One last time-my story

From: Lisa (lilylover5555@aol.com)
Mon Jul 7 12:16:03 2003


Hey everyone, I'm still seeing a little bit of confusion over the results of many that have been to Germany. I would like to say my peace and clarify some things that I now understand... Both Sally and I have had some trouble after our surgeries with Dr. Kruschinski. I think you all ready knew that we have been up-front with our problems. Sally has told this board of her 1st surgery and the appendicitis that followed, all the problems it caused her with the resulting massive infection, and explosion of adhesions because of that infection. She told us of her 2nd surgery and her reaction to the spraygel??? If that is indeed what happened, she was the first to experience these kinds of problems, and no one knows exactly what happened. She has been very up-front with it all, as have I. I posted last fall of my continuing problems, and that I was told it was chronic pancreatitis, which turned out not to be the case! We have both tried our best to keep you all informed of what is happening with us, we have been honest! In retrospect I guess we could have posted more about this, but it has been a long struggle for both of us, with no definative answers. We also didn't want to drag down others, or give them any idea that the combination Dr. Kruschinski offers is not working! That is simply not true, he offers the best chance we have, in my opinion...for many patients the use of gas in adhesiolysis can be a factor in adhesion formation, so why not get all the help we can get, IF that is the route you choose to take! I also feel the need to clarify something I said awhile ago... that my 3rd look showed a very small adhesion...I stand corrected, and wanted you all to know that! What I saw as an adhesion,(I'm not a medical person) was in fact an "adhesive cord" which is not an adhesion, is not effective as an adhesion, it was very small,1 milimeter, and most important does not mean that I do in fact have adhesions back! I have gotten a second opinion on this matter, and they agree it may(or may not) be an adhesion!I chose to think NOT!! I have said before that I DON"T KNOW IF MY ADHESIONS ARE BACK... I have chosen another route that makes perfect sense to me and my situation... interstiial scarring. I'm still learning exactly what that means, but I think I can safely say it is more about nerves(on a cellular basis) than anything!!If any one has questions about this I'd be happy to try to explain the best I can, but I am still learning! I hope this clears some things up for you all... Lisa

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