Re: looking for an adhesion surgical specialist
From: jetstamp (jetstamp@yahoo.com)
Mon Feb 9 18:51:00 2009
At Mon, 9 Feb 2009, jetstamp wrote:
>
>At Sun, 8 Feb 2009, cathy coakley wrote:
>>
>>I have had surger Twicw from Dr Andrew Cook
>>pelvicpain.com
>>he is in los gatos Calif 2 vital c are institute
>>cathy
>>
>>--- On Thu, 1/29/09, Marlene Wheeler <wheelerski@msn.com> wrote:
>>
>>From: Marlene Wheeler <wheelerski@msn.com>
>>Subject: Re: looking for an adhesion surgical specialist
>>To: "Multiple recipients of list ADHESIONS" <adhesions@mail.obgyn.net>
>>Date: Thursday, January 29, 2009, 9:12 PM
>>
>>#yiv518845384 .hmmessage P
>>{
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>>#yiv518845384 {
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>>
>>Molly,
>>My surgeon is in Wilks-Barrie Pa. About 2 1/2 hrs from NYC. He saved my life. Happens to be' I think one of the best Adhesion doctors in the country. It's Clark Gerhart. It won't hurt to at least talk to him by email. He has a way patients can send him info. clarkgerhart.com, and he will respond quickly especially if their is a pending emergency issue. I flew 2000plus miles to go to him, I had to have two surgeries in 6 mo with him, now it's been 2 years. He's really a great Dr and is able to get you in fairly quickly if your really having problems. He also is up on the latest barrier techniques.
>>Good Luck!
>>
>>Date: Thu, 29 Jan 2009 20:36:01 -0600
>>From: dlbaranes44@yahoo.com
>>To: adhesions@mail.obgyn.net
>>Subject: Re: looking for an adhesion surgical specialist
>>
>>HI Molly, have you checked out the Women's Surgery Group or there is a doctor named Collin Brathwaite. He has 2 offices on Long Island. If you type his name in the search box you can find out more about him. If I get insurance again I would like to see him myself. I have heard he has helped a couple of people with adhesion's.
>>
>>--- On Thu, 1/29/09, Molly <dimpsanne@aol.com> wrote:
>>
>>From: Molly <dimpsanne@aol.com>
>>Subject: looking for an adhesion surgical specialist
>>To: "Multiple recipients of list ADHESIONS" <adhesions@mail.obgyn.net>
>>Date: Thursday, January 29, 2009, 7:06 PM
>>
>>Over 10 years ago I had extensive surgery for severe adhesions that
>>culminated in 3 sections of my bowel being removed. Recently, I have
>>been having problems again. My former surgeon has retired and I live in
>>a different area of NYS. I am looking for an adhesion surgical
>>specialist in case of an emergency where I require surgery. My Doctors
>>feel insurance coverage will not be an issue. Many folk in my area
>>leave the area for medical care as it is remote. I am 5 hours from NYC,
>>4.5 hours from Boston, 2 hours from Albany, and 45 mins. from
>>Burlington, VT. If anyone has any recommendations I would be very
>>grateful. I am fearful I will find myself in a crisis situation with a
>>surgeon that does not have the expertise my situation warrants. Thanks
>>so much.
>>
>>--
>>Molly
>>
>>hi coll,....i hope i can help you. I too have had a complete
>>hysterectomy due to severe endo and adhesions. In addition i also
>>have had 3 bowel resections due to again endo of the bowel and
>>additional adhesions. May i suggest to you that you consult with an
>>endo specialist in addition to a gastro specialist that he/she
>>recommends ? the symptoms you describe may be in fact endo and/or
>>adhesions...and only a good endo DR. can work with you to discern what
>>is going on. I can tell you that i also must plan my activities
>>around my bowel on any given day of the week...it can be very
>>disheartening and discouraging. no one likes to be defined as an
>>illness nor have their life dictated by something that is "theirs"
>>and
>>yet can not control. your own body is betraying you so to speak. i
>>try to view it as having diabetes or any other disease...this is just
>>the way it is. i truly encourage you not to give up...there is a
>>doctor out there just waiting to help you...you just have to find him
>>or her. talk to your primary, attend a support group, search online
>>for doctor recommendations online for your area...whatever it takes.
>>i would bet that just doing this will help. you may not realize that
>>having a hysterectomy does not neccesarily "cure" endo....it
>>certainly
>>does nothing to help adhesions and adhesions essentially can have the
>>same effect on your body as endo. please know that i used to be a
>>veteran on endo online support groups...it has been over a year since
>>i posted a response to someone...but i can relate to your situation
>>and i know firsthand the anguish you feel....it is so easy to get
>>frustrated and depressed from the helplessness you can feel at
>>times...that is why i encourage you to search for the right doctor...i
>>am confident that your dailly discomfort can be improved and also the
>>very act of searching and ultimately finding a doctor will make you
>>feel better...you will be taking charge instead of reacting...good
>>luck and god bless, molly
>>
>>htm
>>
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>>
>I recently went to a physician who I found at the International
>pelvicpain.org website. His info at the clinic website said his special
>interests were endo and pelvic pain. There was no mention of adhesions,
>but I figured that he'd be knowlegeable about them as well. However,
>this was not the impression I got. He did not even examine my abdomen
>which I told him was very tight which was supported by two physical
>therapists I saw- adhesions were also mentioned as a possible source of
>pain on my CT and MRI reports which I showed him.
>
>I had a vaginal hysterectomy 10 years ago which did nothing. Also, the
>hysterectomy was performed in a rushed manner because the physician who
>did it was several hours late because he had been called away to deliver
>a baby when I was supposed to be having surgery. Therefore, I don't
>think any real 'investigating' was done- just a rushed hysterectomy. The
>doctor didn't seem to want to talk to me in any depth once the
>hysterectomy was done so I never got any feedback from him- guess he
>figured he got his money for the surgery and was not interested in how I
>felt. When he asked me how I felt, and I said I had no improvement, he
>said 'I think you feel better'.
>
>This doctor I recently saw seemed to think any problems should have been
>found during surgery, but I think more often than not if you have
>surgery for something specific, like a hysterectomy, they just go in and
>do it and then get out as soon as possible. After all, they get paid
>either way.
>
>So, I'm not sure how to search for someone who knows about and treats
>adhesions- what should the search term be? I've tried adhesiology with
>no results. I'm in Mpls.-St.Paul, MN area. Found nothing at Mayo.
>
>My issues began in 1984 from doing a job that was physically intense and
>repetitive. I sometimes think about cartoon characters who either fall
>or bump into something, and then their bodies become all twisted and
>distorted and they can barely walk or move. But then shortly after they
>have another accident and everything magically returns to normal. Wonder
>if this would work for some of us- kind of like 'a hair of the dog that
>bit you'?!!
Correction to my post. I found my last physician at pelvicpain.org-
International Pelvic Pain Society which is different from
pelvicpain.com.