You are not alone. A lot of us have gone through the agony of not knowing what is wrong and going to drs. to be told that there isn't anything to wanting pills. All I can say is keep trying and eventually a dr. that is EDUCATED on adhesions will probably tell you that it is what you have. Keep going to pain management.
>----- Original Message -----
From: IAS Admin (Tracy) To: Multiple recipients of list ADHESIONS
Sent: Friday, September 12, 2008 8:12 PM
Subject: New to all this and in desperate need of support.........
From: Lilma8@aol.com (ScaredMa)
Subject: Re: New to all this and in desperate need of support.........
At Sun, 7 Sep 2008, ScaredMa wrote:
>
>I have had problems with my periods ever since I started when I was 12
>but they got worse after I had a tubal after my last child was born, I
>was 22. I struggled and struggled and was written off by several OBGYN.
>I tried hormones but they didn't work, I ended up in the ER several
>times for pain management and they treated me like a was a drug abuser.
>Finally last year I got referred to a new OBGYN and he took me
>seriously. He tried an IUD but my body rejected it. Since I was done
>with having children we discussed a hysterectomy but first he wanted to
>go in thru the belly button and see what was goin on and do a DNC and
>see if that might help. This was in Nov. 2007 and he found
>endometriosis and my ovary was adhered to my abdominal wall, all that
>was lasered and I had to wait to see if it helped and it didn't. So, I
>was scheduled for a hysterectomy for Jan. 2008. He did a big incision
>and found lots more endometriosis and adhesions but left my ovaries and
>tubes.
>
>I have had problems with ovarian cysts and one burst one time
>but he felt this would work and so the recovery began. The recovery was
>long and hard for me, I really struggled.....I have IBS and my problem
>is severe diahreah(SP?)every time I eat. My bowel movements changed
>after I was off of the pain meds and should of been getting better. 2
>months after my hysterectomy they did a cat scan to see if I had a
>hernia and I didn't so they told me to continue to wait and see but 2
>more months went by and nothing got better in fact it got worse. I
>ended up in the ER and then back to my OBGYN and he scheduled surgery to
>just check things out. When he got in there he had to due a big
>incision due to the density and severity of the adhesions, several loops
>of my bowel were adhered to the abdominal wall and there was adhesions
>and endometriosis all over and a cyst on my right ovary. I started to
>recover but 4 weeks later ended up in the ER due to severe pain and
>nausea and constipation and they found a mass larger than a softball in
>my abdomen. I was admitted and scheduled for surgery and was told they
>thought the mass could be cancerous which thankfully it turned out to be
>benign. They removed the mass which was attached to my bladder, bowel,
>ovary, and abdominal wall. I also had endometriosis removed and they
>took my ovaries and tubes and put in Seprafilm. I am now 2 months out
>from the last surgery and have not gotten better but have gotten worse.
>The OBGYN does not want anything to do with me cause he said all my
>female parts are gone and it is no longer anything he will deal with, I
>get that but he just kinda left me high and dry..........I was referred
>to a urologist due to severe bladder pain when my bladder empties and
>they tested for infections and the urologist scoped my bladder and said
>it wasn't spasms but it was probably adhesions but he wouldn't touch me,
>he would be glad to assist but not take the lead.......I then ended up
>back in the ER 2 more times but nothing showed up on the cat scans or x
>rays but my stomach started to swell up to look like I was about 7-8
>months pregnant and I was referred to a general surgeon. I went to the
>general surgeon who quickly dismissed all of my surgeries and told me
>there was no proof of pain and that I needed a pychological evaluation.
>I left in tears and was in shock. I ended up throwing up all day and
>night.
>
>He referred me to a gastroentologist and they have run tests and
>found nothing. I am still in pain, I still swell up after eating, even
>very small amounts. I am constantly nauseated, my bladder still hurts
>so I was referred to a pain management doctor, who just tried a nerve
>block yesterday, but it will be 24-48 hours before I will know if it
>works. I about lost my mind thinkin I was just crazy due to how I have
>been treated over this. I due have anxiety issues and depression but I
>have been in treatment for those for several years now. My therapist
>does not think this is a mental problem. I didn't even know about ARD
>until about 1 day ago. After alot of digging on the internet about IBS
>which they are blaming most of this on and I never had this kind of
>trouble with my IBS until after the hysterectomy. I finally found some
>links and found out that I wasn't a freak and it wasn't all in my head
>and I don't feel alone anymore. I haven't been struggling as long as
>some but this past year has been hell and I can only imagine how much
>hell it has been for others who have been goin thru all this for years
>now.
>