Re: Some side-affects actually help!

From: Millie (milliem@citlink.net)
Fri Aug 8 21:38:03 2003


Jean, Thanks so much for the info! I went back to that gyn today. She said I don't have any of them. ( yet. ) Millie.

>----- Original Message -----
From: "Jean (from PA)" <creative@enter.net> To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net> Sent: Thursday, August 07, 2003 9:12 PM Subject: Re: Some side-affects actually help!

> Millie,
> Yes, I do have a moderate rectocele and have had it for pretty many
> years.
>
> I also had a cystocele and uterine prolapse when I was young.
> They took the uterus out and sewed the bladder back up.
> Below are 2 sites about the different ones.
>
> http://www.suffolkobgyn.com/viewArticle?ID=9796
> http://www.wdxcyber.com/nurine05.htm
>
> JEAN
>
> At Wed, 6 Aug 2003, Millie wrote:
> >
> >Jean,
> >Add this as a kicker.
> >I went to my favorite gastro's, my luck...he's on vacation.
> >The nurse practitioner asked if I'd ever tried Zelnorm.
> >So I said I am afraid to try it, (as due to HER gyn cutting me, and
adding > >even worse adhesions. )
> >I told the NP that I know there is a warning from Zelnorm saying it's not
> >for women who have adhesions. The NP looked surprised and said she
believed > >that only applied to women who've had bowel obstructions.
> >I am having a lot of intestinal and pelvic pain and problems now. I am
> >wondering if it's adhesions, or maybe rectocele, or the like.
> >Bowel movements are usually loose, painful if I go or not. And
definitely > >not emptying out.
> >Jean, did you ever have rectocele, enterocele, or the like?
> >Millie.
> >

>> >>----- Original Message -----
> >From: "Jean (from PA)" <creative@enter.net>
> >To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net>
> >Sent: Saturday, August 02, 2003 1:38 AM
> >Subject: Re: Some side-affects actually help!
> >
> >> Millie,
> >> That shouldn't surprise you- LOL!
> >> "We" must do our own research.
> >> My 1st Gastro was my "worse" doctor ever, the one who said I had
Crohn's > >> Disease and everything else in the book other than adhesions.
> >>
> >> I see the commercial every day now too, still shocks me every
> >> time....unbelievable, that much advertising sure will put the word in
> >> people's heads now at least.
> >> JEAN
> >>
> >> At Fri, 1 Aug 2003, Millie wrote:
> >> >
> >> >Jean,
> >> >I see that Zelnorm ad on t.v. every day. And I am surprised they
stress > >not
> >> >using it if you have adhesions.
> >> >And the gastro who originally fired me in 1999, actually sent samples
> >home
> >> >with me when I went back to him last fall.
> >> >And he KNOWS I had a hyst and have adhesions.
> >> >Go figure that one.
> >> >Millie.
> >> >
> >

>> >>> >>----- Original Message -----
> >> >From: "Jean (from PA)" <creative@enter.net>
> >> >To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net>
> >> >Sent: Friday, August 01, 2003 3:06 AM
> >> >Subject: Some side-affects actually help!
> >> >
> >> >> Nancy,
> >> >> That's like with me and meds that cause diahhrea.
> >> >> They always laugh at me because I "ask" for the ones that cause
> >> >> diahhrea!
> >> >> They told me that was a side affect of Prilosec when I went on them
and > >> >> I said "Great", better than using dynamite!!
> >> >> I actually enjoy the flu....as long as I'm not up-chucking
anyway-LOL! > >> >> JEAN
> >> >>
> >> >> At Thu, 31 Jul 2003, Nancy wrote:
> >> >> >
> >> >> >My doctor let me try zelnorm and it worked well, for a while. She
> >felt
> >> >> >that the "contraindication" just told us that zelnorm wasn't a cure
> >for
> >> >> >the constipation that we know is caused by the adhesions. The
symptom > >> >> >of consipation, however, was somewhat relieved when the food moved
> >more
> >> >> >quickly through my digestive system. I'd have to say it worked
pretty > >> >> >good for me for several months before the effectiveness diminished.
> >> >> >Plus, I'm sure that they adhesions have tightened in that same
period > >of
> >> >> >time. The first couple of days of zelnorm were rough, but after
> >> >> >adjusting to the medication it was definitely better than without
it. > >> >> >
> >> >> >Be sure to discuss these issues with your doctor. I went into it
with > >> >> >my eyes open and I was pleased with the result, at least for a
while. > >> >> >
> >> >> >--
> >> >> >Nancy
> >> >> >
> >> >> >At Thu, 31 Jul 2003, Sue wrote:
> >> >> >>
> >> >> >>not causing adhesions... only if you already suffer from then!
then > >you
> >> >are
> >> >> >>NOT to use it.
> >> >> >>
> >> >> >>sorry in a rush.
> >> >> >>
> >> >> >>--
> >> >> >>SueRin Ohio
> >> >> >>
> >> >
> >

>> >>> >>> >>>>----- Original Message -----
> >> >> >>From: "Dixiepeep" <kbjarvis@yahoo.com>
> >> >> >>To: "Multiple recipients of list ADHESIONS"
<adhesions@dns.obgyn.net> > >> >> >>Sent: Thursday, July 31, 2003 3:29 PM
> >> >> >>Subject: Re: Zelnor recognizes Adhesions
> >> >> >>
> >> >> >>> Just rediscovered the site. Nice new look. I know when the
Zelnor > >> >> >>> commercial came on and said the word adhesion they may as well
have > >> >said
> >> >> >>> my name because it really caught my attention. It is the first
> >time I
> >> >> >>> have ever heard of a drug side effect causing adhesions.
> >> >> >>> t Thu, 31 Jul 2003, april degregory wrote:
> >> >> >>> >
> >> >> >>> >At Thu, 31 Jul 2003, Jean wrote:
> >> >> >>> >>
> >> >> >>> >>Just thought I would make everyone aware (if they didn't
already > >> >know).
> >> >> >>> >>I saw a commercial on "TV" for the drug called Zelnor.
> >> >> >>> >>I was in disbelief when they mentioned the people who should
not > >> >take
> >> >> >>> >>this drug.
> >> >> >>> >>People with ADHESIONS was on the list of people who should not
> >take
> >> >this
> >> >> >>> >>drug!
> >> >> >>> >>
> >> >> >>> >>They actually said the word ADHESIONS...and on TV where
everyone > >can
> >> >> >>> >>hear it (LOL)!!!
> >> >> >>> >>Wow....they can say swear words on TV (since that is how it
has > >been
> >> >> >>> >>treated)....Tee Hee!
> >> >> >>> >>JEAN
> >> >> >>> >>
> >> >> >>> >>--
> >> >> >>> >>Jean (from PA)
> >> >> >>> >>
> >> >> >>> >Hi Jean,
> >> >> >>> >I am a ard sufferer and was in the hospital for 45 days, I was
> >unable
> >> >> >>> >to move my bowels and they gave me Zelnorn and it nearly killed
> >me,
> >> >> >>> >cramping pain horrible and no bowel movement, then I asked for
a > >> >print
> >> >> >>> >ou
> >> >> >>> >of the Zelnorn and saw that and was like , are they trying to
kill > >me
> >> >or
> >> >> >>> >what. I am proven to have adhesions, a had small bowel
> >obstruction
> >> >> >>> >caused
> >> >> >>> >from adhesions a year or so ago, and an adhesionlysis in
January > >> >showing
> >> >> >>> >adhesions in all four quadrants of my abdomen. Well it turned
out > >I
> >> >was
> >> >> >>> >ha
> >> >> >>> >ving a paralytic ileus, it was a nightmare. Had to have a
> >continious
> >> >> >>> >spinal
> >> >> >>> >epidural for 7 or 8 days. Anyway a couple of doctors I saw
were > >> >> >>> >appalled that
> >> >> >>> >they tried this drug on an adhesion sufferer. Sometimes I
think > >> >these
> >> >> >>> >docs
> >> >> >>> >do read these warnings, as I was a known ARd patient.
> >> >> >>> >
> >> >> >>> >--
> >> >> >>> >anthea,
> >> >> >>> >Do you have any information about clinical trials for spraygel
at > >the
> >> >> >>cleveland clinic.
> >> >> >>> >
> >> >> >>> >I know you dont know me , Im new to the site.....but not to
> >> >ARD.......I
> >> >> >>thought somewhere in the archives cleveland was mentioned. would
> >> >appreciate
> >> >> >>any info you might have
> >> >> >>> >Thanks,
> >> >> >>> >April
> >> >> >>> >
> >> >> >>>
> >> >>
> >> >> --
> >> >> Jean (from PA)
> >> >>
> >>
> >> --
> >> Jean (from PA)
> >>
>

http://www.adhesions.org/forums/listcmds.htm >


Enter keywords:
Returns per screen: Require all keywords: