I am actually having an MRI of the brain tomorrow because they think I have MS also. Even though I was symptomatic before, the brain MRI I had over a year ago was negative, therefore they didn't confirm that diagnosis. Since, I've developed many more symptoms including Optic Nerve damage and peripheral vision loss. I have had abdominal swelling and back issues for years, so i know what you go through. I felt just like you are now...never wanted to go out, became very depressed, etc. Then I realized just how fast life was passing me by. So I made a decision; I could sit everyday, feel sorry for myself and choose to waste every moment sad, in pain and alone...or I could do something about it. So, I took baby steps...I started forcing myself to do more things for myself, got into weekly counseling, and eventually worked up enough courage and strength to start my own business. I figured I couldn't fire myself! If I was too sick to work a day, I take off. Its going well so far...now I'm hoping to start getting more physically active so that I feel better about myself. One baby step at a time...I've had endo since 14 yrs old and had my first surgery at 18...that was the start of my adhesion troubles...I've had over 30 more surgeries since then...somedays I think, "what a life"...I never im agined I would suffer everyday like this. Then I realized I was allowing myself to do just that. I figure if I choose to enjoy all the good moments and stop lingering on the bad ones, then maybe I will have a good life afterall. Try to hang in there...email me if you want to talk.
>-------------- Original message --------------
From: "IAS Admin (Tracy)" <email@example.com>
> ender: KidOfPonyMaker@aol.com (Holly C)
> Subject: Adhesions, Swelling, Back/Stomach Pain and Now....
> Multiple Sclerosis--- I was just diagnosed from the brain MRI...and
> comparing to several from my past. Seems the lesions have grown and
> multiplied. Anyone else have this?
> The swelling in my stomach is horrible. They went to do an MRI of my
> Stomach and back. I guess adhesions don't show up on MRI's? Or do they?
> I know when they went in for the last of ..umm.. I think I have had 12
> surgeries since the Endometreosis reared me unable to have any more
> children. It was so bad with the last one, they couldn't tell what had
> been removed in the previous surgeries, because of the adhesions.... But
> no one will do surgery on the adhesions, because it just makes more, I
> was told.
> Then I ended up being diagnosed with a Bladder Disease--interstistial
> cystitis (not a good name for it, but it is getting out there now).
> Thank God for Liberator Medical Supply (I don't work for them or
> anything...they just helped me pee ;) ). They were able to get my size
> 6 caths..that I could use. No one else would, because they are for
> children. I even got the ones that were antibactirial (sp?) and that
> helped with the infections...but then I still can't get the colon to
> work. I have tried everything, but the pain is horrible!
> So now I am told that the Multiple Schlerosis is what I must deal with.
> I also have stuff going on in my spine.
> I too have anxiety issues, and don't even go to Church anymore. I just
> don't feel like it. I will go out if my hubby takes me, but not much.
> He can drive me to the store, or to fill up the car, or to the Doctors,
> and I will go. I can't stand to drive. My stomach just hurts too much.
> The muscles hurt too much... I just want to stay in bed all day.
> And friends? What are those? I have lost all my friends. I honest to
> goodness haven't seen one friend in over three years to come visit me,
> because I don't go to them anymore. I guess I was the one visiting
> before? Who knows. My own son, who is wanting to be a Dr, is 20 and
> doesn't see me either.
> Got to go.