Re: Dr. In Pennsylvania - Question

From: Lisa (lilylover5555@aol.com)
Wed Jul 9 14:10:03 2003


Hi Heather, We understand completely! Good luck on your surgery! Lisa

At Wed, 9 Jul 2003, heather s wrote: >
>I can neither afford going to Pennsylvania or Germany, I'm a poor
>college student..LOL
>
>Any way, I get partial small bowel obstuctions about every 2-3 weeks and
>have been in and out of the hospital for about 3 years now. I have had
>4 surgeries and have severe adhesions. I finally found a wonderful
>surgeon that beleives that ahdesions are the cause of my problem. He
>told me why doctors won't help adhesion patients and told me that this
>wasn't all in my head like most the the doctors have told me. I am
>scheduled for surgery to cut down adhesions Tuesday the 15th.
>
>Before everybody jumps on me, I understand that having more surgery can
>make more adhesions. I'm not expecting a perfect outcome, just some
>improvement In the quality of my life. I have done a lot of reasearch
>on adhesions and have read this website, and I think that I have made
>the best decision for me at this time.
>
>Heather
>
>At Wed, 9 Jul 2003, Steenbeke's Office wrote:
>>
>>I am thinking about going to Pennsylvania for surgery as I can not afford
>>the trip to Germany right now. My doctor here said he would help me with my
>>insurance company, but I read on a recent post that the doctor in PA does
>>not accept insurance. Is this true? Is he really only private pay? Any
>>information about this doctor would be greatly appreciated.
>>
>>Thanks
>>Deborah
>>

>>>>>----- Original Message -----
>>From: MICHAEL MURRAY <mkmurray30@msn.com>
>>To: Multiple recipients of list ADHESIONS <adhesions@dns.obgyn.net>
>>Sent: Wednesday, July 09, 2003 10:38 AM
>>Subject: Re: One last time-my story
>>
>>> I would have to agree with Lisa on everything she has said.
>>> I myself have been to Pennsylvania for surgery with no good results.
>>> I went to Germany last December and had surgery. I came home and had some
>>> problems in which I notified Dr. K. about. He suggested that I have some
>>> tests ran and low and behold I had Gallstones. I had my gallbladder out
>>in
>>> May. I have to thank Dr. K for suggesting the tests as I don't think my
>>> drs. here would have thought to do that. I wanted to go back to Germany to
>>> have this surgery but was unable to go.
>>> Unfortunately I am experiencing pelvic pain and other problems once again
>>> and have had to go back on pain patches. I CAN'T SAY THAT IT IS ADHESIONS
>>> BUT IT FEELS AS THOUGH IT IS. (The only way to know for sure is to go in
>>and
>>> look!)
>>> Would I have another surgery for them in the states? NO!
>>> I do have a friend from my town that followed me to Germany for surgery
>>and
>>> she is doing well. She didn't have adhesions in the pelvic area though.
>>> I went to Minnesota at one time and was told that it is hard to get rid of
>>> them in the pelvic area.
>>> So...I think your best chance is Germany but I don't think we can say that
>>> it is going to be 100% effective.
>>> I am glad that there are some on here that feel they are adhesion free now
>>> but there needs to be some insight on the expectations.
>>> Kelly
>>>

>>>>>> ----- Original Message -----
>>> From: "Lisa" <lilylover5555@aol.com>
>>> To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net>
>>> Sent: Monday, July 07, 2003 11:18 AM
>>> Subject: One last time-my story
>>>
>>> > Hey everyone,
>>> > I'm still seeing a little bit of confusion over the results of many that
>>> > have been to Germany. I would like to say my peace and clarify some
>>> > things that I now understand...
>>> > Both Sally and I have had some trouble after our surgeries with Dr.
>>> > Kruschinski. I think you all ready knew that we have been up-front with
>>> > our problems. Sally has told this board of her 1st surgery and the
>>> > appendicitis that followed, all the problems it caused her with the
>>> > resulting massive infection, and explosion of adhesions because of that
>>> > infection. She told us of her 2nd surgery and her reaction to the
>>> > spraygel??? If that is indeed what happened, she was the first to
>>> > experience these kinds of problems, and no one knows exactly what
>>> > happened. She has been very up-front with it all, as have I. I posted
>>> > last fall of my continuing problems, and that I was told it was chronic
>>> > pancreatitis, which turned out not to be the case! We have both tried
>>> > our best to keep you all informed of what is happening with us, we have
>>> > been honest! In retrospect I guess we could have posted more about this,
>>> > but it has been a long struggle for both of us, with no definative
>>> > answers. We also didn't want to drag down others, or give them any idea
>>> > that the combination Dr. Kruschinski offers is not working! That is
>>> > simply not true, he offers the best chance we have, in my opinion...for
>>> > many patients the use of gas in adhesiolysis can be a factor in adhesion
>>> > formation, so why not get all the help we can get, IF that is the route
>>> > you choose to take!
>>> > I also feel the need to clarify something I said awhile ago... that my
>>> > 3rd look showed a very small adhesion...I stand corrected, and wanted
>>> > you all to know that! What I saw as an adhesion,(I'm not a medical
>>> > person) was in fact an "adhesive cord" which is not an adhesion, is not
>>> > effective as an adhesion, it was very small,1 milimeter, and most
>>> > important does not mean that I do in fact have adhesions back! I have
>>> > gotten a second opinion on this matter, and they agree it may(or may
>>> > not) be an adhesion!I chose to think NOT!!
>>> > I have said before that I DON"T KNOW IF MY ADHESIONS ARE BACK... I have
>>> > chosen another route that makes perfect sense to me and my situation...
>>> > interstiial scarring. I'm still learning exactly what that means, but I
>>> > think I can safely say it is more about nerves(on a cellular basis) than
>>> > anything!!If any one has questions about this I'd be happy to try to
>>> > explain the best I can, but I am still learning!
>>> > I hope this clears some things up for you all...
>>> > Lisa
>>> >
>>>


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