sam
Subject: hirschbrungs diesease
>
> hi i live in the uk and when my son was born it was
> the first time i had
> heard of hirschbrungs. no one in my family has had
> hirschbrungs. my
> son is now 2 years old and he has had been addmitted
> to hospital so many
> times now 2 times for his op's and 3 times because
> he had bowel
> infections where he had to be put on drips. he was
> also addmitted
> because he had very low blood counts, he had a blood
> transfusion. ever
> since his pull through op he has suffered from
> really bad nappy rash,
> the doctors say its a fungal infection and it is
> like fighting a losing
> battle. hes been on antibiotics and different kinds
> of cream. i would
> like to find out other peoples experience with this
> diease.
>
> i have noticed aswell that hardly anyone in mk where
> i live have heard
> of hirschbrungs. the specailist that helps my son
> is in oxford jr which
> is an hours drive from where i live. we have a
> hospital in mk but they
> dont have a specillist.
>
> i would be grateful to hear from anyone
>
> thanks sara
>