pain
From: kim (kim2stoy@cox.net)
Thu Apr 21 21:20:47 2005
i have been searching the web for informatin on
pelvic scar adhesion diease and finding this site
and reading other stories has been really helpful,
i feel so much sympathy for all of you going thru
this but it is somehow comforting to know you are
not alone, when your suffering from the pain of
this diease you think you are the only one and
no one else understands. i am 46 years old and
i have 16 abdominal surgeries,13 for scar adhesion
removal and right now i need another one, my last
surgery was in 2003 and the adhesions had grown
down my right pelvic wall and attached to my bladder
and ruptured my bladder, the doctor said my
abdomen looked like a war zone, after that
surgery i only had relief for about 3 weeks and
then the pain came back with a vengenace, years
ago they tried putting a membrane between my
abdominal wall and my organs so the adhesions
could'ent grow but as soon as the membrane dissolved
it took about 2 months and they adhesions started
growing again.
this last surgery they used the intragel and i
was hoping it would last longer but no such luck.
this diease has taken over my life, i can't work,
most days i can't even stand up straight. i lay
on my bed in a fetal position and just cry. if
i do normal daily things like shopping or laundry
i am incapacitated for a week afterwards. i get
so depressed sometimes i think suicide would at
least take this pain away, i don't know how people
live with chronic pain it is just too much to
handle. i have been on pain medications for 5
years and they don't even help anymore. i guess
besides trying to live each day in so much pain
the other hard part of this is there is no help
for us. sorry to be such a downer but just
wanted to tell my story to someone else who knows.