Thank You for sharing your story with us... I'm glad you reached out to us, still having faith that this support site works.. Having an open surgery, is no easy accomplishment but leaving the hospital in 48 hours sounds good to me.....I stayed a week!!!!...So much head trauma....I continue to hope the best for you and a speedy recovery, hoping this will be your last!!!
Connie
>From: Adhesions Society <adhesions@adhesions.org>
>Reply-To: adhesions@adhesions.org
>To: Multiple recipients of list ADHESIONS <adhesions@dns.obgyn.net>
>Subject: ADHESIONS digest 2937
>Date: Tue, 2 Sep 2003 23:50:08 -0500
>
> ADHESIONS Digest 2937
>
>Topics covered in this issue include:
>
> 1) Re: Incisional Hernia
> by <chiggerkat@futura.net>
> 2) Re: Lived with Adhesions for 10 years... thinking of
>hysterectomy...??? Need Input.
> by paperplus2003@hotmail.com (Beth Pray)
> 3) Re: Confluent Spray Gel
> by paperplus2003@hotmail.com (Beth Pray)
> 4) Re: Confluent Spray Gel
> by "Janine Love" <jlrealtor@ev1.net>
> 5) Re: Incisional Hernia
> by "Millie" <milliem@citlink.net>
> 6) Re: Incisional Hernia
> by haven49gal@aol.com (Marilyn)
> 7) General Housekeeping
> by tracy.joslin@adhesions.org (Tracy [Administrator])
> 8) A little bit of better news to share
> by tracy.joslin@adhesions.org (Tracy [Administrator])
> 9) Re: A little bit of better news to share
> by "MICHAEL MURRAY" <mkmurray30@msn.com>
>
>----------------------------------------------------------------------
>
>----------------------------------------------------------------------
>Date: Tue, 2 Sep 2003 14:24:10 -0500
>----------------------------------------------------------------------
>From: <chiggerkat@futura.net>
>To: <adhesions@adhesions.org>
>Subject: Re: Incisional Hernia
>Message-ID: <000401c37187$cd69ea20$ba2b1e43@net>
>MIME-Version: 1.0
>Content-Type: text/plain;
> charset="iso-8859-1"
>Content-Transfer-Encoding: 7bit
>
>THANKS, SUE R.
>I'M BETTER TODAY AND I APOLOGIZE FOR THAT DEPRESSING LETTER I WROTE.
>YESTERDAY WAS REALLY A BAD DAY FOR ME BUT I KNOW THATS NOT WHAT GOD WOULD
>WANT ME TO DO. I KEEP PRAYING-FOR ALL OF US-THAT EACH ONE OF US GETS BETTER
>SOON.
>AGAIN, THANKS FOR LISTENING.
>SHERRY G
>-----Original Message-----
>From: "Sue" <compstar@bright.net>
>To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net>
>Date: Tuesday, September 02, 2003 8:31 AM
>Subject: Re: Incisional Hernia
>
> >SHERRY< SENDING YOU LOVE AND LIGHT>> I KNOW HOW DEPRESSING LIFE CAN GET
>AT
> >TIMES< BUT PLEASE HANG ON< YOU HAVE A SON< AND YOU HAVE YOUR OWN LIFE>>>
> >SUICIDE SOUNDS GOOD WHEN WE ARE IN HORRID PAIN< BUT ON THE FEW DAYS WE
>ARE
> >PAIN FREE< WE REJOICE IN LIFE!
> >
> >KEEPING YOU IN MY PRAYERS
> >
> >SueR in Ohio
> >
>> >----- Original Message -----
> >From: <chiggerkat@futura.net>
> >To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net>
> >Sent: Tuesday, September 02, 2003 1:41 AM
> >Subject: Re: Incisional Hernia
> >
> >> I'VE UNDERGONE 9 OPERATIONS IN THE LAST 3 YEARS-THE LAST 2 WERE FOR
> >> HERNIAS-ALL THE OTHER OPERATIONS MADE MY ABDOMINAL WALL WEAK. THE FIRST
> >> HERNIA OPERATION WAS FAIRLY SIMPLY-JUST A SMALL CUT AND THEY DID A
>PLUG.
>A
> >> MONTH LATER I DEVELOPED ANOTHER HERNIA BUT I WAITED ALMOST 10 MONTHS TO
> >HAVE
> >> IT REPAIRED-I HAD NO INSURANCE AND WAITED TILL IT GOT REAL BAD. MY LAST
> >C.T.
> >> SCAN SHOWED 1, MAYBE 2 HERNIAS. THEY TRIED TO DO IT LAPROSCOPICALLY BUT
> >THE
> >> ADHESIONS WERE TOO DENSE AND THEY OPENED ME UP-WHICH WAS A GOOD THING
> >> BECAUSE THEY FOUND SEVEN HERNIAS-4 INCARCERATED. IT TOOK 6 HOURS, MOST
>OF
> >> THAT WAS TO CUT THRU THE ADHESIONS. I WAS IN THE HOSPITAL FOR 5 DAYS ,
> >WENT
> >> HOME FOR 2, AND RETURNED WITH INCREDIBLE PAIN. THEY FOUND A "MASS" THAT
> >HAD
> >> BLOCKED MY URETER. THEY PUT A UETERAL STENT IN FOR 6 WEEKS AND I WAS ON
> >> OXYCOTIN FOR A LONG TIME. THE PAIN CONTINUED AND THEY DID ANOTHER C.T.
> >SCAN
> >> AND FOUND A ABNORMAL BUILDUP OF FLUID IN THE ABDOMINAL AREA, BUT THE
> >SURGEON
> >> SAID THAT WAS NORMAL, HE PUT A LOT OF SALINE SOLUTION IN THERE TO KEEP
>NEW
> >> ADHESIONS FROM FORMING. MY UROLOGIST DIDN'T THINK THIS WAS NORMAL AND
> >WANTED
> >> TO "ASPIRATE" THE FLUID. NOT KNOWING ANY BETTER I AGREED BUT WHEN THEY
> >> COULDN'T GET A I.V. GOING AND WANTED TO PUT A CENTRAL LINE IN I
> >HYSTERICALLY
> >> SAID NO AND LEFT. I'VE SEEN THIS DONE AND ITS PAINFULL. ON MY CHECKUP
>THE
> >> SURGEON SAID IT WAS A GOOD THING I DIDN'T HAVE IT DONE BECAUSE IT CAN
>LEAD
> >> TO INFECTIONS HAVING IT ASPIRATED. BUT THE PAIN CONTINUED AND I HAD
>SEVERE
> >> THROWING UP AND NAUSEA. AND THE PAIN IS BACK IN NEW PLACES{NEW
>ADHESIONS}.
> >> MY STOMACH IS SWOLLEN AND I LOOK 5 MONTHS PREGNANT. I DON'T FEEL THE
>BULGE
> >> ASSOCIATED WITH HERNIAS BUT I FEEL THAT "RUMBLE" YOU GET WHEN YOU HAVE
> >ONE.
> >> AND THE DEPRESSION IS SO TERRIBLE. I FILED FOR DISABILITY AND WAS
>TURNED
> >> DOWN AND AM IN THE APPEAL PROCESS. I LOST MY CAR AND HOME IN THE
>DIVORCE
>A
> >> YEAR AGO-HUSBAND COULDN'T HANDLE IT. MY SON AND I LIVE WITH MY SISTER
>AND
> >> I'M GOING CRAZY. I SIT HERE DAY AND NIGHT-SOMETIMES FEELING GOOD ENOUGH
>TO
> >> RIDE TO THE STORE. AND ON THE "GOOD " DAYS I HAVE NO CAR TO GET
>ANYWHERE
> >AND
> >> EVEN IF I DID I HAVE NO MONEY. TONIGHT THE DEPRESSION IS BAD-BAD ENOUGH
> >I'VE
> >> LOOKED UP PAINLESS SUICIDE ON THE INTERNET. DON'T THINK I COULD
>ACTUALLY
> >GO
> >> THRU WITH IT BUT DAMN, THIS IS NO LIFE.
> >> SORRY IVE RATTLED ON SO. I KNOW THERES OTHERS OUT THERE THAT DEPRESSED,
> >TOO,
> >> AND YOU AREN'T ALONE.
> >> AS SCARLETT SAYS-"TOMORROW'S ANOTHER DAY"
> >> SHERRY
> >> -----Original Message-----
> >> From: "Marilyn" <haven49gal@aol.com>
> >> To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net>
> >> Date: Monday, September 01, 2003 9:47 PM
> >> Subject: Incisional Hernia
> >>
> >> >I am 64 years old and have always been a healthy and vigorous person.
>In
> >> >February of this year I underwent a complete abdominal
hysterectomy
> >> >because of a very large, benign ovarian cyst that I never even knew
>was
> >> >there. I felt really good about 2 weeks following surgery and
>returned
> >> >to my normal routine despite all advice that at least 4-6 weeks of
>light
> >> >activity was required to recuperate. I strained myself and wound up
> >> >with a rather large incisional hernia which began to show itself on my
> >> >lower left abdomen about 6 weeks after surgery. I was referred to a
> >> >surgeon who specializes in hernia repairs, both open and laparoscopic.
> >> >The herniation was in the lower part of the incision, almost to the
> >> >pubic bone. Surgery was performed on July 18th.....he tried the
> >> >laparoscopic way first, but there were too many adhesions from the
> >> >hysterectomy and the hernia itself, so he had to open the prior
>incision
> >> >to make the repair. When he came to see me in the recovery room, he
> >> >told me it was an "excellent repair" and that I had wonderful tissue
>to
> >> >work with.
> >> >
> >> >Unfortunately, an ileus (intestinal paralysis) developed the day after
> >> >surgery while I was still in the hospital which caused me to violently
> >> >wretch and throw up continuously. A nasogastric tube was inserted to
> >> >relieve this condition and after 4 days the ileus resolved and the
>tube
> >> >was removed. I spent 8 days in the hospital. My doctor checked me
> >> >daily and I could see that he was not happy when he checked my
>abdomen.
> >> >He sent me for a CT scan which revealed that the repair had failed,
>most
> >> >likely due to the violent heaving I experienced. He said it only
>takes
> >> >"one stitch" to unravel the whole thing. In addition to this failure,
>I
> >> >also wound up with an enormous hematoma at the site of the
>laparoscopic
> >> >incision. It is still oozing heavily and I have to change the
>dressing
> >> >twice daily. A repeat hernia repair will have to be performed, but my
> >> >doctor says this can't be done for a few months as everything inside
> >> >must settle down. Now, I've started to experience terrible pain, not
> >> >just from the hernia and the hematoma, but if I cough, sneeze or laugh
> >> >hard I get this excruciating pain across my mid-section (at the level
>of
> >> >my belly button). If I don't wear the abdominal binder, I can't walk
> >> >for more than a couple of minutes without pain. I notice that when I
> >> >place my hand under my hernia (size of a cantaloupe) and lift up my
> >> >entire belly, the pain goes away somewhat.
> >> >
> >> >It seems that everything that can go wrong with a hernia repair did go
> >> >wrong. Now I'm wondering about this terrible mid-section
>pain....could
> >> >this be adhesions, especially since my intestines are now bulging out
> >> >again? I am seeing the surgeon on Thursday (he sees me every 2 weeks)
> >> >and I will, of course, consult him about this pain, but I'm wondering
>if
> >> >anyone else has had a similar experience. Thanks.
> >> >
> >> > to the unsubscribe form at
>http://www.adhesions.org/forums/listcmds.htm
> >> >
> >>
> >> to the unsubscribe form at
>http://www.adhesions.org/forums/listcmds.htm
> >
> > to the unsubscribe form at
http://www.adhesions.org/forums/listcmds.htm
> >
>
http://www.adhesions.org/forums/listcmds.htm
>
>------------------------------
>
>------------------------------
>Date: Tue, 2 Sep 2003 15:32:08 -0500 (CDT)
>------------------------------
From: paperplus2003@hotmail.com (Beth Pray)
>To: ADHESIONS@OBGYN.NET
>Subject: Re: Lived with Adhesions for 10 years... thinking of
>hysterectomy...??? Need Input.
>Message-ID: <200309022032.h82KW8125884@dns.obgyn.net>
>
>At Sun, 24 Aug 2003, Tara wrote:
> >
> >Hi everyone. I am 26 years old and have had 4 surgeries. The first was
> >a very invasive bikini cut to remove a softball size cyst. The other 3
> >have been to remove adhesions from that surgery and 1 of them also took
> >my one tube and ovary. Still living with daily pain and unbearable pain
> >with intercourse. I am fed up. I was able to have 1 child, but we have
> >decided that will be all and now I am considering a hysterectomy, but
> >doc cannot guarantee it will help, scar tissue may just find something
> >else to attach to and he will no longer operate, because it just causes
> >more scars. I have heard and read about pros and cons of
hysterectomy,
> >just need to hear from real people. Thanks. :)
>
>Hello,
>This is the first i have been on this website and have found lots of
>good information. I am a 9 time surgical experiment ( haha ) 1st was a
>cyst when i was about 21. then another cyst ( 2 ) then 6 hour adhesions
>removal ( 3 ) to untie tied up falopian tubes so I could get pregnant. I
>managed to get pregnant twice and managed to have two beautiful little
>girls. Both by cyserian ( 4 & 5 ) Then we got sent to germany on
>military tour of duty and had to get a binine tumor removed from my
>uterus. ( 6 ) they took the uterus in the process because i had planed
>on not having more children. The adhesions were so bad the doctors
>figured I would be better off with out a uterus. ( 7 ) they found a
>small tumor at the end of my vagina due to previous surgery and removed
>that through the vagina ( under gas ) ( 8 ) the adhesions were so bad
>three months ago that they closed off my falopian tube and it blew up
>like a grapefruit and engluffed my left ovary. hinse the doctor removed
>the tube. In the process he said that my abdomin was such a mess he had
>to call additional surgeons in to compleate the surgery and they could
>not find the right ovary or tube. basicly i scared the crap out of him
>and put in my records anyone to cut me open again is crazy and asking
>for trouble. he was really scared. so now one of my tubes is MIA
>missing in action . ( ovarian cyst 9 ).
>I leave germany the end of this month and plan on having a appointment
>to find out about spraygel. and will possibly find out about one last
>surgery.
>as far as the historectomy I had a partial and it has done nothing for
>my adhesions except make them worse. dont do it. i really screws up
>what sex life you have left. I havent come with my husband i quite
>sometime . Hope this helps e-mail me when ever Beth
>paperplus2003@hotmail.com
>
http://www.adhesions.org/forums/listcmds.htm
>
>------------------------------
>
>------------------------------
>Date: Tue, 2 Sep 2003 15:42:18 -0500 (CDT)
>------------------------------
From: paperplus2003@hotmail.com (Beth Pray)
>To: ADHESIONS@OBGYN.NET
>Subject: Re: Confluent Spray Gel
>Message-ID: <200309022042.h82KgIP09468@dns.obgyn.net>
>
>At Tue, 30 Apr 2002, Robin wrote:
> >
> >Dear All
> >Confluent Spray Gel is starting clinical trials! I think this is GREAT
> >news! Maybe it wont be long before it is FDA approved & we all can get
> >"well". I am going to call tomorrow to see if I meet the criteria to be
> >included in the study. I already know I would have to go to FT Worth,
> >TX a min of 4 times, that may or may not be a problem for me, but I
> >think it is worth the chance to find out. The worse think they could
> >say is "NO". I found this information by going to the Confluent Spray
> >Gel site. I sent them an email saying I was interested in the Spray Gel
> >& wondered if they knew when it might be FDA approved. It took them
> >about a week to respond to me. The spray Gel has helped Mary so far & I
> >would like for it to help me, and EVERYONE else that suffers from
> >Adhesions.
> >love
> >robin
>Hello,
>This is the first i have been on this website and have found lots of
>good information. I am a 9 time surgical experiment ( haha ) 1st was a
>cyst when i was about 21. then another cyst ( 2 ) then 6 hour adhesions
>removal ( 3 ) to untie tied up falopian tubes so I could get pregnant. I
>managed to get pregnant twice and managed to have two beautiful little
>girls. Both by cyserian ( 4 & 5 ) Then we got sent to germany on
>military tour of duty and had to get a binine tumor removed from my
>uterus. ( 6 ) they took the uterus in the process because i had planed
>on not having more children. The adhesions were so bad the doctors
>figured I would be better off with out a uterus. ( 7 ) they found a
>small tumor at the end of my vagina due to previous surgery and removed
>that through the vagina ( under gas ) ( 8 ) the adhesions were so bad
>three months ago that they closed off my falopian tube and it blew up
>like a grapefruit and engluffed my left ovary. hinse the doctor removed
>the tube. In the process he said that my abdomin was such a mess he had
>to call additional surgeons in to compleate the surgery and they could
>not find the right ovary or tube. basicly i scared the crap out of him
>and put in my records anyone to cut me open again is crazy and asking
>for trouble. he was really scared. so now one of my tubes is MIA
>missing in action . ( ovarian cyst 9 ).
>I leave germany the end of this month and plan on having a appointment
>to find out about spraygel. and will possibly find out about one last
>surgery.
>as far as the historectomy I had a partial and it has done nothing for
>my adhesions except make them worse. dont do it. i really screws up
>what sex life you have left. I havent come with my husband i quite
>sometime . Hope this helps e-mail me when ever Beth
>paperplus2003@hotmail.com
>
http://www.adhesions.org/forums/listcmds.htm
>
>------------------------------
>
>------------------------------
>Date: Tue, 2 Sep 2003 15:51:40 -0500
>------------------------------
>From: "Janine Love" <jlrealtor@ev1.net>
>To: <adhesions@adhesions.org>
>Subject: Re: Confluent Spray Gel
>Message-ID: <021e01c37194$0310b170$cbeadacf@Computer>
>MIME-Version: 1.0
>Content-Type: multipart/alternative;
> boundary="----=_NextPart_000_021B_01C3716A.1987D430"
>
>------=_NextPart_000_021B_01C3716A.1987D430
>Content-Type: text/plain;
> charset="iso-8859-1"
>Content-Transfer-Encoding: quoted-printable
>
>They have been doing Spray Gel clinical trials for over 1 years now >(possibly more) here in the states. I contacted the clinic in Ft Worth =
>over 1 year ago regarding the trials. At that time they were working =
>more on endometriosis cases, but that may have changed. They do do 2 =
>surgeries to go back in and look which is good. Good luck, I hope you =
>get in!
>> ----- Original Message -----
> From: Beth Pray
> To: Multiple recipients of list ADHESIONS
> Sent: Tuesday, September 02, 2003 3:45 PM
> Subject: Re: Confluent Spray Gel
>
> At Tue, 30 Apr 2002, Robin wrote:
> >
> >Dear All
>
>Confluent Spray Gel is starting clinical trials! I think this is =
>GREAT
>
>news! Maybe it wont be long before it is FDA approved & we all can =
>get
>
>"well". I am going to call tomorrow to see if I meet the criteria to >be
>
>included in the study. I already know I would have to go to FT >Worth,
> >TX a min of 4 times, that may or may not be a problem for me, but I
>
>think it is worth the chance to find out. The worse think they could
>
>say is "NO". I found this information by going to the Confluent =
>Spray
>
>Gel site. I sent them an email saying I was interested in the Spray >Gel
>
>& wondered if they knew when it might be FDA approved. It took them
>
>about a week to respond to me. The spray Gel has helped Mary so far >& I
> >would like for it to help me, and EVERYONE else that suffers from
> >Adhesions.
> >love
> >robin
> Hello,
> This is the first i have been on this website and have found lots of
> good information. I am a 9 time surgical experiment ( haha ) 1st was >a
> cyst when i was about 21. then another cyst ( 2 ) then 6 hour >adhesions
> removal ( 3 ) to untie tied up falopian tubes so I could get pregnant. > I
> managed to get pregnant twice and managed to have two beautiful little
> girls. Both by cyserian ( 4 & 5 ) Then we got sent to germany on
> military tour of duty and had to get a binine tumor removed from my
> uterus. ( 6 ) they took the uterus in the process because i had >planed
> on not having more children. The adhesions were so bad the doctors
> figured I would be better off with out a uterus. ( 7 ) they found a
> small tumor at the end of my vagina due to previous surgery and >removed
> that through the vagina ( under gas ) ( 8 ) the adhesions were so bad
> three months ago that they closed off my falopian tube and it blew up
> like a grapefruit and engluffed my left ovary. hinse the doctor >removed
> the tube. In the process he said that my abdomin was such a mess he =
>had
> to call additional surgeons in to compleate the surgery and they could
> not find the right ovary or tube. basicly i scared the crap out of =
>him
> and put in my records anyone to cut me open again is crazy and asking
> for trouble. he was really scared. so now one of my tubes is MIA
> missing in action . ( ovarian cyst 9 ).
> I leave germany the end of this month and plan on having a appointment
> to find out about spraygel. and will possibly find out about one last
> surgery.
> as far as the historectomy I had a partial and it has done nothing for
> my adhesions except make them worse. dont do it. i really screws up
> what sex life you have left. I havent come with my husband i quite
> sometime . Hope this helps e-mail me when ever Beth
> paperplus2003@hotmail.com
>
>http://www.adhesions.org/forums/listcmds.htm
>
>------=_NextPart_000_021B_01C3716A.1987D430
>Content-Type: text/html;
> charset="iso-8859-1"
>Content-Transfer-Encoding: quoted-printable
>
><!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN">
><HTML><HEAD>
><META http-equiv=Content-Type content="text/html; >charset=iso-8859-1">
><META content="MSHTML 6.00.2800.1226" name=GENERATOR>
><STYLE></STYLE>
></HEAD>
><BODY bgColor=#ffffff>
><DIV><STRONG><FONT face=Georgia size=2>They have been doing Spray >Gel clinical
>trials for over 1 years now (possibly more) here in the
>states. I contacted the clinic in Ft Worth over 1 year ago >regarding the
>trials. At that time they were working more on
endometriosis >cases,
>but that may have changed. They do do 2 surgeries to go back in =
>and look
>which is good. Good luck, I hope you get
in!</FONT></STRONG></DIV>
><BLOCKQUOTE
>style="PADDING-RIGHT: 0px; PADDING-LEFT: 5px; MARGIN-LEFT: 5px; >BORDER-LEFT: #000000 2px solid; MARGIN-RIGHT: 0px">
>> <DIV style="FONT: 10pt arial">----- Original Message ----- </DIV>
> <DIV
> style="BACKGROUND: #e4e4e4; FONT: 10pt arial; font-color: >black"><B>From:</B>
> <A title=paperplus2003@hotmail.com
> href="mailto:paperplus2003@hotmail.com">Beth Pray</A> </DIV>
> <DIV style="FONT: 10pt arial"><B>To:</B> <A >title=adhesions@dns.obgyn.net
> href="mailto:adhesions@dns.obgyn.net">Multiple recipients of list
> ADHESIONS</A> </DIV>
> <DIV style="FONT: 10pt arial"><B>Sent:</B> Tuesday, September 02, >2003 3:45
> PM</DIV>
> <DIV style="FONT: 10pt arial"><B>Subject:</B> Re: Confluent Spray >Gel</DIV>
> <DIV><BR></DIV>At Tue, 30 Apr 2002, Robin
wrote:<BR>><BR>>Dear
> All<BR>>Confluent Spray Gel is starting clinical trials! I think =
>this is
> GREAT<BR>>news! Maybe it wont be long before it is FDA approved =
>& we
> all can get<BR>>"well". I am going to call tomorrow to see if >I meet
> the criteria to be<BR>>included in the study. I already know >I would
> have to go to FT Worth,<BR>>TX a min of 4 times, that may or may =
>not be a
> problem for me, but I<BR>>think it is worth the chance to find =
>out.
> The worse think they could<BR>>say is "NO". I found this =
>information
> by going to the Confluent Spray<BR>>Gel site. I sent them an >email
> saying I was interested in the Spray Gel<BR>>& wondered if they >knew
> when it might be FDA approved. It took them<BR>>about a week >to
> respond to me. The spray Gel has helped Mary so far & >I<BR>>would
> like for it to help me, and EVERYONE else that suffers
> from<BR>>Adhesions.<BR>>love<BR>>robin<BR>Hello,<BR>This is =
>the first
> i have been on this website and have found lots of<BR>good >information.
> I am a 9 time surgical experiment ( haha ) 1st was a<BR>cyst when i =
>was about
> 21. then another cyst ( 2 ) then 6 hour adhesions<BR>removal ( 3 >) to
> untie tied up falopian tubes so I could get pregnant. >I<BR>managed to
> get pregnant twice and managed to have two beautiful >little<BR>girls.
> Both by cyserian ( 4 & 5 ) Then we got sent to germany >on<BR>military tour
> of duty and had to get a binine tumor removed from
my<BR>uterus. >( 6 )
> they took the uterus in the process because i had planed<BR>on not =
>having more
> children. The adhesions were so bad the doctors<BR>figured I =
>would be
> better off with out a uterus. ( 7 ) they found a<BR>small tumor >at the
> end of my vagina due to previous surgery and removed<BR>that through =
>the
> vagina ( under gas ) ( 8 ) the adhesions were so bad<BR>three months =
>ago that
> they closed off my falopian tube and it blew up<BR>like a grapefruit =
>and
> engluffed my left ovary. hinse the doctor removed<BR>the >tube. In
> the process he said that my abdomin was such a mess he had<BR>to call
> additional surgeons in to compleate the surgery and they
could<BR>not >find the
> right ovary or tube. basicly i scared the crap out of him<BR>and >put in
> my records anyone to cut me open again is crazy and
asking<BR>for
> trouble. he was really scared. so now one of my tubes is
> MIA<BR>missing in action . ( ovarian cyst 9 ).<BR>I leave >germany the
> end of this month and plan on having a appointment<BR>to find out =
>about
> spraygel. and will possibly find out about one >last<BR>surgery.<BR>as
> far as the historectomy I had a partial and it has done nothing >for<BR>my
> adhesions except make them worse. dont do it. i really =
>screws
> up<BR>what sex life you have left. I havent come with my husband >i
> quite<BR>sometime . Hope this helps e-mail me when ever >Beth<BR><A
> >href="mailto:paperplus2003@hotmail.com">paperplus2003@hotmail.com</A><B>R><BR><BR>To
> remove yourself from the <A
>
href="mailto:adhesions@adhesions.org">adhesions@adhesions.org</A> =
>mailing list
> please go<BR> to the unsubscribe form at <A
> >href="http://www.adhesions.org/forums/listcmds.htm">http://www.adhesion>s.org/forums/listcmds.htm</A><BR>p.s.
> for the web forum version see <A
> >href="http://www.adhesions.org/forums/">http://www.adhesions.org/forums>/</A><BR><BR></BLOCKQUOTE></BODY></HTML>
>
>------=_NextPart_000_021B_01C3716A.1987D430--
>
http://www.adhesions.org/forums/listcmds.htm
>
>------------------------------
>
>------------------------------
>Date: Tue, 2 Sep 2003 19:40:50 -0400
>------------------------------
>From: "Millie" <milliem@citlink.net>
>To: <adhesions@adhesions.org>
>Subject: Re: Incisional Hernia
>Message-ID: <008a01c371ab$a4a92280$80e3d7aa@net>
>MIME-Version: 1.0
>Content-Type: text/plain;
> charset="iso-8859-1"
>Content-Transfer-Encoding: 7bit
>
>Marilyn,
>I am sorry for what you are going through. I know I had adhesions when she
>opened me to do the hyst, in 2001. She wrote "moderate amount of adhesions'
>on the report.
>I have not had any incisional hernias, but I can tell you that any
>open-abdominal surgery can and will make adhesions return. They get worse,
>and there's no known 100% cure for them.
>Your mid-section pain could be from adhesions.
>Millie.
>>----- Original Message -----
>From: "Marilyn" <haven49gal@aol.com>
>To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net>
>Sent: Monday, September 01, 2003 10:46 PM
>Subject: Incisional Hernia
>
> > I am 64 years old and have always been a healthy and vigorous person.
>In
> > February of this year I underwent a complete abdominal hysterectomy
> > because of a very large, benign ovarian cyst that I never even knew was
> > there. I felt really good about 2 weeks following surgery and returned
> > to my normal routine despite all advice that at least 4-6 weeks of light
> > activity was required to recuperate. I strained myself and wound up
> > with a rather large incisional hernia which began to show itself on my
> > lower left abdomen about 6 weeks after surgery. I was referred to a
> > surgeon who specializes in hernia repairs, both open and
laparoscopic.
> > The herniation was in the lower part of the incision, almost to the
> > pubic bone. Surgery was performed on July 18th.....he tried the
> > laparoscopic way first, but there were too many adhesions from the
> > hysterectomy and the hernia itself, so he had to open the prior incision
> > to make the repair. When he came to see me in the recovery room, he
> > told me it was an "excellent repair" and that I had wonderful tissue to
> > work with.
> >
> > Unfortunately, an ileus (intestinal paralysis) developed the day after
> > surgery while I was still in the hospital which caused me to violently
> > wretch and throw up continuously. A nasogastric tube was inserted to
> > relieve this condition and after 4 days the ileus resolved and the tube
> > was removed. I spent 8 days in the hospital. My doctor checked me
> > daily and I could see that he was not happy when he checked my abdomen.
> > He sent me for a CT scan which revealed that the repair had failed, most
> > likely due to the violent heaving I experienced. He said it only takes
> > "one stitch" to unravel the whole thing. In addition to this failure, I
> > also wound up with an enormous hematoma at the site of the laparoscopic
> > incision. It is still oozing heavily and I have to change the dressing
> > twice daily. A repeat hernia repair will have to be performed, but my
> > doctor says this can't be done for a few months as everything inside
> > must settle down. Now, I've started to experience terrible pain, not
> > just from the hernia and the hematoma, but if I cough, sneeze or laugh
> > hard I get this excruciating pain across my mid-section (at the level of
> > my belly button). If I don't wear the abdominal binder, I can't walk
> > for more than a couple of minutes without pain. I notice that when I
> > place my hand under my hernia (size of a cantaloupe) and lift up my
> > entire belly, the pain goes away somewhat.
> >
> > It seems that everything that can go wrong with a hernia repair did go
> > wrong. Now I'm wondering about this terrible mid-section pain....could
> > this be adhesions, especially since my intestines are now bulging out
> > again? I am seeing the surgeon on Thursday (he sees me every 2 weeks)
> > and I will, of course, consult him about this pain, but I'm wondering if
> > anyone else has had a similar experience. Thanks.
> >
> > to the unsubscribe form at
http://www.adhesions.org/forums/listcmds.htm
> >
>
http://www.adhesions.org/forums/listcmds.htm
>
>------------------------------
>
>------------------------------
>Date: Tue, 2 Sep 2003 21:29:25 -0500 (CDT)
>------------------------------
>From: haven49gal@aol.com (Marilyn)
>To: ADHESIONS@OBGYN.NET
>Subject: Re: Incisional Hernia
>Message-ID: <200309030229.h832TP103588@dns.obgyn.net>
>
>Millie: thanks for your response and good wishes. Hopefully, the
>surgeon will have some good advice when I see him on Thursday.
>Marilyn
>
>At Tue, 2 Sep 2003, Millie wrote:
> >
> >Marilyn,
> >I am sorry for what you are going through. I know I had adhesions when
>she
> >opened me to do the hyst, in 2001. She wrote "moderate amount of
>adhesions'
> >on the report.
> >I have not had any incisional hernias, but I can tell you that any
> >open-abdominal surgery can and will make adhesions return. They get
>worse,
> >and there's no known 100% cure for them.
> >Your mid-section pain could be from adhesions.
> >Millie.
> >
>> >>----- Original Message -----
> >From: "Marilyn" <haven49gal@aol.com>
> >To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net>
> >Sent: Monday, September 01, 2003 10:46 PM
> >Subject: Incisional Hernia
> >
> >> I am 64 years old and have always been a healthy and vigorous person.
>In
> >> February of this year I underwent a complete abdominal hysterectomy
> >> because of a very large, benign ovarian cyst that I never even knew was
> >> there. I felt really good about 2 weeks following surgery and returned
> >> to my normal routine despite all advice that at least 4-6 weeks of
>light
> >> activity was required to recuperate. I strained myself and wound up
> >> with a rather large incisional hernia which began to show itself on my
> >> lower left abdomen about 6 weeks after surgery. I was referred to a
> >> surgeon who specializes in hernia repairs, both open and laparoscopic.
> >> The herniation was in the lower part of the incision, almost to the
> >> pubic bone. Surgery was performed on July 18th.....he tried the
> >> laparoscopic way first, but there were too many adhesions from the
> >> hysterectomy and the hernia itself, so he had to open the prior
>incision
> >> to make the repair. When he came to see me in the recovery room, he
> >> told me it was an "excellent repair" and that I had wonderful tissue to
> >> work with.
> >>
> >> Unfortunately, an ileus (intestinal paralysis) developed the day after
> >> surgery while I was still in the hospital which caused me to violently
> >> wretch and throw up continuously. A nasogastric tube was inserted to
> >> relieve this condition and after 4 days the ileus resolved and the tube
> >> was removed. I spent 8 days in the hospital. My doctor checked me
> >> daily and I could see that he was not happy when he checked my abdomen.
> >> He sent me for a CT scan which revealed that the repair had failed,
>most
> >> likely due to the violent heaving I experienced. He said it only takes
> >> "one stitch" to unravel the whole thing. In addition to this failure,
>I
> >> also wound up with an enormous hematoma at the site of the laparoscopic
> >> incision. It is still oozing heavily and I have to change the dressing
> >> twice daily. A repeat hernia repair will have to be performed, but my
> >> doctor says this can't be done for a few months as everything inside
> >> must settle down. Now, I've started to experience terrible pain, not
> >> just from the hernia and the hematoma, but if I cough, sneeze or laugh
> >> hard I get this excruciating pain across my mid-section (at the level
>of
> >> my belly button). If I don't wear the abdominal binder, I can't walk
> >> for more than a couple of minutes without pain. I notice that when I
> >> place my hand under my hernia (size of a cantaloupe) and lift up my
> >> entire belly, the pain goes away somewhat.
> >>
> >> It seems that everything that can go wrong with a hernia repair did go
> >> wrong. Now I'm wondering about this terrible mid-section pain....could
> >> this be adhesions, especially since my intestines are now bulging out
> >> again? I am seeing the surgeon on Thursday (he sees me every 2 weeks)
> >> and I will, of course, consult him about this pain, but I'm wondering
>if
> >> anyone else has had a similar experience. Thanks.
> >>
>
>--
>Marilyn (haven49gal@aol.com).
>
http://www.adhesions.org/forums/listcmds.htm
>
>------------------------------
>
>------------------------------
>Date: Tue, 2 Sep 2003 22:32:20 -0500 (CDT)
>------------------------------
>From: tracy.joslin@adhesions.org (Tracy [Administrator])
>To: ADHESIONS@OBGYN.NET
>Subject: General Housekeeping
>Message-ID: <200309030332.h833WKs10253@dns.obgyn.net>
>
>Please take a moment to read through this email to have questions
>answered lately posted on the IAS message board -- instead of sending
>individual emails, I'm putting everything in one place for a quick read.
>Thanks for your attention :)
>
>1. We have heard your requests/questions about the message board layout
>and have been researching options for making a change in this area of
>our website. While updating the message board was not part of the first
>phase of the website development and had to fit within the new template
>layout, it certainly was not something we forgot about. Our message
>board resides under the obgyn.net umbrella, so our access to
>changes/updates on the message board does not exist and we must depend
>on someone else to handle our requests. We have noticed that the
>message board format and our template are not always compatible and this
>is impacting the viewing of some messages. Updating the message board
>has become a priority for us to complete and I hope to be bringing you
>more news on this very soon.
>
>2. Speaking of junk mail... we do not have the ability to keep all of
>the junk mail off the message board; but our server admin at obgyn.net
>is doing his best. Anytime you see messages about buying drugs or
>thanks for your resume, etc., we are sending these items to our server
>admin for deletion as well as asking that additional key words are added
>to the email filters. For some of you, the email filters have made it
>difficult to get your valid message through; Even my own messages have
>been blocked from the site! If you feel your message may be blocked and
>should not be, send your post to me and I'll make sure it gets up on the
>Board.
>
>3. If you find your messages have not posted within 24hrs....send an
>email directly to me (tracy.joslin@adhesions.org) so we can find out
>why. Most likely, there is a server problem at obgyn.net and something
>happened to your message. As I have said before, everyone sees the
>messages at the same time - so your message cannot be deleted without
>first hitting the Board; unless of course the server had a major hiccup
>and deleted everyone's messages during a certain time period. It has
>happened before. So, before you get upset that your post is not there
>-- ask us about it. I may not always have an answer, but I can at least
>get your message to the server admin for some sort of feedback (it does
>take time though).
>
>4. As for messages showing up with the incorrect email address. I've
>made requests to have this problem research and so far I do not have any
>answers to provide. For those of you impacted by this, I apologize and
>will continue to see if I can get resolution.
>
>5. If you send a message to webmaster@adhesions.org it will go to the
>obgyn.net server admin; I do not always see these posts. Keep in mind
>you may experience a delay in getting a reply. There are a few places
>on the website where this address is actually routed to me - but not the
>message board area.
>
>6. I have news about my own person struggle with adhesions I have had
>over the summer to share; hopefully a light at the end of the tunnel for
>me - but have been amazed at the insanity that I'm seeing on the board
>since I've been back and wonder if anyone will really care? This is a
>site for support and information, not a place to blame others, call them
>names, or any thing else that falls into this category. It is a HUGE
>time waster for everyone involved and completely defeats our purpose.
>
>I think my health is back up to dealing with this now and really do not
>want to have to give everyone a time out for the childish behaviour we
>have been seeing - but enought is enough. Many times we have asked that
>if you have a problem with someone....take it off the board! If you made
>an error or mis-stated something or someone did not understand what you
>said - it okay to restate the information or explain your point. It is
>good to see healthy, spirited discussions but not when they turn
>mean/ugly. At some point when you go back to read the messages, you
>cannot tell what the true problem was. So from this point on, expect to
>see more emails about this sort of thing and you will see your posts
>deleted when things start getting out of control.
>
>.......and lastly.....please do not reply to the emails you have been
>seeing regarding computer viruses. If you are getting the individual
>posts, please take a moment to see that the message was sent to the
>entire board before replying. With all the problems recently, you may
>have seen a lot of these messages - some of which we can do nothing
>about since one feature of the virus can be replicating a message to
>your entire address book. Also - do not post information on how to
>clean any virus problems off your pc or tell others how to remove files
>from the hard drive -- we ask that you go to http://www.norton.com or
>http://www.microsoft.com or even http://www.mcafee.com for updates on current virus
>problems.
>
>That's about it for now. We could not send a mailing out in late August
>with all the virus activity going on -- my own pc became ill :(
>
>--
>Tracy Joslin
>IAS Administrator
>tracy.joslin@adhesions.org
>
>Neither the IAS, Synechion, Dr. Wiseman or any other representative offers
>medical advice. Always consult a qualified medical professional.
>
http://www.adhesions.org/forums/listcmds.htm
>
>------------------------------
>
>------------------------------
>Date: Tue, 2 Sep 2003 23:15:18 -0500 (CDT)
>------------------------------
>From: tracy.joslin@adhesions.org (Tracy [Administrator])
>To: ADHESIONS@OBGYN.NET
>Subject: A little bit of better news to share
>Message-ID: <200309030415.h834FIl07626@dns.obgyn.net>
>
>I thought it might be helpful to some of our members/readers to hear
>some good news that I received after my own surgery this summer.
>
>In mid-June I had what is somewhere around my 20th surgical procedure
>(I've quit counting) over a 19 year time span. Being still very young,
>this is not exactly a great track record, but one that I hold due to
>severe endometriosis and adhesions. I've worked with the same doctors
>over these years in my current home town (Texas) and find I am very
>fortunate to have their knowledge, skill sets and patience.
>
>For the first time in 19 years I heard these statements from my doctors
>after the surgery: "the pelvic was clean of endo and adhesions" and "the
>abdominal/chest adhesions were not nearly as bad as we expected based on
>your prior surgeries". Never before have I heard these words.....ever.
>
>The endo has resided everywhere you can think of and in a lot of other
>places it should not - liver, diaphragm, etc. The adhesions have taken
>on a life of their own, partly from the endo, partly from multiple
>surgeries and my body's ability to just keep making the tissue or at
>least allowing it to grow.
>
>Over the years they tried most everything to help with my stubborn
>adhesions. Intergel was removed from the market in the months prior to
>my surgery, otherwise, it may have been used.
>
>It seems Sepra Film has become my body's most accepted adhesion barrier
>and after two applications ('97 & '99) there has been some success in
>reducing the quantity of the adhesions. To go a longer time period than
>ever before with a lesser amount of adhesions that before is a HUGE
>accomplishment for me. Many of my surgeries were laps. The last 2 ops
>were mini-laparotomies. The surgery this summer was a full laparotomy
>straight down the center -- they found a hernia to repair (ouch). Now
>my husband thinks that I will fall apart at the seams where my
>horizontal and vertical incisions all meet. [he is such the funny
>guy!]. Could the fact that CO2 was not used in the last couple of
>surgeries have some impact? How long will the Sepra Film help this time?
>
>I've been through a lot myself with all of this over the years and I
>know that one of these days we will find something that will work for
>me. I do not expect this to be the end of my dealings w/adhesions or
>endo - - my doctors and I know my body all too well. But we do feel it
>may be a little bit longer this time before I have to have another
>surgery. Its taken many years to get here - a lot of pain, a lot of
>crying, lack of money and a lot of everything else I never anticipated I
>would have to deal with -- but the fight is not over yet. I'm fortunate
>in that I am always pain free after surgery -- a lot of practice at
>getting myself prepared mentally for feeling better maybe, even though I
>know there will be a "next time"?? In these later years I am able to go
>a while longer before things get me down, but the diseases are always in
>the back of my mind.
>
>I'm not sure what else we have done differently to achieve this outcome
>besides create havoc with my hormone replacement regimens and I do take
>GLA supplements to help w/the inflammation (approved by my doctor).
>
>Not everyone gets the same results w/the variety of adhesion barriers
>out there, and if someone else went to my doctor - he may not be right
>for that person. We all go through this disease - uniquely. With my
>surgery in mid-June, I took time away from my IAS duties for a much
>needed recovery period. Getting out of the hospital after only 48hrs
>was a huge coup. I still do not know why they look at you funny when
>you walk the halls at 4am w/your IV pole tagging along behind you --
>could I really look that funny?
>
>My energy has been slow to come back, but I'm getting stronger each day
>and am now 10 weeks post-op. I don't know what the future holds and in
>time, the familiar pain will probably return, but I try not to dwell on
>that just yet.
>
>Until then, I'll just be sitting here putting extra virgin olive oil on
>my incision w/a cotton pad twice a day to minimize the appearance and
>hope that nobody mistakes me for a salad :)
>
>--
>Tracy Joslin
>IAS Administrator
>tracy.joslin@adhesions.org
>
>Neither the IAS, Synechion, Dr. Wiseman or any other representative offers
>medical advice. Always consult a qualified medical professional.
>
http://www.adhesions.org/forums/listcmds.htm
>
>------------------------------
>
>------------------------------
>Date: Tue, 2 Sep 2003 22:37:17 -0600
>------------------------------
>From: "MICHAEL MURRAY" <mkmurray30@msn.com>
>To: <adhesions@adhesions.org>
>Subject: Re: A little bit of better news to share
>Message-ID: <BAY3-DAV5867Lyazdx50001686c@hotmail.com>
>MIME-Version: 1.0
>Content-Type: text/plain;
> charset="iso-8859-1"
>Content-Transfer-Encoding: 7bit
>
>Tracy,
>Thank you for updating us on your health and thank you for all that you do
>for this site.
>Kelly
>
>>----- Original Message -----
>From: "Tracy [Administrator]" <tracy.joslin@adhesions.org>
>To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net>
>Sent: Tuesday, September 02, 2003 10:16 PM
>Subject: A little bit of better news to share
>
> > I thought it might be helpful to some of our members/readers to hear
> > some good news that I received after my own surgery this summer.
> >
> > In mid-June I had what is somewhere around my 20th surgical procedure
> > (I've quit counting) over a 19 year time span. Being still very young,
> > this is not exactly a great track record, but one that I hold due to
> > severe endometriosis and adhesions. I've worked with the same doctors
> > over these years in my current home town (Texas) and find I am very
> > fortunate to have their knowledge, skill sets and patience.
> >
> > For the first time in 19 years I heard these statements from my doctors
> > after the surgery: "the pelvic was clean of endo and adhesions" and "the
> > abdominal/chest adhesions were not nearly as bad as we expected based on
> > your prior surgeries". Never before have I heard these
words.....ever.
> >
> > The endo has resided everywhere you can think of and in a lot of other
> > places it should not - liver, diaphragm, etc. The adhesions have taken
> > on a life of their own, partly from the endo, partly from multiple
> > surgeries and my body's ability to just keep making the tissue or at
> > least allowing it to grow.
> >
> > Over the years they tried most everything to help with my stubborn
> > adhesions. Intergel was removed from the market in the months prior to
> > my surgery, otherwise, it may have been used.
> >
> > It seems Sepra Film has become my body's most accepted adhesion barrier
> > and after two applications ('97 & '99) there has been some success in
> > reducing the quantity of the adhesions. To go a longer time period than
> > ever before with a lesser amount of adhesions that before is a HUGE
> > accomplishment for me. Many of my surgeries were laps. The last 2 ops
> > were mini-laparotomies. The surgery this summer was a full laparotomy
> > straight down the center -- they found a hernia to repair (ouch). Now
> > my husband thinks that I will fall apart at the seams where my
> > horizontal and vertical incisions all meet. [he is such the funny
> > guy!]. Could the fact that CO2 was not used in the last couple of
> > surgeries have some impact? How long will the Sepra Film help this time?
> >
> > I've been through a lot myself with all of this over the years and I
> > know that one of these days we will find something that will work for
> > me. I do not expect this to be the end of my dealings w/adhesions or
> > endo - - my doctors and I know my body all too well. But we do feel it
> > may be a little bit longer this time before I have to have another
> > surgery. Its taken many years to get here - a lot of pain, a lot of
> > crying, lack of money and a lot of everything else I never anticipated I
> > would have to deal with -- but the fight is not over yet. I'm fortunate
> > in that I am always pain free after surgery -- a lot of practice at
> > getting myself prepared mentally for feeling better maybe, even though I
> > know there will be a "next time"?? In these later years I am able to go
> > a while longer before things get me down, but the diseases are always in
> > the back of my mind.
> >
> > I'm not sure what else we have done differently to achieve this outcome
> > besides create havoc with my hormone replacement regimens and I do take
> > GLA supplements to help w/the inflammation (approved by my doctor).
> >
> > Not everyone gets the same results w/the variety of adhesion barriers
> > out there, and if someone else went to my doctor - he may not be right
> > for that person. We all go through this disease - uniquely. With my
> > surgery in mid-June, I took time away from my IAS duties for a much
> > needed recovery period. Getting out of the hospital after only 48hrs
> > was a huge coup. I still do not know why they look at you funny when
> > you walk the halls at 4am w/your IV pole tagging along behind you --
> > could I really look that funny?
> >
> > My energy has been slow to come back, but I'm getting stronger each day
> > and am now 10 weeks post-op. I don't know what the future holds and in
> > time, the familiar pain will probably return, but I try not to dwell on
> > that just yet.
> >
> > Until then, I'll just be sitting here putting extra virgin olive oil on
> > my incision w/a cotton pad twice a day to minimize the appearance and
> > hope that nobody mistakes me for a salad :)
> >
> > --
> > Tracy Joslin
> > IAS Administrator
> > tracy.joslin@adhesions.org
> >
> > Neither the IAS, Synechion, Dr. Wiseman or any other representative
>offers
> > medical advice. Always consult a qualified medical professional.
> >
> > to the unsubscribe form at
http://www.adhesions.org/forums/listcmds.htm
> >
>
http://www.adhesions.org/forums/listcmds.htm
>
>------------------------------
>
>------------------------------
>End of ADHESIONS Digest 2937
>------------------------------
>****************************
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