Re: Update on my Excruciating Rectal Pain

From: Debbie (Tigger6040@aol.com)
Fri Jan 23 20:47:00 2004


Hi Jayne

I felt compelled to reply to your post as our stories are incredibly similar.

I've had a horribly painful sigmoidoscopy, one that could not be completed due to the level of pain I was experiencing. It sounds like this is what happened to you with your colonoscopy. I was horrified and disgusted when I read how your doctor treated you. Have you considered reporting him?

Anyway...my adhesions are due to endometriosis. I have had trouble with bowel adhesions for as long as I've known about my endo which is about 17 years.

I have suffered with rectal pain, pain with bowel movements, lower left quadrant pain, chronic constipation etc., etc. A couple of years ago I went through a bout of constipation that went on for 17 days. Eventually when I was unable to have a bm on my own and started having a lot of accompanying nausea and vomiting my doctor ordered me to go to the emergency room. There I was given a high powered enema that finally got things moving but of course that was only treating the symptoms, not the problem.

I underwent extensive bowel studies to try and figure out what the problem was. I was diagnosed with redundant bowel just as you have been. I had marked redundancy and tortuosity at the sigmoid colon as well as portions of the descending colon. Redundant bowel is indeed extra bowel and many times it forms extra loops which can be constricted by adhesions if they are present. In my case the extra loops were in the shape of a pretzel and folded backwards on themselves. Eventually I had a double bowel resection surgery. There was one portion of bowel removed at the sigmoid colon, to remove the redundant loops of bowel, and the second portion was removed on the small bowel, at the terminal ileum, due to full thickness endometriosis.

Redundant bowel can be present without symptoms however if one has redundant bowel and IS experiencing symptoms they can be quite serious requiring intervention.

It's really important to keep your stool soft and moving as much as possible. Becoming constipated only exacerbates the problem. If you are taking any sort of narcotic pain medication it can make matters worse since most of the narcotics cause constipation by slowing down bowel motility.

I wish you all the best in getting the care you deserve. It sounds to me like you may want to consider a different doctor though. The guy that did your colonoscopy sounds like a real jerk. I've gotten a lot of help by finding an experienced colorectal surgeon. I don't know if this would be the same in your situation but it may be worth keeping in mind.

Feel free to e-mail me if you'd like to talk further about this.

Best Wishes, Debbie


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