Re: Frustrated beyond belief

From: suzi (
Thu Jun 7 20:17:30 2007

Suz I am sorry to hear of your pain. Your story and mine are so similar. Please E-Mail me at so we can chat. I think I might have a community for you.

At Tue, 5 Jun 2007, Suz wrote: >
>Hello All,
>This is my first post to the site - I came across it a few weeks ago
>while trying to explain to my friends what I was going through (so far
>I've found it to be very useful - thanks!).
>In brief (sort of): I'm 42 and have had various ovarian cysts, ovarian
>masses, and fibroids for the past 30 years that led to several
>myomectomies and eventually a hysterectomy at age 36 that included
>taking my compromised left ovary and part of my cervix. At the time of
>the hysterectomy my physician voiced serious concerns about the scarring
>from the previous procedures (done in the same location) and possibly
>subsequently from the hysterectomy, but I didn't comprehend quite what
>she was saying (despite having worked in health care for 6 years! But
>that was a while back).
>Over the last couple of years I've had increasing abdominal pain,
>usually in the lower right quadrant, that was associated with acute IBS
>(something I've also suffered from for more than 30 years), muscle
>strain, hemorrhagic cysts on my remaining, right ovary - even
>hypochondriasis! (thankfully ruled out almost immediately)
>The pain is now so intense I am unable to sleep for more than an hour at
>a time; this has been the case for more than 8 months. My GP referred
>me back to my OB/GYN, who then explained to me what she's been worried
>about all these years. At the same time I have several growing
>(although they hope hemorrhagic) ovarian cysts, the largest being 7 cm.
>at last assessment. No one wants to do surgery because they believe the
>adhesions are so severe I would at least have a temporary colostomy bag
>from damage done during surgery, with a very high risk of permanent
>damage. As a result I'm being bounced around from doctor to doctor with
>no viable solution in sight, no one confident enough to help me (my take
>- but that's probably because I'm so frustrated right now).
>I also do not/will not take narcotics because of other medical
>conditions. When I say I can take pain, please believe me - I'm
>tattooed and pierced and have a rather high pain tolerance. This is
>incredible - this is the kind of horrific pain that grabs if I'm not
>still or in just the right position. As an active person I find it
>horribly debilitating and depressing, and getting more so every day.

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