 2) Re: Hype!!
> by "Kelly Murray" <klmurray_61@msn.com>
> 3) Re: Hype!!
> by jetstamp@yahoo.com (jetstamp)
> 4) Re: Hype!!
> by "Kelly Murray" <klmurray_61@msn.com>
> 5) Re: Hype!!
> by jetstamp@yahoo.com (jetstamp)
>
>-------
>To: adhesions@adhesions.org
>Subject: Hype!!
>Message-ID: <200902192218.n1JMIhY26075@mail.obgyn.net>
>
>I just had my follow-up visit for a new gynecologist. Unfortunately, I
>am right at this moment kicking myself for once again falling for the
>hype.
>
>This doctor was listed as a member of the International Pelvic Pain
>Society. On the clinic's webpage, it said that his special interests
>were pelvic pain, endometriosis, and menopause. He also was listed as a
>top women's doctor for the year 2007 in a Minnesota publication.
>
>At my first visit 3 weeks ago, he did seem to listen at length but
>pretty much dismissed any ideas I had about my condition, which began in
>1984 after an on-the-job injury which affected my lower right quadrant
>and pelvis (the injury was never diagnosed- I still wonder about some
>type of hernia or prolapse).
>
>I also gave him a 6-page timeline beginning in 1984. Since I've had
>this for so long, it is just too difficult to remember everything so I
>have it on my computer and I update/edit it as needed. This helps save
>me from struggling to remember stuff when preparing for an appointment
>with a new doctor- of which I've had many because I have never in my
>25-year history with this found anyone who took what I said at face
>value and at least would do what they COULD to help me cope if nothing
>else, like pain meds [besides the dreaded anti-depressants-ick!] or FMLA
>papers to protect my job during flare-ups or frequent appointments. I
>also gave him a copy of a CT scan and an MRI from 5 years ago- the
>interpreting physician had no problem suggesting possible adhesions.
>Also 2 physical therapists thought I had adhesions, probably from the
>injury itself as well as subsequent surgeries.. I have not been
>'officially' diagnosed with adhesions- just have been given the lame,
>vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction.
>
>Anyway, today, I experienced the all-too-familiar 'rushed' appointment.
>All he did was explain my current hormonal situtation- the beginning of
>menopause, etc. which was fine. But not one word about pelvic pain or
>anything relating to my most troublesome issues. I could tell he just
>wanted to be done with me.
>
>I have fallen for this 'hype-type' of thing before. I had the same kind
>of experience with a urogynecologist at Mayo whose articles I had read
>on PubMed. In those articles he came across as having sincere sympathy
>and interest in pelvic pain and dysfunctions women often endured. He
>barely gave me the time of day- we barely spoke.
>
>I get so mad at myself for buying into this kind of advertising- 'false'
>advertising. I'm wondering if I should bother to state my opinion on
>RateMDs.com- I sure would like to. He has only 7 reviews, all of which
>were positive alhtough 7 is not very many reviews. I have to be careful
>though because somewhere in the fine print it says something to the
>effect that you are held responsible for what you say so don't know how
>honest I'm allowed to be.
>
>Wish I could be like a woman who posted on the ibsgroup.org website. She
>has such a low regard for doctors that she said she had not been to one
>in 27 years- that was when she had her lastions.org/forums/message.htm
>
>--------------------" <klmurray_61@msn.com>=3D0ATo: <adhesions@adhesions.org>=3D0ASubject: Re: Hype=3D=0A>n see htt=
ions.org/forums/message.htm
>
>--------------------" <klmurray_61@msn.cp://www.adhesions.org/forums/message.htm=0A>=0A>--------------------!!=3D0A=
ions.org/forums/message.htm
>
>--------------------" <klmurray_61@msn.c
Message-ID: <BLU140-DS1730D857209BADCC23AC49AB20@phx.gbl>
MIME-Versi==
>n see http://www.adhesions.org/forums/message.htm
>
>--------------------on: 1.0
>Content-Type: multipart/alternative;
> boundary="----=_NextPart_000_02F6_01C992A7.4E0CDF70"
>
>This is a multi-part message in MIME format.
>
>------=_NextPart_000_02F6_01C992A7.4E0CDF70
>Content-Type: text/plain;
> charset="iso-8859-1"
>Content-Transfer-Encoding: quoted-printable
>
>Have you tried a Internal M
>edicine Doctor?
>>
> ----- Original Message -----
> From: jetstamp<mailto:jetstamp@yahoo.com>
> To: Multiple recipients of list ==
>ADHESIONS<mailto:adhesions@mail.obgyn.net>
> Sent: Thursday, February 19, 2009 3:20 PM
> Subject: Hype!!
>
> I just had my follow-up visit for a new gynecologist. Unfortunately, =
>I
> am right at this moment kicking myself for once again falling for the
> hype.
>
> This doctor was listed as a member of the International Pelvic Pain
> Society. On the clinic's webpage, it said that his special interests
> were pelvic pain, endometriosis, and menopause. He also was listed as =
>a
> top women's doctor for the year 2007 in a Minnesota publication.
>
> At my first visit 3 weeks ago, he did seem to listen at length but
> pretty much dismissed any ideas I had about my condition, which began =
>in
> 1984 after an on-the-job injury which affected my lower right quadrant
> and pelvis (the injury was never diagnosed- I still wonder about some
> type of hernia or prolapse).
>
> I also gave him a 6-page timeline beginning in 1984. Since I've had
> this for so long, it is just too difficult to remember everything so I
> have it on my computer and I update/edit it as needed. This helps =
>save
> me from struggling to remember stuff when preparing for an appointment
> with a new doctor- of which I've had many because I have never in my
> 25-year history with this found anyone who took what I said at face
> value and at least would do what they COULD to help me cope if nothing
> else, like pain meds [besides the dreaded anti-depressants-ick!] or =
>FMLA
> papers to protect my job during flare-ups or frequent appointments. I
> also gave him a copy of a CT scan and an MRI from 5 years ago- the
> interpreting physician had no problem suggesting possible adhesions.
> Also 2 physical therapists thought I had adhesions, probably from the
> injury itself as well as subsequent surgeries. I have not been
> 'officially' diagnosed with adhesions- just have been given the lame,
> vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction.
>
> Anyway, today, I experienced the all-too-familiar 'rushed' =
>appointment.
> All he did was explain my current hormonal situtation- the beginning =
>of
> menopause, etc. which was fine. But not one word about pelvic pain =
>or
> anything relating to my most troublesome issues. I could tell he just
> wanted to be done with me.
>
> I have fallen for this 'hype-type' of thing before. I had the same =
>kind
> of experience with a urogynecologist at Mayo whose articles I had read
> on PubMed. In those articles he came across as having sincere =
>sympathy
> and interest in pelvic pain and dysfunctions women often endured. He
> barely gave me the time of day- we barely spoke.
>
> I get so mad at myself for buying into this kind of advertising- =
>'false'
> advertising. I'm wondering if I should bother to state my opinion on
> RateMDs.com- I sure would like to. He has only 7 reviews, all of =
>which
> were positive alhtough 7 is not very many reviews. I have to be =
>careful
> though because somewhere in the fine print it says something to the
> effect that you are held responsible for what you say so don't know =
>how
> honest I'm allowed to be.
>
> Wish I could be like a woman who posted on the ibsgroup.org website. =
>She
> has such a low regard for doctors that she said she had not been to =
>one
> in 27 years- that was when she had her last baby.
>
> To remove yourself from the ==
>adhesions@adhesions.org<mailto:adhesions@adhesions.org> mailing list =
>please go
> to the unsubscribe form at =
>http://www.adhesions..org/forums/listcmds.htm<http://www.adhesions.org/for=
>ums/listcmds.htm-----=_NextPart_000_02F6_01C992A7.4E0CDF70
>Content-Type: text/html;
> charset="iso-8859-1"
>Content-Transfer-Encoding: quoted-printable
>
><!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN">
>
><META http-equiv=Content-Type =
>content=text/html;charset=iso-8859-1>
>
><BODY id=MailContainerBody
>style="PADDING-LEFT: 10px; FONT-WEIGHT: normal; FONT-SIZE: 10pt; =
>COLOR: #000000; BORDER-TOP-STYLE: none; PADDING-TOP: 15px; FONT-STYLE: =
>normal; FONT-FAMILY: Verdana; BORDER-RIGHT-STYLE: none; =
>BORDER-LEFT-STYLE: none; TEXT-DECORATION: none; BORDER-BOTTOM-STYLE: =
>none"
>leftMargin=0 topMargin=0 acc_role="text" CanvasTabStop="true"
>name="Compose message area"><?xml:namespace =
>prefix="v" />
>
>Have you tried a Internal Medicine Doctor?
><BLOCKQUOTE
>style="PADDING-RIGHT: 0px; PADDING-LEFT: 5px; MARGIN-LEFT: 5px; =
>BORDER-LEFT: #000000 2px solid;
> MARGIN-RIGHT: 0px">
>
>> ----- Original Message -----
> From: <A =
>title=mailto:jetstamp@yahoo.com
> href="mailto:jetstamp@yahoo.com">jetstamp
> To: <A
> title=mailto:adhesions@mail.obgyn.net
> href="mailto:adhesions@mail.obgyn.net">Multiple recipients of list
> ADHESIONS
> Sent: Thursday, February 19, =
>2009 3:20
> PM
> Subject: Hype!!
> I just had my follow-up visit for a new =
>gynecologist.
> Unfortunately, Iam right at this moment kicking myself for once =
>again
> falling for thehype.This doctor was listed as a member of =
>the
> International Pelvic PainSociety. On the clinic's webpage, =
>it said
> that his special interestswere pelvic pain, endometriosis, and
> menopause. He also was listed as atop women's doctor for the =
>year
> 2007 in a Minnesota publication.At my first visit 3 weeks ago, =
>he did
> seem to listen at length butpretty much dismissed any ideas I had =
>about my
> condition, which began in1984 after an on-the-job injury which =
>affected my
> lower right quadrantand pelvis (the injury was never diagnosed- I =
>still
> wonder about sometype of hernia or prolapse).I also gave =
>him a
> 6-page timeline beginning in 1984. Since I've hadthis for so =
>long,
> it is just too difficult to remember everything so Ihave it on my =
>computer
> and I update/edit it as needed. This helps saveme from =
>struggling to
> remember stuff when preparing for an appointmentwith a new doctor- =
>of
> which I've had many because I have never in my25-year history with =
>this
> found anyone who took what I said at facevalue and at least would =
>do what
> they COULD to help me cope if nothingelse, like pain meds [besides =
>the
> dreaded anti-depressants-ick!] or FMLApapers to protect my job =
>during
> flare-ups or frequent appointments. Ialso gave him a copy of =
>a CT
> scan and an MRI from 5 years ago- theinterpreting physician had no =
>problem
> suggesting possible adhesions.Also 2 physical therapists thought I =
>had
> adhesions, probably from theinjury itself as well as subsequent
> surgeries. I have not been'officially' diagnosed with =
>adhesions-
> just have been given the lame,vague names for some of my symptoms- =
>IBS and
> Pelvic Floor Dysfunction.Anyway, today, I experienced the
> all-too-familiar 'rushed' appointment.All he did was explain my =
>current
> hormonal situtation- the beginning ofmenopause, etc. which =
>was
> fine. But not one word about pelvic pain oranything relating =
>to my
> most troublesome issues. I could tell he justwanted to be =
>done with
> me.I have fallen for this 'hype-type' of thing before. I =
>had the
> same kindof experience with a urogynecologist at Mayo whose =
>articles I had
> readon PubMed. In those articles he came across as having =
>sincere
> sympathyand interest in pelvic pain and dysfunctions women often
> endured. Hebarely gave me the time of day- we barely =
>spoke.I
> get so mad at myself for buying into this kind of advertising-
> 'false'advertising. I'm wondering if I should bother to =
>state my
> opinion onRateMDs.com- I sure would like to. He has only 7 =
>reviews,
> all of whichwere positive alhtough 7 is not very many =
>reviews. I
> have to be carefulthough because somewhere in the fine print it =
>says
> something to theeffect that you are held responsible for what you =
>say so
> don't know howhonest I'm allowed to be.Wish I could be =
>like a
> woman who posted on the ibsgroup.org website. Shehas such a =
>low
> regard for doctors that she said she had not been to onein 27 =
>years- that
> was when she had her last baby.To remove yourself from the =
><A
> title=mailto:adhesions@adhesions.org
> href="mailto:adhesions@adhesions.org">adhesions@adhesions.org =
>mailing list
> please go to the unsubscribe form at <A
> title=http://www.adhesions.org/forums/listcmds.htm
> =
>href="http://www.adhesions.org/forums/listcmds.htm">http://www.adhesion=
>s.org/forums/listcmds.htmp..s.
> for the web forum version see <A
> title=http://www.adhesions.org/forums/message.htm
> =
>href="http://www..adhesions.org/forums/message.htm">http://www.adhesions=
>.org/forums/message.htm
>
>------=_NextPart_com (jetstamp)
>To: adhesions@obgyn.net
>Subject: Re: Hype!!
>Message-ID:
>
>At Thu, 19 Feb 2009, Kelly Murray wrote:
>>
>>Have you
>tried a Internal Medicine Doctor?
>>
>> ----- Original Message -----
>> From: jetstamp
>> To: Multiple recipients of list ADHESIONS
>> Sent: Thursday, February 19, 2009 3:20 PM
>> Subject: Hype!!
>>
>> I just had my follow-up visit for a new gynecologist. Unfortunately, I
>> am right at this moment kicking myself for once again falling for the
>> hype.
>>
>> This doctor was listed as a member of the International Pelvic Pain
>> Society. On the clinic's webpage, it said that his special interests
>> were pelvic pain, endometriosis, and menopause. He also was listed as a
>> top women's doctor for the year 2007 in a Minnesota publication.
>>
>> At my first visit 3 weeks ago, he did seem to listen at length but
>> pretty much dismissed any ideas I had about my condition, which began in
>> 1984 after an on-the-job injury which affected my lower right quadrant
>> and pelvis (the injury was never diagnosed- I still wonder about some
>> type of hernia or prolapse).
>>
>> I also gave him a 6-page timeline beginning in 1984. Since I've had
>> this for so long, it is just too difficult to remember everything so I
>> have it on my computer and I update/edit it as needed. This helps save
>> me from struggling to remember stuff when preparing for an appointment
>> with a new doctor- of which I've had many because I have never in my
>> 25-year history with this found anyone who took what I said at face
>> value and at least would do what they COULD to help me cope if nothing
>> else, like pain meds [besides the dreaded anti-depressants-ick!] or FMLA
>> papers to protect my job during flare-ups or frequent appointments. I
>> also gave him a copy of a CT scan and an MRI from 5 years ago- the
>> interpreting physician had no problem suggesting possible adhesions.
>> Also 2 physical therapists thought I had adhesions, probably from the
>> injury itself as well as subsequent surgeries. I have not been
>> 'officially' diagnosed with adhesions- just have been given the lame,
>> vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction.
>>
>> Anyway, today, I experienced the all-too-familiar 'rushed' appointment.
>> All he did was explain my current hormonal situtation- the beginning of
>> menopause, etc. which was fine. But not one word about pelvic pain or
>> anything relating to my most troublesome issues. I could tell he just
>> wanted to be done with me.
>>
>> I have fallen for this 'hype-type' of thing before. I had the same kind
>> of experience with a urogynecologist at Mayo whose articles I had read
>> on PubMed. In those articles he came across as having sincere sympathy
>> and interest in pelvic pain and dysfunctions women often endured. He
>> barely gave me the time of day- we barely spoke.
>>
>> I get so mad at myself for buying into this kind of advertising- 'false'
>> advertising. I'm wondering if I should bother to state my opinion on
>> RateMDs.com- I sure would like to. He has only 7 reviews, all of which
>> were positive alhtough 7 is not very many reviews. I have to be careful
>> though because somewhere in the fine print it says something to the
>> effect that you are held responsible for what you say so don't know how
>> honest I'm allowed to be.
>>
>> Wish I could be like a woman who posted on the ibsgroup.org website. She
>> has such a low regard for doctors that she said she had not been to one
>> in 27 years- that was when she had her last primary doctor- who I've decided to fire- is under Internal
>Medicine. However, she is unfortunately one of those who buys into the
>convenient made-up catch-all terms like IBS and absolutely will not
>consider adhesions.
>
>At my final appointment with her last year, she told me to stop taking
>the supplements that I've been taking in an attempt to loosen things up-
>like Serrapeptase. When I asked her why, all she would say was "Doctors
>know these things". Then I said, "Then what should I do about
>adhesions?" She shook her head, then turned her little stool around so
>her back was toward me. That was the end of the appointment.
>
>I find it very interesting that the physical therapists and
>chiropractors can feel the tightness in my abdomen- they don't seem to
>need a laparoscopy to suspect adhesions. The doctors that bother to
>examine my abdomen don't seem to be able to do the same. This
>gynecologist didn't even bother- even after reading my 25-year hostory.
>
>I am considering trying an accupuncture guy who at least is not far from
>where I live and see if he has any knowledge of adhesions. He used to
>be a chemist and I think he's into Traditional Chinese Medicine. Will
>have to check with my insurance first though as I suspect it could get
>expensive- not just the accupuncture itself but I imagine he might have
>patients buy supplements which would be totally out-of-pocket.
>
>--
>I also tried AbdoTab and decided it wasn't worth anything. I also read somewhere that they promised a money-back guarantee but that when you tried to contact them they weren't available. Also, the exact location of the company is pretty remote- if I remember it looked like the company was in one country but the product came from another. Also saw other products which looked like they came from the same place but a totally different company.
>
>I currently take Neprinol (for about 6 months now) which is very expensive. Also lycopene which I read was good for adhesions but it wasn't clear as to whether it was just good for preventing adhesions or getting rid of current ones- the article had an endometriosis basis but I asssume all adhesions would respond the same if lycopene were indeed effective. I also just started taking Resveratrol which the TV show 60 minutes did a story on this week- they made it sound like a miracle supplement but don't know if it would do anything for adhesions.
>
>My main pain and tightness started in the lower right quadrant after an on-the-job injury 25 years ago. I've been to two physical therapists who think I have adhesions. So far, no doctor will discuss it. I have had an exploratory lap (1991), myomectomy (1991), vaginal hysterectomy (1998) and right adrenal gland removed (2006). But as I said, I'm pretty sure my adhesions were from the on-the-job injury- which no doctor can seem to comprehend! Surgery and endo are 2 causes but not the only ones. Generally, anything that causes inflammation could create adhesions.
message.htm
>
>------------------------------
>
>Date: Thu, 19 Feb 2009 16:03:06 -0700=3D0AFrom: "Kelly Murray" =3D0ATo: <adhesions@adhesio=3D=
message.htm
>
>------------------------------
>
>Date: Thu, 19 Feb =0A>m=0A>=0A>------------------------------=0A>=0A>Date: Thu, 19 Feb 2009 1=
message.htm
>
>------------------------------
>
>Date: Thu, 19 Feb 6:03:06 ns.org>
Subject: Re: Hype!!
Message-ID: <BLU140-DS6B6F712D68D5551265E4F=
>m
>
>------------------------------
>
>Date: Thu, 19 Feb 2009 16:03:06 9AB20@phx.gbl>=0A>MIME-Version: 1.0=0A>Content-Type:=
8D5551265E4F=
>m
>
>------------------------------
>
>Date: Thu multipart/alternative;=0A>=A0=A0=A0 boundary=3D"----=3D_NextPart_000_0364_=
8D5551265E4F=
>m
>
>------------------------------
>
>Date: Thu01C992AB.8F7E45D0"
>
>-8859-1"
>Content-Transfer-Encoding: quoted-printable
>
>Well, I hope you can get someone to help you. I know how frustrating it =
>is. I went everywhere until finally someone suspected adhesions and I =
>had surgery and I was full of them.
>Drs. don't listen and it is so irritating.
>My daughter is applying to med school this summer. She has seen what I =
>have gone through and she said she is going to listen to her patients =
>and try to help them as much as possible. By the way, it was a PA that =
>told me that I probably had adhesions. When I was searching, I would =
>give Drs. my records of surgeries, and there were adhesions taken down =
>on all of them but I didn't know much about them but the Drs. should =
>have if they would have read my reports. Duh!
>The only advice I can give is to keep searching for someone to listen =
>a
>>nd care.
>Kelly
> ----- Original Message -----
> From: jetstamp
> To: Multiple recipients of list =
>ADHESIONS
> Sent: Thursday, February 19, 2009 3:51 PM
> Subject: Re: Hype!!
>
> At Thu, 19 Feb 2009, Kelly Murray wrote:
> >
> >Have you tried a Internal Med
>>icine Doctor?
> >
>
> >> ----- Original Message -----
> > From: =
>jetstamp>
> > To: Multiple recipients of list =
>ADHESIONS<mailto:adhesions@mail.obgyn.net<mailto:adhesions@mail.obgyn.net=
>>>
> > Sent: Thursday, February 19, 2009 3:20 PM
> > Subject: Hype!!
> >
> > I just had my follow-up visit for a new gynecologist. ==
>Unfortunately, I
> > am right at this moment kicking myself for once again falling for =
>the
> > hype.
> >
> > This doctor was listed as a member of the International Pelvic Pain
> > Society. On the clinic's webpage, it said that his special =
>interests
> > were pelvic pain, endometriosis, and menopause. He also was listed =
>as a
> > top women's doctor for the year 2007 in a Minnesota publication.
> >
> > At my first visit 3 weeks ago, he did seem to listen at length but
> > pretty much dismissed any ideas I had about my condition, which =
>began in
> > 1984 after an on-the-job injury which affected my lower right =
>quadrant
> > and pelvis (the injury was never diagnosed- I still wonder about =
>some
> > type of hernia or prolapse).
> >
> > I also gave him a 6-page timeline beginning in 1984. Since I've ==
>had
> > this for so long, it is just too difficult to remember everything =
>so I
> > have it on my computer and I update/edit it as needed. This helps =
>save
> > me from struggling to remember stuff when preparing for an =
>appointment
> > with a new doctor- of which I've had many because I have never in =
>my
> > 25-year history with this found anyone who took what I said at face
> > value and at least would do what they COULD to help me cope if =
>nothing
> > else, like pain meds [besides the dreaded anti-depressants-ick!] or =
>FMLA
> > papers to protect my job during flare-ups or frequent appointments. =
>I
> > also gave him a copy of a CT scan and an MRI from 5 years ago- the
> > interpreting physician had no problem suggesting possible ==
>
>adhesions.
> > Also 2 physical therapists thought I had adhesions, probably from =
>the
> > injury itself as well as subsequent surgeries. I have not been
> > 'officially' diagnosed with adhesions- just have been given the =
>lame,
> > vague names for some of my symptoms- IBS and Pelvic Floor =
>Dysfunction.
> >
> > Anyway, today, I experienced the all-too-familiar 'rushed' =
>appointment.
> > All he did was explain my current hormonal situtation- the ==
>
>beginning of
> > menopause, etc. which was fine. But not one word about pelvic =
>pain or
> > anything relating to my most troublesome issues. I could tell he =
>just
> > wanted to be done with me.
> >
> > I have fallen for this 'hype-type' of thing before. I had the same =
>kind
> > of experience with a urogynecologist at Mayo whose articles I had =
>read
> > on PubMed. In those articles he came across as having sincere =
>sympathy
> > and interest in pelvic pain and dysfunctions women often endured. =
>He
> > barely gave me the time of day- we barely spoke.
> >
> > I get so mad at myself for buying into this kind of advertising- =
>'false'
> > advertising. I'm wondering if I should bother to state my opinion =
>on
> > RateMDs.com- I sure would like to.. He has only 7 reviews, all of =
>which
> > were positive alhtough 7 is not very many reviews. I have to be ==
>careful
> > though because somewhere in the fine print it says something to the
> > effect that you are held responsible for what you say so don't know ==
>
>how
> > honest I'm allowed to be.
> >
> > Wish I could be like a woman who posted on the ibsgroup.org =
>website. She
> > has such a low regard for doctors that she said she had not been to =
>one
> > in 27 years- that was when she had her last baby.
> >
> > To remove yourself from the =
>adhesions@adhesions.org<mailto:adhesions@adhesions.org<mail
to:adhesions@a=
>dhesions.org%3Cmailto:adhesions@adhesions.org>> mailing list please go
> > to the unsubscribe form at =
>http://www.adhesions.org/forums/listcmds.htm<http://www..adhesions.org/for=
>ums/listcmds.htm<http://www.adhesions.org/forums/listcmds.htm%3Chttp://ww=
>w..adhesions.org/forums/listcmds.htm>>
> >ms/message.htm>
>
> Kelly,
>
> My recent primary doctor- who I've decided to fire- is under Internal
> Medicine. However, she is unfortunately one of those who buys into =
>the
> convenient made-up catch-all terms like IBS and absolutely will not
> consider adhesions.
>
> At my final appointment with her last year, she told me to stop taking
> the supplements that I've been taking in an attempt to loosen things =
>up-
> like Serrapeptase. When I asked her why, all she would say was =
>"Doctors
> know these things". Then I said, "Then what should I do about
> adhesions?" She shook her head, then turned her little stool around so
> her back was toward me. That was the end of the appointment.
>
> I find it very interesting that the physical therapists and
> chiropractors can feel the tightness in my abdomen- they don't seem to
> need a laparoscopy to suspect adhesions. The doctors that bother to
> examine my abdomen don't seem to be able to do the same.. This
> gynecologist didn't even bother- even after reading my 25-year =
>hostory.
>
> I am considering trying an accupuncture guy who at least is not far =
>from
> where I live and see if he has any knowledge of adhesions. He used to
> be a chemist and I think he's into Traditional Chinese Medicine. Will
> have to check with my insurance first though as I suspect it could get
> expensive- not just the accupuncture itself but I imagine he might =
>have
> patients buy supplements which would be totally out-of-pocket.
>
> --
> I also tried AbdoTab and decided it wasn't worth anything. I also read =
>somewhere that they promised a money-back guarantee but that when you ==
>tried to contact them they weren't available. Also, the exact location =
>of the company is pretty remote- if I remember it looked like the =
>company was in one country but the product came from another. Also saw =
>other products which looked like they came from the same place but a =
>totally different company.
>
> I currently take Neprinol (for about 6 months now) which is very =
>expensive. Also lycopene which I read was good for adhesions but it =
>wasn't clear as to whether it was just good for preventing adhesions or =
>getting rid of current ones- the article had an endometriosis basis but =
>I asssume all adhesions would respond the same if lycopene were indeed =
>effective. I also just started taking Resveratrol which the TV show 60 =
>minutes did a story on this week- they made it sound like a miracle =
>supplement but don't know if it would do anything for adhesions.
>
> My main pain and tightness started in the lower right quadrant after =
>an on-the-job injury 25 years ago. I've been to two physical therapists =
>who think I have adhesions. So far, no doctor will discuss it. I have =
>had an exploratory lap (1991), myomectomy (1991), vaginal hysterectomy =
>(1998) and right adrenal gland removed (2006). But as I said, I'm pretty =
>sure my adhesions were from the on-the-job injury- which no doctor can ==
>seem to comprehend! Surgery and endo are 2 causes but not the only ones.. =
>Generally, anything that causes inflammation could create adhesions.
>
> To remove yourself from the =
>adhesions@adhesions.org mailing list =
>please go
> to the unsubscribe form at =
>http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/for=
>ums/listcmds.
>------=_NextPart_000_0364_01C992AB.8F7E45D0
>Content-Type: text/html;
> charset="iso-8859-1"
>Content-Transfer-Encoding: quoted-printable
>
><META http-equiv=Content-Type =
>content=text/html;charset=iso-8859-1>
>
><BODY id=MailContainerBody
>style="PADDING-LEFT: 10px; FONT-WEIGHT: normal; FONT-SIZE: 10pt; =
>COLOR: #000000; BORDER-TOP-STYLE: none; PADDING-TOP: 15px; FONT-STYLE: ==
>normal; FONT-FAMILY: Verdana; BORDER-RIGHT-STYLE: none; ==
>
>BORDER-LEFT-STYLE: none; TEXT-DECORATION: none; BORDER-BOTTOM-STYLE: ===
>
>none"
>leftMargin=0 topMargin=0 acc_role="text" CanvasTabStop="true"
>name="Compose message area"><?xml:namespace =
>prefix="v" />
>
>Well, I hope you can get someone to help you. I know how =
>frustrating
>it is. I went everywhere until finally someone suspected adhesions =
>and I
>had surgery and I was full of them.
>Drs. don't listen and it is so irritating..
>My daughter is applying to med school this summer. She has =
>seen what
>I have gone through and she said she is going to listen to her patients =
>and try
>to help them as much as possible. By the way, it was a PA that =
>told me
>that I probably had adhesions. When I was searching, I would give =
>Drs. my
>records of surgeries, and there were adhesions taken down on all of them =
>but I
>didn't know much about them but the Drs. should have if they would have =
>read my
>reports. Duh!
>The only advice I can give is to keep searching for someone to =
>listen and
>care.
>Kelly
><BLOCKQUOTE
>style="PADDING-RIGHT: 0px; PADDING-LEFT: 5px; MARGIN-LEFT: 5px; =
>BORDER-LEFT: #000000 2px solid; MARGIN-R
>IGHT: 0px">
> ----- Original Message -----
>
>From: <A =
>title=mailto:jetstamp@yahoo.com
> href="mailto:jetstamp@yahoo.com">jetstamp
> To: <A
> title=mailto:adhesions@mail.obgyn..net
> href="mailto:adhesions@mail.obgyn.net">Multiple recipients of list
> ADHESIONS
> Sent: Thursday, February 19, =
>2009 3:51
> PM
> Subject: Re: Hype!!
> At Thu, 19 Feb 2009, Kelly Murray ==
>wrote:>>Have
> you tried a Internal Medicine Doctor?>>> ----- =
>Original
> Message -----> From: jetstamp<<A
> title=mailto:jetstamp@yahoo.com
> =
>href="mailto:jetstamp@yahoo.com">mailto:jetstamp@yahoo.com>&=
>gt;
> To: Multiple recipients of list ADHESIONS<<A
> title=mailto:adhesions@mail.obgyn.net
> ==
>href="mailto:adhesions@mail.obgyn.net">mailto:adhesions@mail.obgyn.net<=
>/A>>>
> Sent: Thursday, February 19, 2009 3:20 PM> Subject:
> Hype!!>> I just had my follow-up visit for a new
> gynecologist. Unfortunately, I> am right at this =
>moment
> kicking myself for once again falling for the>
> hype.>> This doctor was listed as a member of the
> International Pelvic Pain> Society. On the clinic's ==
>
> webpage, it said that his special interests> were pelvic =
>pain,
> endometriosis, and menopause. He also was listed as =
>a> top
> women's doctor for the year 2007 in a Minnesota
> publication.>> At my first visit 3 weeks ago, he =
>did seem
> to listen at length but> pretty much dismissed any ideas =
>I had
> about my condition, which began in> 1984 after an =
>on-the-job
> injury which affected my lower right quadrant> and pelvis =
>(the
> injury was never diagnosed- I still wonder about some> =
>type of
> hernia or prolapse).>> I also gave him a 6-page =
>timeline
> beginning in 1984. Since I've had> this for so =
>long, it is
> just too difficult to remember everything so I> have it =
>on my
> computer and I update/edit it as needed. This helps =
>save>
> me from struggling to remember stuff when preparing for an
> appointment> with a new doctor- of which I've had many =
>because I
> have never in my> 25-year history with this found anyone =
>who took==
>20
> what I said at face> value and at least would do what =
>they COULD
> to help me cope if nothing> else, like pain meds [besides ==
>the
> dreaded anti-depressants-ick!] or FMLA> papers to protect =
>my job
> during flare-ups or frequent appointments. I> also =
>gave him
> a copy of a CT scan and an MRI from 5 years ago- the>
> interpreting physician had no problem suggesting possible==
>20
> adhesions.> Also 2 physical therapists thought I had =
>adhesions,
> probably from the> injury itself as well as subsequent
> surgeries. I have not been> 'officially' diagnosed =
>with
> adhesions- just have been given the lame,> vague names =
>for some
> of my symptoms- IBS and Pelvic Floor =
>Dysfunction.>>
> Anyway, today, I experienced the all-too-familiar 'rushed'
> appointment.> All he did was explain my current hormonal
> situtation- the beginning of> menopause, etc. which =
>was
> fine. But not one word about pelvic pain or> =
>anything
> relating to my most troublesome issues. I could tell he
> just> wanted to be done with me.>> I =
>have
> fallen for this 'hype-type' of thing before. I had the same
> kind> of experience with a urogynecologist at Mayo whose =
>articles
> I had read> on PubMed. In those articles he came =
>across as
> having sincere sympathy> and interest in pelvic pain and
> dysfunctions women often endured. He> barely gave =
>me the
> time of day- we barely spoke.>> I get so mad at =
>myself for
> buying into this kind of advertising- 'false'> =
>advertising.
> I'm wondering if I should bother to state my opinion on>
> RateMDs.com- I sure would like to. He has only 7 reviews, all of =
>
> which> were positive alhtough 7 is not very many =
>reviews. I
> have to be careful> though because somewhere in the fine =
>print it
> says something to the> effect that you are held =
>responsible for
> what you say so don't know how> honest I'm allowed to
> be.>> Wish I could be like a woman who posted on =
>the
> ibsgroup.org website. She> has such a low regard =
>for
> doctors that she said she had not been to one> in 27 =
>years- that
> was when she had her last baby.>> To remove =
>yourself from
> the <A =
>title=mailto:adhesions@adhesions.org%3Cmailto:adhesions@adhesions.org
> =
>href="mailto:adhesions@adhesions.orgad=
>hesions@adhesions.org<mailto:adhesions@adhesions.org>
> mailing list please go> to the unsubscribe form at =
><A
> =
>title=http://www.adhesions.org/forums/listcmds.htm%3Chttp://www.adhesio==
>
>ns.org/forums/listcmds.htm
> =
>href="http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions=
>.org/forums/listcmds.htm">http://www.adhesions.org/forums/listcmds.htm<=
>;http://www.adhesions.org/forums/listcmds.htm>>ms/message.h=
>tm>Kelly,My
> recent primary doctor- who I've decided to fire- is under
> InternalMedicine. However, she is unfortunately one of those =
>who
> buys into theconvenient made-up catch-all terms like IBS and =
>absolutely
> will notconsider adhesions.At my final appointment with =
>her last
> year, she told me to stop takingthe supplements that I've been =
>taking in
> an attempt to loosen things up-like Serrapeptase. When I =
>asked her
> why, all she would say was "Doctorsknow these things". Then =
>I said,
> "Then what should I do aboutadhesions?" She shook her head, then =
>turned
> her little stool around soher back was toward me. That was =
>the end
> of the appointment.I find it very interesting that the =
>physical
> therapists andchiropractors can feel the tightness in my abdomen- =
>they
> don't seem toneed a laparoscopy to suspect adhesions. The =
>doctors
> that bother toexamine my abdomen don't seem to be able to do the
> same. Thisgynecologist didn't even bother- even after =
>reading my
> 25-year hostory.I am considering trying an accupuncture guy =
>who at
> least is not far fromwhere I live and see if he has any knowledge ==
>of
> adhesions. He used tobe a chemist and I think he's into =
>Traditional
> Chinese Medicine. Willhave to check with my insurance first =
>though
> as I suspect it could getexpensive- not just the accupuncture =
>itself but I
> imagine he might havepatients buy supplements which would be =
>totally
> out-of-pocket.--I also tried AbdoTab and decided it wasn't =
>worth
> anything.. I also read somewhere that they promised a money-back =
>guarantee but
> that when you tried to contact them they weren't available. Also, the =
>exact
> location of the company is pretty remote- if I remember it looked like =
>the
> company was in one country but the product came from another. Also saw =
>other
> products which looked like they came from the same place but a totally =
>
> different company.I currently take Neprinol (for about 6 =
>months now)
> which is very expensive. Also lycopene which I read was good for =
>adhesions but
> it wasn't clear as to whether it was just good for preventing =
>adhesions or
> getting rid of current ones- the article had an endometriosis basis =
>but I
> asssume all adhesions would respond the same if lycopene were indeed
> effective. I also just started taking Resveratrol which the TV show 60 =
>minutes
> did a story on this week- they made it sound like a miracle supplement =
>but
> don't know if it would do anything for adhesions.My main pain =
>and
> tightness started in the lower right quadrant after an on-the-job ==
>injury 25
> years ago. I've been to two physical therapists who think I have =
>adhesions. So
> far, no doctor will discuss it. I have had an exploratory lap (1991),
> myomectomy (1991), vaginal hysterectomy (1998) and right adrenal gland =
>removed
> (2006). But as I said, I'm pretty sure my adhesions were from the =
>on-the-job
> injury- which no doctor can seem to comprehend! Surgery and endo are 2 ==
>causes
> but not the only ones. Generally, anything that causes inflammation =
>could
> create adhesions.To remove yourself from the <A
> title=mailto:adhesions@adhesions.org
> href="mailto:adhesions@adhesions.org">adhesions@adhesions.org =
>mailing list
> please go to the unsubscribe form at <A
> title=http://www.adhesions.org/forums/listcmds.htm
> =
>href="http://www.adhesions.org/forums/listcmds.htm">http://www.adhesion=
>s.org/forums/listcmds.htmp..s.
> for the web forum version see <A
> title=http://www.adhesions.org/forums/message.htm
> =
>href="http://www.adhesions.org/forums/message..htm">http://www.adhesions=
>.org/forums/message.htm
>
>------=_NextPart_000_0364_01C992AB.8F7E45D0--ns@obgyn.net
>Subject: Re: Hype!!
>Message-ID:
>
>At Thu, 19 Feb 2009, jetstamp wrote:
>>
>>At Thu, 19 Feb 2009, Kelly Murray wrote:
>>>
>>>Have you tried a I
>nternal Medicine
>> Doctor?
>>>
>>>>> ----- Original Message -----
>>> From: jetstamp
>>> To: Multiple recipients of list ADHESIONS
>>> Sent: Thursday, February 19, 2009 3:20 PM
>>> Subject: Hype!!
>>>
>>> I just had my follow-up visit for a new gynecologist. Unfortunately, I
>>> am right at this moment kicking myself for once again falling for the
>>> hype.
>>>
>>> This doctor was listed as a member of the International Pelvic Pain
>>> Society. On the clinic's webpage, it said that his special interests
>>> were pelvic pain, endometriosis, and menopause. He also was listed as a
>>> top women's doctor for the year 2007 in a Minnesota publication.
>>>
>>> At my first visit 3 weeks ago, he did seem to listen at length but
>>> pretty much dismissed any ideas I had about my condition, which began in
>>> 1984 after an on-the-job injury which affected my lower right quadrant
>>> and pelvis (the injury was never diagnosed- I still wonder about some
>>> type of hernia or prolapse).
>>>
>>> I also gave him a 6-page timeline beginning in 1984. Since I've had
>>> this for so long, it is just too difficult to remember everything so I
>>> have it on my computer and I update/edit it as needed. This helps save
>>> me from struggling to remember stuff when preparing for an appointment
>>> with a new doctor- of which I've had many because I have never in my
>>> 25-year history with this found anyone who took what I said at face
>>> value and at least would do what they COULD to help me cope if nothing
>>> else, like pain meds [besides the dreaded anti-depressants-ick!] or FMLA
>>> papers to protect my job during flare-ups or frequent appointments. I
>>> also gave him a copy of a CT scan and an MRI from 5 years ago- the
>>> interpreting physician had no problem suggesting possible adhesions.
>>> Also 2 physical therapists thought I had adhesions, probably from the
>>> injury itself as well as subsequent surgeries. I have not been
>>> 'officially' diagnosed with adhesions- just have been given the lame,
>>> vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction.
>>>
>>> Anyway, today, I experienced the all-too-familiar 'rushed' appointment.
>>> All he did was explain my current hormonal situtation- the beginning of
>>> menopause, etc. which was fine. But not one word about pelvic pain or
>>> anything relating to my most troublesome issues. I could tell he just
>>> wanted to be done with me.
>>>
>>> I have fallen for this 'hype-type' of thing before. I had the same kind
>>> of experience with a urogynecologist at Mayo whose articles I had read
>>> on PubMed.. In those articles he came across as having sincere sympathy
>>> and interest in pelvic pain and dysfunctions women often endured. He
>>> barely gave me the time of day- we barely spoke.
>>>
>>> I get so mad at myself for buying into this kind of advertising- 'false'
>>> advertising. I'm wondering if I should bother to state my opinion on
>>> RateMDs..com- I sure would like to. He has only 7 reviews, all of which
>>> were positive alhtough 7 is not very many reviews. I have to be careful
>>> though because somewhere in the fine print it says something to the
>>> effect that you are held responsible for what you say so don't know how
>>> honest I'm allowed to be.
>>>
>>> Wish I could be like a woman who posted on the ibsgroup.org website. She
>>> has such a low regard for doctors that she said she had not been to one
>>> in 27 years- that was when she had her last baby.
>>>
>>Kelly,
>>
>>My recent primary doctor- who I've decided to fire- is under Internal
>>Medicine. However, she is unfortunately one of those who buys into the
>>convenient made-up catch-all terms like IBS and absolutely will not
>>consider adhesions.
>>
>>At my final appointment with her last year, she told me to stop taking
>>the supplements that I've been taking in an attempt to loosen things up-
>>like Serrapeptase. When I asked her why, all she would say was "Doctors
>>know these things". Then I said, "Then what should I do about
>>adhesions?" She shook her head, then turned her little stool around so
>>her back was toward me. That was the end of the appointment.
>>
>>I find it very interesting that the physical therapists and
>>chiropractors can feel the tightness in my abdomen- they don't seem to
>>need a laparoscopy to suspect adhesions. The doctors that bother to
>>examine my abdomen don't seem to be able to do the same. This
>>gynecologist didn't even bother- even after reading my 25-year hostory.
>>
>>I am considering trying an accupuncture guy who at least is not far from
>>where I live and see if he has any knowledge of adhesions. He used to
>>be a chemist and I think he's into Traditional Chinese Medicine. Will
>>have to check with my insurance first though as I suspect it could get
>>expensive- not just the accupuncture itself but I imagine he might have
>>patients buy supplements which would be totally out-of-pocket.
>>
>>--
>>I also tried AbdoTab and decided it wasn't worth anything. I also read somewhere that they promised a money-back guarantee but that when you tried to contact them they weren't available. Also, the exact location of the company is pretty remote- if I remember it looked like the company was in one country but the product came from another. Also saw other products which looked like they came from the same place but a totally different company.
>>
>>I currently take Neprinol (for about 6 months now) which is very expensive. Also lycopene which I read was good for adhesions but it wasn't clear as to whether it was just good for preventing adhesions or getting rid of current ones- the article had an endometriosis basis but I asssume all adhesions would respond the same if lycopene were indeed effective. I also just started taking Resveratrol which the TV show 60 minutes did a story on this week- they made it sound like a miracle supplement but don't know if it would do anything for adhesions.
>>
>>My main pain and tightness started in the lower right quadrant after an on-the-job injury 25 years ago. I've been to two physical therapists who think I have adhesions. So far, no doctor will discuss it. I have had an exploratory lap (1991), myomectomy (1991), vaginal hysterectomy (1998) and right adrenal gland removed (2006). But as I said, I'm pretty sure my adhesions were from the on-the-job injury- which no doctor can seem to comprehend! Surgery and endo are 2 causes but not the only ones. Generally, anything that causes inflammation could create adhesions.
>>
>essage.htm
>
>------------------------------
>
>End of ADHESIONS Digest 923
***************************=3D0A=3D0A=3D0A=3D0A=0A>essage.htm=0A>=0A>-------=
>------------------------------
>
>End of ADHESIONS Digest 923
*-----------------------=0A>=0A>End of ADHESIONS Digest--0-1094815331-123535=
>------------------------------
>
>End of ADHESIONS Digest 923
*3414=:28576
>essage.htm
>
>------------------------------
>
>End of ADHESIONS Digest=0A>Content-Type: text/html; charset=3Diso-8859-1=0A>C=
3414=:28576
>essage.htm
>
>------------------------------
>
>Enontent-Transfer-Encoding: quoted-printable=0A>=0A>Was his name Dr. Ron Pete=
3414=:28576
>essage.htm
>
>------------------------------
>
>Enrson? I live in MN, had him as an OB/GYN. He did surgery on me 5 years ago for a right side ovarian cyst.. It ruptured before the surgery was scheduled, and we had to move the date up. i never had any pelvic pain until after that surgery, in spite of having an appendectomy in 1973, 2 C-sections in 1977 and 1978, and ectopic pregnancy in 1986 and a partial hysterectomy in 1991. i started having the awful pain and nausea that all of us go through about 2 1/2 years ago. I had a colonoscopy 2 years ago that took the doctor an hour and half to complete because of adhesions. i'd never even heard of the the condition prior to that. i'll make the long medical saga short. After so many tests to rule out everything else, i'm having surgery on Tuesday, March 3rd in Minneapolis
> to have adhesions removed. I've researched the surgeon and had conversations with several doctors who allspeak to his success. I'm really hoping for good results. I've read so much on this site and haven't responded before. Take care, everyone. i wish you all pain tolerant days! Kris
>
>From: Adhesions Society <adhesions@adhesions.org>To: Multiple recipients of list ADHESIONS <adhesions@mail.obgyn.net>Sent: Thursday, February 19, 2009 5:16:35 PMSubject: ADHESIONS digest 923 ADHESIONS Digest 923Topics covered in this issue include: 1) Hype!! by jetstamp@yahoo.com (jetstamp) 2) Re: Hype!! by "Kelly Murray" <klmurray_61@msn.com> 3) Re: Hype!! by <A href="mailto:jetstamp@yahoo.com"
> ymailto="mailto:jetstamp@yahoo.com">jetstamp@yahoo.com (jetstamp) 4) Re: Hype!! by "Kelly Murray" <klmurray_61@msn.com> 5) Re: Hype!! by jo:jetstamp@yahoo.com">jetstamp@yahoo.com (jetstamp)To: adhesions@adhesions.orgSubject: Hype!!Message-ID: <<A href==
>"mailto:200902192218.n1JMIhY26075@mail.obgyn.net" ymailto="mailto:200902192218.n1JMIhY26075@mail.obgyn.net">200902192218.n1JMIhY26075@mail.obgyn.net>I
> just had my follow-up visit for a new gynecologist. Unfortunately, Iam right at this moment kicking myself for once again falling for thehype.This doctor was listed as a member of the International Pelvic PainSociety. On the clinic's webpage, it said that his special interestswere pelvic pain, endometriosis, and menopause. He also was listed as atop women's doctor for the year 2007 in a Minnesota publication.At my first visit 3 weeks ago, he did seem to listen at length butpretty much dismissed any ideas I had about my condition, which began in1984 after an on-the-job injury which affected my lower right quadrantand pelvis (the injury was never diagnosed- I still wonder about sometype of hernia or prolapse).I also gave him a 6-page timeline beginning in 1984. Since I've hadthis for so long, it is just too difficult to remember everything so Ihave it on my
> computer and I update/edit it as needed. This helps saveme from struggling to remember stuff when preparing for an appointmentwith a new doctor- of which I've had many because I have never in my25-year history with this found anyone who took what I said at facevalue and at least would do what they COULD to help me cope if nothingelse, like pain meds [besides the dreaded anti-depressants-ick!] or FMLApapers to protect my job during flare-ups or frequent appointments. Ialso gave him a copy of a CT scan and an MRI from 5 years ago- theinterpreting physician had no problem suggesting possible adhesions.Also 2 physical therapists thought I had adhesions, probably from theinjury itself as well as subsequent surgeries. I have not been'officially' diagnosed with adhesions- just have been given the lame,vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction.Anyway, today, I
> experienced the all-too-familiar 'rushed' appointment.All he did was explain my current hormonal situtation- the beginning ofmenopause, etc. which was fine. But not one word about pelvic pain oranything relating to my most troublesome issues. I could tell he justwanted to be done with me.I have fallen for this 'hype-type' of thing before. I had the same kindof experience with a urogynecologist at Mayo whose articles I had readon PubMed. In those articles he came across as having sincere sympathyand interest in pelvic pain and dysfunctions women often endured. Hebarely gave me the time of day- we barely spoke.I get so mad at myself for buying into this kind of advertising- 'false'advertising. I'm wondering if I should bother to state my opinion onRateMDs..com- I sure would like to. He has only 7 reviews, all of whichwere positive alhtough 7 is not
> very many reviews. I have to be carefulthough because somewhere in the fine print it says something to theeffect that you are held responsible for what you say so don't know howhonest I'm allowed to be.Wish I could be like a woman who posted on the ibsgroup.org website. Shehas such a low regard for doctors that she said she had not been to onein 27 years- that was when she had her last baby.To remove yourself from the adhesions@adhesions.org mailing list please goto the unsubscribe form at http://www.adhesions.org/forums/lisorums/message.htm--------------------ate: Th Feb 2009 15:32:42 -0700From: "Kelly Murray" <<A href=3D3D"mailto:kl=
at http://www.adhesions.org/forums/lisorums/message.htm--------------------mu=3D=0A>orums/message.htm------------------------------Date: Thrray_61@msn=
at http://www.adhesions.org/forums/lisorums/message.htm--------------------..com" ymailto="mailto:klmurray_61@msn.com">klmurray_61@msn.com>To: <adhesions@adhesions.org>Subject: Re: Hype!!Message-ID: <BLU140-DS1730D857209BADCC23AC49AB20@phx.gbl>MIME-Version: 1.0Content-Type: multipart/alternative; boundary="----=_NextPart_000_02F6_01C992A7.4E0CDF70"This is a multi-part message in MIME format.------=_NextPart_000_02F6_01C992A7.4E0CDF70Content-Type: text/plain; charset="iso-8859-1"Content-Transfer-Encoding: quoted-printableHave you tried a I
>>nternal Medicine Docto
>r? ----- Original Message ----- From:
> jetstamp<mailto:jetstamp@yahoo.com> To: Multiple recipients of list HESIONS<mailto:adhesions@mail.obgyn.net> Sent: Thursday, February 19, 2009 3:20 PM Subject: Hype!! I just had my follow-up visit for a new gynecologist. Unfortunately, =I am right at this moment kicking myself for once again falling for the hype. This doctor was listed as a member of the International Pelvic Pain Society. On the clinic's webpage, it said that his special interests were pelvic pain, endometriosis, and menopause. He also was listed as =a top women's doctor for the year 2007 in a Minnesota publication. At my first visit 3 weeks ago, he
> did seem to listen at length but pretty much dismissed any ideas I had about my condition, which began =in 1984 after an on-the-job injury which affected my lower right quadrant and pelvis (the injury was never diagnosed- I still wonder about some type of hernia or prolapse). I also gave him a 6-page timeline beginning in 1984. Since I've had this for so long, it is just too difficult to remember everything so I have it on my computer and I update/edit it as needed. This helps =save me from struggling to remember stuff when preparing for an appointment with a new doctor- of which I've had many because I have never in my 25-year history with this found anyone who took what I said at face value and at least would do what they COULD to help me cope if nothing else, like pain meds [besides the dreaded
> anti-depressants-ick!] or =FMLA papers to protect my job during flare-ups or frequent appointments. I also gave him a copy of a CT scan and an MRI from 5 years ago- the interpreting physician had no problem suggesting possible adhesions. Also 2 physical therapists thought I had adhesions, probably from the injury itself as well as subsequent surgeries. I have not been 'officially' diagnosed with adhesions- just have been given the lame, vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction. Anyway, today, I experienced the all-too-familiar 'rushed' =appointment. All he did was explain my current hormonal situtation- the beginning =of menopause, etc. which was fine. But not one word about pelvic pain =or anything relating to my most troublesome issues. I could tell he
> just wanted to be done with me. I have fallen for this 'hype-type' of thing before. I had the same =kind of experience with a urogynecologist at Mayo whose articles I had read on PubMed. In those articles he came across as having sincere =sympathy and interest in pelvic pain and dysfunctions women often endured. He barely gave me the time of day- we barely spoke. I get so mad at myself for buying into this kind of advertising- ='false' advertising. I'm wondering if I should bother to state my opinion on RateMDs.com- I sure would like to. He has only 7 reviews, all of =which were positive alhtough 7 is not very many reviews. I have to be Êreful though because somewhere in the fine print it says something to the effect that you are held responsible for what you say so
> don't know =how honest I'm allowed to be. Wish I could be like a woman who posted on the ibsgroup.org website. =She has such a low regard for doctors that she said she had not been to =one in 27 years- that was when she had her last baby. To remove yourself from the hesions@adhesions.org<mailto:adhesions@adhesions.org> mailing list =please go to the unsubscribe form at ==
>http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/for=http://www.adhesions.org/forums/message.htm<http://www.adhesions.org/foru=ms/message.htm>------=_NextPart_000_02F6_01C992A7.4E0CDF70Content-Type: text/html; charset="iso-8859-1"Content-Transfer-Encoding: quoted-printable<!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN"><HTML><HEAD><META http-equiv=Content-Type =content=text/html;charset=iso-8859-1><STYLE></STYLE><META content="MSHTML 6.00.6000.16809" name=GENERATOR></HEAD><BODY id=MailContainerBody style="PADDING-LEFT: 10px; FONT-WEIGHT: normal; FONT-SIZE: 10pt; =COLOR: #000000; BORDER-TOP-STYLE: none; PADDING-TOP: 15px; FONT-STYLE: =normal; FONT-FAMILY: Verdana; BORDER-RIGHT-STYLE: none;
> =BORDER-LEFT-STYLE: none; TEXT-DECORATION: none; BORDER-BOTTOM-STYLE: =none" leftMargin=0 topMargin=0 acc_role="text" CanvasTabStop="true" name="Compose message area"><!--[gte IE 5]><?xml:namespace =prefix="v" /><?xml:namespace prefix="o" /><![endif]--><DIV><DIV>Have you tried a Internal Medicine Doctor? </DIV><BLOCKQUOTE style="PADDING-RIGHT: 0px; PADDING-LEFT: 5px; MARGIN-LEFT: 5px; =BORDER-LEFT: #000000 2px solid; MARGIN-RIGHT:
>0px">&n
>>bsp; <DIV style="FONT: 10pt arial">----- Original Message ----- </DIV> <DIV style="FONT: 10pt arial"><B>From:</B> <A =title=mailto:jetstamp@yahoo.com href="mailto:<A href="mailto:jetstamp@yahoo.com"
> ymailto="mailto:jetstamp@yahoo.com">jetstamp@yahoo.com">jetstamp</A> </DIV> <DIV style="FONT: 10pt arial"><B>To:</B> <A title=mailto:adhesions@mail.obgyn.net href="mailto:adhesions@mail.obgyn.net">Multiple recipients of list ADHESIONS</A> </DIV> <DIV style="FONT: 10pt arial"><B>Sent:</B> Thursday, February 19, 09 3:20 PM</DIV> <DIV style="FONT: 10pt arial"><B>Subject:</B> Hype!!</DIV> <DIV><BR></DIV>I just had my follow-up visit for a new =gynecologist. Unfortunately, I<BR>am right at this moment kicking myself for once
> =again falling for the<BR>hype.<BR><BR>This doctor was listed as a member of =the International Pelvic Pain<BR>Society. On the clinic's webpage, ==
>it said that his special interests<BR>were pelvic pain, endometriosis, and menopause. He also was listed as a<BR>top women's doctor for the =year 2007 in a Minnesota publication.<BR><BR>At my first visit 3 weeks ago, =he did seem to listen at length but<BR>pretty much dismissed any ideas I had «out my condition, which began in<BR>1984 after an on-the-job injury which ¯fected my lower right quadrant<BR>and pelvis (the injury was never diagnosed- I =still wonder about some<BR>type of hernia or prolapse).<BR><BR>I also gave =him a 6-page
> timeline beginning in 1984. Since I've had<BR>this for so =long, it is just too difficult to remember everything so I<BR>have it on my =computer and I update/edit it as needed. This helps save<BR>me from =struggling to remember stuff when preparing for an appointment<BR>with a new doctor- =of which I've had many because I have never in my<BR>25-year history with =this found anyone who took what I said at face<BR>value and at least would =do what they COULD to help me cope if nothing<BR>else, like pain meds [besides =the dreaded anti-depressants-ick!] or FMLA<BR>papers to protect my job =during==
>20 flare-ups or frequent appointments. I<BR>also gave him a copy of =a CT scan and an MRI from 5 years ago-
> the<BR>interpreting physician had no =problem suggesting possible adhesions.<BR>Also 2 physical therapists thought I =had adhesions, probably from the<BR>injury itself as well as subsequent surgeries. I have not been<BR>'officially' diagnosed with hesions- just have been given the lame,<BR>vague names for some of my symptoms- =IBS and Pelvic Floor Dysfunction.<BR><BR>Anyway, today, I experienced the all-too-familiar 'rushed' appointment.<BR>All he did was explain my =current hormonal situtation- the beginning of<BR>menopause, etc. which =was fine. But not one word about pelvic pain or<BR>anything relating =to my most troublesome issues. I could tell he just<BR>wanted to be =done with
>
> me.<BR><BR>I have fallen for this 'hype-type' of thing before. I =had the same kind<BR>of experience with a urogynecologist at Mayo whose =articles I had read<BR>on PubMed. In those articles he came across as having =sincere sympathy<BR>and interest in pelvic pain and dysfunctions women often endured. He<BR>barely gave me the time of day- we barely =spoke.<BR><BR>I get so mad at myself for buying into this kind of advertising- 'false'<BR>advertising. I'm wondering if I should bother to =state my opinion on<BR>RateMDs.com- I sure would like to. He has only 7 =reviews, all of which<BR>were positive alhtough 7 is not very many =reviews. I have to be careful<BR>though because somewhere
> in the fine print it =says something to the<BR>effect that you are held responsible for what you =say so don't know how<BR>honest I'm allowed to be.<BR><BR>Wish I could be =like a woman who posted on the ibsgroup..org website. She<BR>has such a =low regard for doctors that she said she had not been to one<BR>in 27 =years- that was when she had her last baby.<BR><BR><BR>To remove yourself from the =<A title=mailto:adhesions@adhesions.org href==
>3D"mailto:adhesions@adhesions.org">adhesions@adhesions.org</A>
> =mailing list please go<BR> to the unsubscribe form at <A title=http://www.adhesions.org/forums/listcmds.htm =href="http://www.adhesions..org/forums/listcmds.htm">http://www.adhesion=s.org/forums/listcmds.htm</A><BR>p.s. for the web forum version see <A title=http://www.adhesions.org/forums/message.htm =href="http://www.adhesions.org/forums/message.htm"><A href="http://www.adhesions=/"
> target=_blank>http://www.adhesions=.org/forums/message.htm</A><BR></BLOCKQUOTE></DIV></BODY></HTML>------=_NextPart_000_02F6_01C992A7.4E0CDF70--To remove yourself from the adhesions@adhesions.org mailing list please goto the unsubscribe form at http://www.adhesions.org/forums/listcmds.h ymailto="mailto:jetstamp@yahoo.com">jetstamp@yahoo.com (jetstamp)To: <A href="mailto:adhesions@obgyn.net"
>
> ymailto="mailto:adhesions@obgyn.net">adhesions@obgyn.netSubject: Re: Hype!!Message-ID: <200902192250.n1JMonD11117@mail.obgyn.net>At Thu, 19 Feb 2009, Kelly Murray wrote:>>Have you tried a Internal Medicine Do
>>ctor?
>>>> ----- Original Message ----->
>From: jetstamp<mailto:jetstamp@yahoo.com>> To: Multiple recipients of list ADHESIONS<mailto:adhesions@mail.obgyn.net>> Sent: Thursday, February 19, 2009 3:20 PM> Subject: Hype!!>> I just had my follow-up visit for a new gynecologist. Unfortunately, I> am right at this
> moment kicking myself for once again falling for the> hype.>> This doctor was listed as a member of the International Pelvic Pain> Society. On the clinic's webpage, it said that his special interests> were pelvic pain, endometriosis, and menopause. He also was listed as a> top women's doctor for the year 2007 in a Minnesota publication.>> At my first visit 3 weeks ago, he did seem to listen at length but> pretty much dismissed any ideas I had about my condition, which began in> 1984 after an on-the-job injury which affected my lower right quadrant> and pelvis (the injury was never diagnosed- I still wonder about some> type of hernia or prolapse).>> I also gave him a 6-page timeline beginning in 1984. Since I've had> this for so long, it is just too difficult to
> remember everything so I> have it on my computer and I update/edit it as needed. This helps save> me from struggling to remember stuff when preparing for an appointment> with a new doctor- of which I've had many because I have never in my> 25-year history with this found anyone who took what I said at face> value and at least would do what they COULD to help me cope if nothing> else, like pain meds [besides the dreaded anti-depressants-ick!] or FMLA> papers to protect my job during flare-ups or frequent appointments. I> also gave him a copy of a CT scan and an MRI from 5 years ago- the> interpreting physician had no problem suggesting possible adhesions.> Also 2 physical therapists thought I had adhesions, probably from the> injury itself as well as subsequent surgeries. I have not
> been> 'officially' diagnosed with adhesions- just have been given the lame,> vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction.>> Anyway, today, I experienced the all-too-familiar 'rushed' appointment.> All he did was explain my current hormonal situtation- the beginning of> menopause, etc. which was fine. But not one word about pelvic pain or> anything relating to my most troublesome issues. I could tell he just> wanted to be done with me.>> I have fallen for this 'hype-type' of thing before. I had the same kind> of experience with a urogynecologist at Mayo whose articles I had read> on PubMed. In those articles he came across as having sincere sympathy> and interest in pelvic pain and dysfunctions women often endured. He> barely
> gave me the time of day- we barely spoke.>> I get so mad at myself for buying into this kind of advertising- 'false'> advertising. I'm wondering if I should bother to state my opinion on> RateMDs.com- I sure would like to. He has only 7 reviews, all of which> were positive alhtough 7 is not very many reviews. I have to be careful> though because somewhere in the fine print it says something to the> effect that you are held responsible for what you say so don't know how> honest I'm allowed to be.>> Wish I could be like a woman who posted on the ibsgroup.org website. She> has such a low regard for doctors that she said she had not been to one> in 27 years- that was when she had her last baby.>> To remove yourself from the <A href="mailto:adhesions@adhesions.org"
> ymailto="mailto:adhesions@adhesions.org">adhesions@adhesions.org<mailto:adhesions@adhesions.org> mailing list please go> to the unsubscribe form at http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/forums/listcmds.htm>>ms/message.htm>Kelly,My recent primary doctor- who I've decided to fire- is under InternalMedicine. However, she is unfortunately one of those who buys into theconvenient made-up catch-all terms like IBS and absolutely will notconsider adhesions.At my final appointment with her last year, she told me to stop takingthe supplements that I've been taking in an attempt to loosen things up-like
> Serrapeptase. When I asked her why, all she would say was "Doctorsknow these things". Then I said, "Then what should I do aboutadhesions?" She shook her head, then turned her little stool around soher back was toward me. That was the end of the appointment.I find it very interesting that the physical therapists andchiropractors can feel the tightness in my abdomen- they don't seem toneed a laparoscopy to suspect adhesions. The doctors that bother toexamine my abdomen don't seem to be able to do the same.. Thisgynecologist didn't even bother- even after reading my 25-year hostory.I am considering trying an accupuncture guy who at least is not far fromwhere I live and see if he has any knowledge of adhesions. He used tobe a chemist and I think he's into Traditional Chinese Medicine. Willhave to check with my insurance first though as I suspect it could
> getexpensive- not just the accupuncture itself but I imagine he might havepatients buy supplements which would be totally out-of-pocket.--I also tried AbdoTab and decided it wasn't worth anything. I also read somewhere that they promised a money-back guarantee but that when you tried to contact them they weren't available. Also, the exact location of the company is pretty remote- if I remember it looked like the company was in one country but the product came from another. Also saw other products which looked like they came from the same place but a totally different company.I currently take Neprinol (for about 6 months now) which is very expensive. Also lycopene which I read was good for adhesions but it wasn't clear as to whether it was just good for preventing adhesions or getting rid of current ones- the article had an endometriosis basis but I asssume all adhesions would respond the same if lycopene were indeed
> effective. I also just started taking Resveratrol which the TV show 60 minutes did a story on this week- they made it sound like a miracle supplement but don't know if it would do anything for adhesions.My main pain and tightness started in the lower right quadrant after an on-the-job injury 25 years ago. I've been to two physical therapists who think I have adhesions. So far, no doctor will discuss it. I have had an exploratory lap (1991), myomectomy (1991), vaginal hysterectomy (1998) and right adrenal gland removed (2006). But as I said, I'm pretty sure my adhesions were from the on-the-job injury- which no doctor can seem to comprehend! Surgery and endo are 2 causes but not the only ones. Generally, anything that causes inflammation could create adhesions.To remove yourself from the <A href==
>"mailto:adhesions@adhesions.org" ymailto="mailto:adhesions@adhesions.org">adhesions@adhesions.org mailing list please goto the
> unsubscribe form at http://www.adhesions.org/forums/listcmds.htmp.s. for the web forum version see http://www.adhesions.org/forums/message.htm------------------------------Date: Thu, 19 Feb 2009 16:03:06 -0700From: "Kelly Murray" <<A href=3D3D"mailto:klmurray_61@msn.com"=3D=0A>-----------------------=
---------------------Date: Thu, 19 Feb 2009 16:03:06 -0700From: "Kelly Murr-------Date: Thu, 19 Feb 2009 16:03: ymailto=3D3D"mailto:klmurray_61@msn.co=
---------------------Date: Thu, 19 Feb 2009 16:03:06 -0700From: "Kelly Murrm">klmurray_61@msn.com>To: =
>------------------------------Date: Thu, 19 Feb 2009 16:03:<adhesions@adhesions.org>Subject: Re: Hype!!Message-ID: <=
m">klmurray_61@msn.com>To: =
>------------------------------Date: Thu, BLU140-DS6B6F712D68D5551265E4F9AB20@phx.gbl>MIME-Version: 1.0Content-Type: =
m">klmurray_61@msn.com>To: =
>------------------------------Date: Thu, multipart/alternative;
> boundary="----=_NextPart_000_0364_0="iso-8859-1"Content-Transfer-Encoding: quoted-printableWell, I hope you can get someone to help you. I know how frustrating it =is. I went everywhere until finally someone suspected adhesions and I =had surgery and I was full of them. Drs. don't listen and it is so irritating.My daughter is applying to med school this summer. She has seen what I =have gone through and she said she is going to listen to her patients =and try to help them as much as possible. By the way, it was a PA that =told me that I probably had adhesions. When I was searching, I would =give Drs. my records of surgeries, and there were adhesions taken down =on all of them but I didn't know much
> about them but the Drs. should =have if they would have read my reports. Duh!The only advice I can give is to keep searching for someone to
>> listen =and care.Kelly ----- Original Message -----==
>20 From: jetstamp<mailto:jetstamp@yahoo.com> To: Multiple recipients of list HESIONS<mailto:<A href==
>"mail
to:adhesions@mail.obgyn.net" ymailto="mailto:adhesions@mail.obgyn.net">adhesions@mail.obgyn.net> Sent: Thursday, February 19, 2009 3:51 PM Subject: Re: Hype!! At Thu, 19 Feb 2009, Kelly Murray wrote: > >Have you tried a Internal Medicine Doctor? > >> ----- Original Message ----- > From: =jetstamp<mailto:<A href="mailto:jetstamp@yahoo.com"
> ymailto="mailto:jetstamp@yahoo.com">jetstamp@yahoo.com<mailto:jetstamp@yahoo.com>> > To: Multiple recipients of list HESIONS<mailto:adhesions@mail.obgyn.net<mailto:adhesions@mail.obgyn.net=>> > Sent: Thursday, February 19, 2009 3:20 PM > Subject: Hype!! > > I just had my follow-up visit for a new gynecologist. =Unfortunately, I > am right at this moment kicking myself for once again falling for =the > hype. > > This doctor was listed as a member of the International Pelvic Pain >
> Society. On the clinic's webpage, it said that his special =interests > were pelvic pain, endometriosis, and menopause.. He also was listed =as a > top women's doctor for the year 2007 in a Minnesota publication. > > At my first visit 3 weeks ago, he did seem to listen at length but > pretty much dismissed any ideas I had about my condition, which ¾gan in > 1984 after an on-the-job injury which affected my lower right =quadrant > and pelvis (the injury was never diagnosed- I still wonder about =some > type of hernia or prolapse). > > I also gave him a 6-page timeline beginning in 1984. Since I've =had > this for so long, it is just too difficult to remember everything =so I > have it on my
> computer and I update/edit it as needed. This helps =save > me from struggling to remember stuff when preparing for an =appointment > with a new doctor- of which I've had many because I have never in =my > 25-year history with this found anyone who took what I said at face > value and at least would do what they COULD to help me cope if =nothing > else, like pain meds [besides the dreaded anti-depressants-ick!] or =FMLA > papers to protect my job during flare-ups or frequent appointments. =I > also gave him a copy of a CT scan and an MRI from 5 years ago- the > interpreting physician had no problem suggesting possible hesions. > Also 2 physical therapists thought I had adhesions, probably from =the > injury itself as well as
> subsequent surgeries. I have not been > 'officially' diagnosed with adhesions- just have been given the =lame, > vague names for some of my symptoms- IBS and Pelvic Floor ==
>Dysfunction. > > Anyway, today, I experienced the all-too-familiar 'rushed' =appointment. > All he did was explain my current hormonal situtation- the ==
beginning of > menopause, etc. which was fine. But not one word about pelvic =pain or > anything relating to my most troublesome issues. I could tell he =just > wanted to be done with me. > > I have fallen for this 'hype-type' of thing before. I had the same =kind > of experience with a urogynecologist at Mayo whose articles I had =read > on PubMed. In
> those articles he came across as having sincere =sympathy > and interest in pelvic pain and dysfunctions women often endured.. =He > barely gave me the time of day- we barely spoke. > > I get so mad at myself for buying into this kind of advertising- ='false' > advertising. I'm wondering if I should bother to state my opinion ==
>on > RateMDs.com- I sure would like to. He has only 7 reviews, all of =which > were positive alhtough 7 is not very many reviews. I have to be Êreful > though because somewhere in the fine print it says something to the > effect that you are held responsible for what you say so don't know =how > honest I'm allowed to be. > > Wish I could be like a woman who posted on
> the ibsgroup.org =website. She > has such a low regard for doctors that she said she had not been to =one > in 27 years- that was when she had her last baby. > > To remove yourself from the hesions@adhesions.org<mailto:adhesions@adhesions..org<mailto:adhesions@a=dhesions.org%3Cmailto:adhesions@adhesions.org>> mailing list please go > to the unsubscribe form at =http://www.adhesions.org/forums/listcmds.htm<<A href="http://www.adhesions.org/for="
> target=_blank>http://www.adhesions.org/for=ums/listcmds.htm<http://www.adhesions.org/forums/listcmds.htm%3Chttp://ww=w.adhesions.org/forums/listcmds.htm>> >ms/message.htm> Kelly, My recent primary doctor- who I've decided to fire- is under Internal Medicine. However, she is unfortunately one of those who buys into =the convenient made-up catch-all terms like IBS and absolutely will not consider adhesions. At my final appointment with her last year, she told me to stop taking the supplements that I've been taking in an attempt to loosen things =up- like Serrapeptase. When I asked her why, all she would say was ="Doctors know these things". Then I said, "Then what should I do about adhesions?"
> She shook her head, then turned her little stool around so her back was toward me. That was the end of the appointment. I find it very interesting that the physical therapists and chiropractors can feel the tightness in my abdomen- they don't seem to need a laparoscopy to suspect adhesions. The doctors that bother to examine my abdomen don't seem to be able to do the same. This gynecologist didn't even bother- even after reading my 25-year =hostory. I am considering trying an accupuncture guy who at least is not far =from where I live and see if he has any knowledge of adhesions. He used to be a chemist and I think he's into Traditional Chinese Medicine. Will have to check with my insurance first though as I suspect it could get expensive- not just the accupuncture itself but I imagine he might
> =have patients buy supplements which would be totally out-of-pocket. -- I also tried AbdoTab and decided it wasn't worth anything. I also read =somewhere that they promised a money-back guarantee but that when you =tried to contact them they weren't available. Also, the exact location =of the company is pretty remote- if I remember it looked like the =company was in one country but the product came from another. Also saw =other products which looked like they came from the same place but a =totally different company. I currently take Neprinol (for about 6 months now) which is very =expensive. Also lycopene which I read was good for adhesions but it =wasn't clear as to whether it was just good for preventing adhesions or =getting rid of current ones- the article had an endometriosis basis but =I asssume all adhesions would respond the same if lycopene were indeed
> ïfective. I also just started taking Resveratrol which the TV show 60 =minutes did a story on this week- they made it sound like a miracle =supplement but don't know if it would do anything for adhesions. My main pain and tightness started in the lower right quadrant after =an on-the-job injury 25 years ago. I've been to two physical therapists =who think I have adhesions. So far, no doctor will discuss it. I have =had an exploratory lap (1991), myomectomy (1991), vaginal hysterectomy =(1998) and right adrenal gland removed (2006). But as I said, I'm pretty =sure my adhesions were from the on-the-job injury- which no doctor can =seem to comprehend! Surgery and endo are 2 causes but not the only ones. =Generally, anything that causes inflammation could create adhesions. To remove yourself from the =<A href="mailto:adhesions@adhesions.org"
> ymailto="mailto:adhesions@adhesions.org">adhesions@adhesions.org<mailto:adhesions@adhesions.org> mailing list =please go to the unsubscribe form at =http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/for=ums/listcmds.htm>&n/message.htm<http://www.adhesions.org/foru=ms/message.htm>------=_NextPart_000_0364_01C992AB.8F7E45D0Content-Type: text/html; charset="iso-8859-1"Content-Transfer-Encoding: quoted-printable<!DOCTYPE
> HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN"><HTML><HEAD><META http-equiv=Content-Type =content=text/html;charset=iso-8859-1><STYLE></STYLE><META content="MSHTML 6.00.6000.16809" name=GENERATOR></HEAD><BODY id=MailContainerBody style="PADDING-LEFT: 10px; FONT-WEIGHT: normal; FONT-SIZE: 10pt; =COLOR: #000000; BORDER-TOP-STYLE: none; PADDING-TOP: 15px; FONT-STYLE: =normal; FONT-FAMILY: Verdana; BORDER-RIGHT-STYLE: none; =BORDER-LEFT-STYLE: none; TEXT-DECORATION: none; BORDER-BOTTOM-STYLE: =none" leftMargin=0 topMargin=0 acc_role="text" CanvasTabStop="true" name="Compose message area"><!--[gte IE 5]><?xml:namespace =prefix="v" /><?xml:namespace prefix="o" /><![endif]--><DIV><DIV>Well, I hope you can get someone to help you. I know how
> =frustrating it is. I went everywhere until finally someone suspected adhesions =and I had surgery and I was full of them. </DIV><DIV>Drs. don't listen and it is so irritating.</DIV><DIV>My daughter is applying to med school this summer. She has =seen what I have gone through and she said she is going to listen to her patients =and try to help them as much as possible. By the way, it was a PA that =told me that I probably had adhesions. When I was searching, I would give =Drs. my records of surgeries, and there were adhesions taken down on all of them =but I didn't know much about them but the Drs. should have if they would have =read my reports. Duh!</DIV><DIV>The only advice I can give is to keep searching for someone to =listen
> and care.</DIV><DIV>Kelly</DIV><BLOCKQUOTE style="PADDING-RIGHT: 0px; PADDING-LEFT: 5px; MARGIN-LEFT: 5px; =BORDER-LEFT: #000000 2px solid; MARGIN-RIGHT: 0px">&nb
>>sp; <DIV style="FONT: 10pt arial">----- Original Message ----- </DIV> <DIV style="FONT: 10pt arial"><B>From:</B> <A =title=mailto:jetstamp@yahoo.com href="mailto:<A href="mailto:jetstamp@yahoo.com" ymailto="mail
>to:jetstamp@yahoo.com">jetstamp@yahoo.com">jetstamp</A> </DIV> <DIV style="FONT: 10pt arial"><B>To:</B> <A title=mailto:adhesions@mail.obgyn.net href="mailto:<A href="mailto:adhesions@mail.obgyn.net"
> ymailto="mailto:adhesions@mail.obgyn.net">adhesions@mail.obgyn.net">Multiple recipients of list ADHESIONS</A> </DIV> <DIV style="FONT: 10pt arial"><B>Sent:</B> Thursday, February 19, ==
2009 3:51 PM</DIV> <DIV style="FONT: 10pt arial"><B>Subject:</B> Re: Hype!!</DIV> <DIV><BR></DIV>At Thu, 19 Feb 2009, Kelly Murray =wrote:<BR>><BR>>Have you tried a Internal Medicine Doctor?<BR>><BR>>> ----- =Original Message -----<BR>> From: jetstamp<<A title=mailto:<A href="mailto:jetstamp@yahoo.com" ymailto==
>"mailto:jetstamp@yahoo.com">jetstamp@yahoo.com =href="mailto:<A href="mailto:jetstamp@yahoo.com"
> ymailto="mailto:jetstamp@yahoo.com">jetstamp@yahoo.com">mailto:jetstamp@yahoo.com</A>><BR>&=gt; To: Multiple recipients of list ADHESIONS<<A title=mailto:adhesions@mail.obgyn.net =href="mailto:adhesions@mail.obgyn.net">mailto:adhesions@mail.obgyn.net<=/A>><BR>> Sent: Thursday, February 19, 2009 3:20 PM<BR>> Subject: Hype!!<BR>><BR>> I just had my follow-up visit for a new
> gynecologist. Unfortunately, I<BR>> am right at this =moment kicking myself for once again falling for the<BR>> hype.<BR>><BR>> This doctor was listed as a member of the International Pelvic Pain<BR>> Society. On the clinic's = webpage, it said that his special interests<BR>> were pelvic =pain, endometriosis, and menopause. He also was listed as ==
>a<BR>> top women's doctor for the year 2007 in a Minnesota publication.<BR>><BR>> At my first visit 3 weeks ago, he =did seem to listen at length but<BR>> pretty much dismissed any ideas =I had about my condition, which began
> in<BR>> 1984 after an =on-the-job injury which affected my lower right quadrant<BR>> and pelvis =(the injury was never diagnosed- I still wonder about some<BR>> =type of hernia or prolapse).<BR>><BR>> I also gave him a 6-page =timeline beginning in 1984. Since I've had<BR>> this for so =long, it is just too difficult to remember everything so I<BR>> have it =on my computer and I update/edit it as needed. This helps =save<BR>> me from struggling to remember stuff when preparing for an appointment<BR>> with a new doctor- of which I've had many ¾cause I have never in
> my<BR>> 25-year history with this found anyone =who took what I said at face<BR>> value and at least would do what =they COULD to help me cope if nothing<BR>> else, like pain meds [besides =the dreaded anti-depressants-ick!] or FMLA<BR>> papers to protect =my job during flare-ups or frequent appointments. I<BR>> also =gave him a copy of a CT scan and an MRI from 5 years ago- the<BR>> interpreting physician had no problem suggesting possible adhesions.<BR>> Also 2 physical therapists thought I had hesions, probably from the<BR>> injury itself as well as subsequent surgeries. I have not
> been<BR>> 'officially' diagnosed =with adhesions- just have been given the lame,<BR>> vague names =for some of my symptoms- IBS and Pelvic Floor =Dysfunction.<BR>><BR>> Anyway, today, I experienced the all-too-familiar 'rushed' appointment.<BR>> All he did was explain my current hormonal situtation- the beginning of<BR>> menopause, etc. which =was fine. But not one word about pelvic pain or<BR>> =anything relating to my most troublesome issues. I could tell he just<BR>> wanted to be done with me.<BR>><BR>> I =have fallen for this 'hype-type' of thing before. I had the
> same kind<BR>> of experience with a urogynecologist at Mayo whose =articles I had read<BR>> on PubMed. In those articles he came ==
>across as having sincere sympathy<BR>> and interest in pelvic pain and dysfunctions women often endured. He<BR>> barely gave =me the time of day- we barely spoke.<BR>><BR>> I get so mad at =myself for buying into this kind of advertising- 'false'<BR>> vertising. I'm wondering if I should bother to state my opinion on<BR>> RateMDs.com- I sure would like to. He has only 7 reviews, all of = which<BR>> were positive alhtough 7 is not very many
> =reviews. I have to be careful<BR>> though because somewhere in the fine =print it says something to the<BR>> effect that you are held =responsible for what you say so don't know how<BR>> honest I'm allowed to be.<BR>><BR>> Wish I could be like a woman who posted on =the ibsgroup.org website. She<BR>> has such a low regard =for doctors that she said she had not been to one<BR>> in 27 =years- that was when she had her last baby.<BR>><BR>> To remove =yourself from the <A =title=mailto:adhesions@adhesions.org%3Cmailto:<A
> href="mailto:adhesions@adhesions.org" ymailto="mailto:adhesions@adhesions.org">adhesions@adhesions.org =href="mailto:adhesions@adhesions.org<mailto:adhesions@adhesions.org">ad=hesions@adhesions.org<mailto:adhesions@adhesions.org</A>> mailing list please go<BR>> to the unsubscribe form at =<A =title=<A href="http://www..adhesions.org/forums/listcmds.htm%3Chttp://www.adhesio="
> target=_blank>http://www.adhesions.org/forums/listcmds.htm%3Chttp://www.adhesio=ns.org/forums/listcmds.htm =href="http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions=.org/forums/listcmds.htm">http://www.adhesions.org/forums/listcmds.htm<=;http://http://www.adhesions.org/forums/listcmds.htm</A>><BR>>ms/message.h=tm><BR><BR>Kelly,<BR><BR>My recent primary doctor- who I've decided to fire- is under Internal<BR>Medicine. However, she is unfortunately one of those =who buys into the<BR>convenient made-up catch-all
> terms like IBS and «solutely will not<BR>consider adhesions.<BR><BR>At my final appointment with =her last year, she told me to stop taking<BR>the supplements that I've been =taking in an attempt to loosen things up-<BR>like Serrapeptase. When I =asked her why, all she would say was "Doctors<BR>know these things". Then =I said, "Then what should I do about<BR>adhesions?" She shook her head, then =turned her little stool around so<BR>her back was toward me. That was =the end of the appointment.<BR><BR>I find it very interesting that the =physical therapists and<BR>chiropractors can feel the tightness in my abdomen- =they don't seem to<BR>need a laparoscopy to suspect adhesions. The
> =doctors that bother to<BR>examine my abdomen don't seem to be able to do the same. This<BR>gynecologist didn't even bother- even after =reading my 25-year hostory.<BR><BR>I am considering trying an accupuncture guy =who at least is not far from<BR>where I live and see if he has any knowledge =of adhesions. He used to<BR>be a chemist and I think he's into =Traditional Chinese Medicine. Will<BR>have to check with my insurance first =though as I suspect it could get<BR>expensive- not just the accupuncture =itself but I imagine he might have<BR>patients buy supplements which would be =totally out-of-pocket.<BR><BR>--<BR>I also tried AbdoTab and decided it wasn't =worth anything. I also read
> somewhere that they promised a money-back =guarantee but that when you tried to contact them they weren't available. Also, the =exact location of the company is pretty remote- if I remember it looked like =the company was in one country but the product came from another. Also saw =other products which looked like they came from the same place but a totally = different company.<BR><BR>I currently take Neprinol (for about 6 =months now) which is very expensive. Also lycopene which I read was good for hesions but it wasn't clear as to whether it was just good for preventing hesions or getting rid of current ones- the article had an endometriosis basis =but I asssume all adhesions would respond the same if lycopene were indeed effective. I also just started taking Resveratrol
> which the TV show 60 =minutes did a story on this week- they made it sound like a miracle supplement =but don't know if it would do anything for adhesions.<BR><BR>My main pain =and tightness started in the lower right quadrant after an on-the-job =injury 25 years ago. I've been to two physical therapists who think I have hesions. So far, no doctor will discuss it. I have had an exploratory lap (1991), myomectomy (1991), vaginal hysterectomy (1998) and right adrenal gland =removed (2006). But as I said, I'm pretty sure my adhesions were from the =on-the-job injury- which no doctor can seem to comprehend! Surgery and endo are 2 Êuses but not the only ones. Generally, anything that causes inflammation =could create adhesions.<BR><BR>To remove yourself from the
> <A title=mailto:adhesions@adhesions.org href="mailto:adhesions@adhesions.org">adhesions@adhesions.org</A> =mailing list please go<BR> to the unsubscribe form at <A title=http://www.adhesions.org/forums/listcmds.htm =href="http://www.adhesions.org/forums/listcmds..htm">http://www..adhesion=s.org/forums/listcmds.htm</A><BR>p.s. for the web forum version see
> <A title=http://www.adhesions.org/forums/message.htm =href="http://www.adhesions.org/forums/message..htm">http://www.adhesions=.org/forums/message.htm</A><BR></BLOCKQUOTE></DIV></BODY></HTML>------=_NextPart_000_0364_01C992AB.8F7E45D0--To remove yourself from the adhesions@adhesions.org mailing list please goto the unsubscribe form at http://wp://http://www.adhesions.org/forums/message.htm---mp@yahoo.com">jetstamp@yahoo.com (jetstamp)To: adhesions@obgyn.netSubject: Re: Hype!!Message-ID: <200902192315.n1JNFfT31334@mail.obgyn.net>At Thu, 19 Feb 2009, jetstamp wrote:>>At Thu, 19 Feb 2009, Kelly Murray wrote:>>>>Have you tried a Internal Medicine
>
>> Doctor?>>>>>> ----- Original Message ----->> From: jetstamp<mailto:<A href="mailto:jetstamp@yahoo.com"
> ymailto="mailto:jetstamp@yahoo.com">jetstamp@yahoo.com>>> To: Multiple recipients of list ADHESIONS<mailto:adhesions@mail.obgyn.net>>> Sent: Thursday, February 19, 2009 3:20 PM>> Subject: Hype!!>>>> I just had my follow-up visit for a new gynecologist. Unfortunately, I>> am right at this moment kicking myself for once again falling for the>> hype.>>>> This doctor was listed as a member of the International Pelvic Pain>> Society. On the clinic's webpage, it said that his special interests>> were pelvic pain, endometriosis, and menopause.. He also was listed as a>> top women's doctor for the year 2007 in a Minnesota publication.>>>> At
> my first visit 3 weeks ago, he did seem to listen at length but>> pretty much dismissed any ideas I had about my condition, which began in>> 1984 after an on-the-job injury which affected my lower right quadrant>> and pelvis (the injury was never diagnosed- I still wonder about some>> type of hernia or prolapse).>>>> I also gave him a 6-page timeline beginning in 1984. Since I've had>> this for so long, it is just too difficult to remember everything so I>> have it on my computer and I update/edit it as needed.. This helps save>> me from struggling to remember stuff when preparing for an appointment>> with a new doctor- of which I've had many because I have never in my>> 25-year history with this found anyone who took what I said at face>> value and at least
> would do what they COULD to help me cope if nothing>> else, like pain meds [besides the dreaded anti-depressants-ick!] or FMLA>> papers to protect my job during flare-ups or frequent appointments. I>> also gave him a copy of a CT scan and an MRI from 5 years ago- the>> interpreting physician had no problem suggesting possible adhesions.>> Also 2 physical therapists thought I had adhesions, probably from the>> injury itself as well as subsequent surgeries. I have not been>> 'officially' diagnosed with adhesions- just have been given the lame,>> vague names for some of my symptoms- IBS and Pelvic Floor Dysfunction.>>>> Anyway, today, I experienced the all-too-familiar 'rushed' appointment.>> All he did was explain my current hormonal situtation- the beginning
> of>> menopause, etc. which was fine. But not one word about pelvic pain or>> anything relating to my most troublesome issues. I could tell he just>> wanted to be done with me.>>>> I have fallen for this 'hype-type' of thing before. I had the same kind>> of experience with a urogynecologist at Mayo whose articles I had read>> on PubMed. In those articles he came across as having sincere sympathy>> and interest in pelvic pain and dysfunctions women often endured. He>> barely gave me the time of day- we barely spoke.>>>> I get so mad at myself for buying into this kind of advertising- 'false'>> advertising. I'm wondering if I should bother to state my opinion on>> RateMDs.com- I sure would like to. He has only 7
> reviews, all of which>> were positive alhtough 7 is not very many reviews. I have to be careful>> though because somewhere in the fine print it says something to the>> effect that you are held responsible for what you say so don't know how>> honest I'm allowed to be.>>>> Wish I could be like a woman who posted on the ibsgroup.org website. She>> has such a low regard for doctors that she said she had not been to one>> in 27 years- that was when she had her last baby.>>>Kelly,>>My recent primary doctor- who I've decided to fire- is under Internal>Medicine. However, she is unfortunately one of those who buys into the>convenient made-up catch-all terms like IBS and absolutely will not>consider adhesions.>>At my final appointment with her last year, she
> told me to stop taking>the supplements that I've been taking in an attempt to loosen things up->like Serrapeptase. When I asked her why, all she would say was "Doctors>know these things". Then I said, "Then what should I do about>adhesions?" She shook her head, then turned her little stool around so>her back was toward me. That was the end of the appointment.>>I find it very interesting that the physical therapists and>chiropractors can feel the tightness in my abdomen- they don't seem to>need a laparoscopy to suspect adhesions. The doctors that bother to>examine my abdomen don't seem to be able to do the same. This>gynecologist didn't even bother- even after reading my 25-year hostory.>>I am considering trying an accupuncture guy who at least is not far from>where I live and see if he has any knowledge of adhesions. He
> used to>be a chemist and I think he's into Traditional Chinese Medicine. Will>have to check with my insurance first though as I suspect it could get>expensive- not just the accupuncture itself but I imagine he might have>patients buy supplements which would be totally out-of-pocket.>>-->I also tried AbdoTab and decided it wasn't worth anything. I also read somewhere that they promised a money-back guarantee but that when you tried to contact them they weren't available. Also, the exact location of the company is pretty remote- if I remember it looked like the company was in one country but the product came from another. Also saw other products which looked like they came from the same place but a totally different company.>>I currently take Neprinol (for about 6 months now) which is very expensive. Also lycopene which I read was good for adhesions but it wasn't clear as to whether it
> was just good for preventing adhesions or getting rid of current ones- the article had an endometriosis basis but I asssume all adhesions would respond the same if lycopene were indeed effective. I also just started taking Resveratrol which the TV show 60 minutes did a story on this week- they made it sound like a miracle supplement but don't know if it would do anything for adhesions..>>My main pain and tightness started in the lower right quadrant after an on-the-job injury 25 years ago. I've been to two physical therapists who think I have adhesions. So far, no doctor will discuss it. I have had an exploratory lap (1991), myomectomy (1991), vaginal hysterectomy (1998) and right adrenal gland removed (2006). But as I said, I'm pretty sure my adhesions were from the on-the-job injury- which no doctor can seem to comprehend! Surgery and endo are 2 causes but not the only ones. Generally, anything that causes inflammation could create
> adhesions.>To remove yourself from the adhesions@adhesions.org mailing list please goto the unsubscribe form at http://http://www.adhesions.org/forums/listcmds.htmp.s. for the web forum version see http://www.adhesions.org/forums/message.htm--------------------=3D0A=3D0A=0A>--0-1094815331-1235353414=3D:28576--=0A=0A=0ATo remove yourse=
version see http://www.adhesions.org/forums/message.htm--------------------lf from the adhesions@adhesions.org mailing list please go=0Ato the unsubsc=
version see http://www.adhesions.org/forums/message.htm--------------------ribe form at http://www.adhesions.org/forums/listcmds.htm
p.s. for the web forum version see http://www.adhesions.org/forums/message.htm
------------------------------
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