Re: Chronic Pelvic Pain

From: Judy Kemp (jukemp@utmb.edu)
Wed Sep 24 23:17:02 2003


Karyn,

I am sorry you are having such a hard time - hang in there and I hope you will get your answer soon. Just a few thoughts: when I was SO nauseated from adhesions (lost 35 #'s in < 3 months), the only thing that would tough my nausea was a drug called Zophran. It comes in tabs that dissolve on your tongue (like cotton candy does). Although, this does not taste entirely like cotton candy. The draw back of this, is it is very expensive - like $5 per tab. You only can take 2 a day a most, I never had to, but many days I did have to take one. So, although expensive, it is an option.

When you are feeling yucky, a good thing to drink is Carnation Instant Breakfast. Nutritionists say it has more protein, vitamins, minerals, etc than any other product on the market. Better than Boost, Ensure, etc. Remember your nutrition while you are sorting this out - it is important to keep your immune system up and going as well as all the other things that nutrition impacts. Suppliments like this are good for "snacks", not in place of meals, like treats between meals. I loved the chocolate. I do hope you are feeling better soon - we know how miserable it can be. Judy

On Wednesday, September 24, 2003, at 09:33 PM,

> Sender: nashvllparalegal@aol.com (Karyn)
> Subject: Chronic Pelvic Pain
>
> I had a partial abdominal hysterectomy (only took uterus) on May 23.
> This was done because of severe endometriosis and chronic, debilitating
> pain. I fully expected relief . . .And still - some 5 months later -
> am in just as much pain, if not more. My pain seems to be mostly on my
> left side -- left lower back -- radiating around my hip and to the
> front with the whole lower abdomen being sore. It almost feels like
> everything is lose in there. I do know that my surgeon had trouble
> removing my uterus because of so much endo - had to call in another doc
> to help -- and then left the ovaries and told me if my ovaries ever had
> to come out -- she would not be the one to do it. Since then - I have
> remained in constant pain - some days worse than others. I was also
> having trouble with BMS. Went to doc -- who sent me to gastro guy --
> who did colonoscopy -- removed three polyps - and I can now have
> occasional BM. Pain remained - went back to Gastro -- sent me to gyno
> -- who didn't even examine me - said I had "good old fashioned lower
> back pain" and sent me back to regular doc. At this point - I told
> myself "forget it" -- I give up . . maybe I am just crazy and
> imagining the pain. This week - it got unbearable - to the point of
> being in tears. I don't think it is muscular -- there are no positions
> that make it better or worse -- you can't massage an area and make it
> feel any different -- and especially the abdominal pain is definitely
> my "innards". I am scheduled for a pelvic CT tomorrow . . and am kinda
> more afraid that it won't find anything at all -- rather than being
> afraid that it will find something horrible.

> I just want to know what this is - so it can be fixed. Have gotten
> to the point where I can hardly function . . Doc does have me on
> darvocet and phenergan (nausea is awful) until we figure it out . . .
> Could any of this be adhesions or leftover endo? Anyone ever heard of
> this
> before?
>


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