Re: adhesions and neuroma

From: Debbie Soder (dsoder2003@yahoo.com)
Sun Aug 17 16:58:18 2003


kimmi: if you dont mind me asking where did the adhesions spread to? Im having breating problems and wonder if theyre on my diaphpragm.

--- adhesions@adhesions.org <creative@enter.net> wrote: >
> I also had a Neuroma after one of my adhesion surgeries.
> I had pain from it.
> They gave me an injection of Lidocaine(sp?)directly

into the Neuroma and > then it finally went away.
>
> They must be able to feel the exact spot of the

Neuroma because it is > crucial that the injection goes into the Neuroma in

order to help. > I had it for pretty many months until they did that.
> JEAN (from PA)
>
> At Sat, 16 Aug 2003, Jeri wrote:
> >
> >At Tue, 21 Dec 1999, Kimmi wrote:
> >>
> >>Joanne,
> >>I suffer with massive adhesion and nerve problems.

And a few other > >>problems, anyways An intresting factor I found out

about a year or so > >>ago, was that Fibromyalgia Patients which I

am,produce adhesions at a > >>great rate,they also produce nerve endings at a

greater rate..So with > >>the two of them and other stuff,I am in extreme

pain 24 hours aday..I > >>have had a procedure done where they were checking

to see if it would > >>bring me any relief to cut the nerve endings in

the abdomen.The first > >>abdominal nerve block failed due to massive

adhesions,the second one too > >>about 40 percent,asked me how I felt about that

percentage any relief is > >>good for me.Went to a specialist about having the

nerves in my abdomen > >>cut,well he decided I was not a good canidate for

this procedure because > >>the procedure would only block pain mid abdomen

and I have pain and > >>problems on the side..Very depressed about that

call,because I wanted > >>some relief..Anyways I am on Neurotin too I am on

2400mgs of Neurotin > >>along with other meds,but the neurotin was to try

and help with the > >>nerve pain.The adhesions has spread beyond the

pelvic region and so far > >>I cannot find a surgeon to agree to do another

surgery. I have already > >>had 12 abdominal surgeries. I am still hoping

that one of these days > >>someone will figure out what to do..Hugs
> >>Kimmi
> >
> >Hi, I have had my problem for years and it is very

similar. I have what > >they have called a Vaginal Cuff Neuroma. It is a

benign Tumor on a > >Nerve in my Vagina caused by nerve damage from a

Vaginal Hysterectomy, I > >xannot believe I finally found more than me out

there. It is very rare > >and there is nothing theu can do. I have had all

the Surgeries and > >Nerve Blocks available. fIRST nEURONTIN DOES NOT

WORK SO GET OFF OF IT. > >I had been taking it for years and stopped becasue

I still get the > >spasms and it was effecting my mind. I am now on

Oxycontin and > >Oxycodone together. I have tried every other med

and that is the only > >combo right for me. I still cannot work but I find

things to keep my > >mind off the pain. The reason they have not had a

cure is becasue there > >is no research out there for this rare problem.

The big wigs are too > >busy with new drugs for men. Please feel free to

email me with any > >questions because I have been going thru this for

over 10 years. God > >Bless, Jeri
>
> --
> Jean (from PA)
>

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