Re: surgery ­hesions, can anyone advise me ??

From: Dawn (dawn@naisp.net)
Sun Jul 6 11:17:23 2003


Dearest Ann Marie, Welcome to the IAS. You have found the right place. The information and collective experience of all who participate here may very well save your life. You are not alone in this anymore!!!Have you contacted Kath Findlay yet? She runs the UK branch of the IAS http://www.adhesions.org.uk/index2.shtml We can all relate to the unsufferable pain and the feelings of being a burden....obviously you are a fighter and you will need to be but there is hope. There is much information for you to gleen between the two sites and we are here to share your fight, pain and frustrations. Perhaps you will find the answer that is right for you thru us. Don't let anyone cut you again till you learn what it means to suffer from ARD backwards and forwards. I hope there is someone close to you in the UK that can help you...that would be right up Kath's alley. We all help each other when we can. You will find her email address in the support section...under worldwide support. Best thing would be to find a doctor who can keep you comfy till you can make an informed decission about what course lies ahead for you. I am so happy you found us. I am 41, God know's I know. Please feel free to contact me anytime. Love and warm wishes, Dawn >
>my story i am sure is the same as many of you on this message board.
>i am new to this site and would like to say hello to you all.....my name
>is annemarie, i live in the uk..and am 46 yrs old..
>i too have had 22 stomach operations....for adhesions...and perforation
>in the bowels...
>i too thought after my 5th op that the pain couldn't get any worse....
>you and i now know this isn't true....
>i had been to many surgeons that say that no more can be done for me,
>then i found a programe on tv showing that a fibre called sepra
>film....(rather like cling film) could be wrapped around the bowels and
>scar tissue, so that they would not be able to adhere together again....
>now that seemed to be the perfect solution, to me.
>had that done and after a 14 hour operation, sadly it didn't work for
>me....
>i have started on the fentalyn patches which i should put on every 3
>days but i do use every two days ....also have morphine .....
>i like most who have this awful problem...have not had a painfree day
>for 13 yrs....
>when i saw the surgeon that opened me up...to use the sepra film....i
>asked why it hadn't worked ........to my amazement, he replied.....one
>of those things..i am not a bowel surgeon.(COULD HAVE TOLD ME BEFORE
>!!!).....and that he did all the bowel ops that came into my local
>hospital......
>as i am with a self funding doctors surgery, i have been told that i
>cannot go to another hospital to be helped!!!
>to think i used to moan about my monthly cramps yrs ago lol
>they would be heaven now lol!!!
>i have an ileostomy...since aug 1990, they have twice tried to reverse
>as the stoma goes back into my stomach.but the adhesions are so locked
>together ..that it made it impossible to get near the double loop...that
>was left for me to have a reversal......
>i try to hide the pain...so my friends .and my family, don't see just
>how much pain i am in..but this week it has all become too much for
>me....
>no one can see the scar tissue outside the body..so do not understand
>what people with this complaint..actually go through,
>i hate to ask for help...and don't want to be a pain to anyone...so i
>keep it to myself....
>if it was flu or a short term illness ......i would be okay, telling
>people but as thei has continued for over 13 yrs iits not something one
>wantsto hear about every day.
>i say family i have one sister in the usa.and a neice, that is living
>here in london with her family for the next few yrs...
>they have there own problems to cope with,without me whinging on about
>my adhestions,,,
>is there anyone ......out there .....that knows of anyone that could
>help me....
>???
>at 46 yrs old .....and unable to work,i have an 80 yr old body(well
>inside ) ....and the pain is aging me...and feel i cannot cope...with
>this pain
>so if there is anyone reading this email, please contact me .....
>many thanks for reading this ....also for me to have a safe place to
>open up about this problem.
>hopefully they will find something to help this painful illness.
>god bless all of you that suffer too .
>
>--
>annemarie
>

--
I'm no doctor, just a fellow sufferer like you but I hope you consider me a new friend.

Enter keywords:
Returns per screen: Require all keywords: