(((HUGS)))
Maria
At Thu, 3 Jul 2003, Lillian wrote:
>
>At Wed, 2 Jul 2003, Dalene wrote:
>>Dearest Dalene,
>
>I know exactly what you are talking about. I lost my job because of
>this illness also. I sit at home and feel like I want to die too
>sometimes. But we must hold tight and trust that someday God will find
>an answer to this problem. Me too I feel like I am a burden on my
>family sometimes. Sometimes I think I could just take a knife from the
>kitchen drawer and remove those succors myself. I hate not working I
>need my work to help me financially and emotionally.But the pain has won
>I can't do my own house work anymore. I have my husband and kids
>mopping ,washing my automobile and all I do is cook and then sometimes I
>can't get out of bed to do that either.I have always been a person with
>lots of ambition and ran this entire house while my husband worked out
>of town but now He had to find a job close by so I can call him to be
>here for me. But it also entailed this smaller salary and that has been
>very difficult. Sometimes we run very short of funds. But Somehow God
>blesses us and we keep going. I am more fortunate to have my hubby to
>support me. So I try not to be depressed too much. What state do you
>live in? You need to write to your state Representative to ask them to
>get your state to recognize ARDS. I did that ,I accomplished that much
>for the State of Louisiana. I thought it would have been difficult but
>I gathered my info and brought it to her and we sat and I explained my
>condition and she took it to the legislature and it passed. Thank God
>for that. so give that a try I took the Connections Booklet from David
>Wiseman IAS and A copy of the New York State Recognition and sat and
>talked to her briefly about it>not to take too much of her time I told
>her to read the booklet and let me hear from her.ANd a month later it
>was done. But HAng in there lady cause we all here too waiting and
>hoping. God Bless you and take care of you .
>Lillian
>>It seems to be getting more difficult to work at my job now.I just
>>finished seeing my pain dr who put me on demerol for the pain.But I
>>don't like being on pain medication of any kind unless I am in serious
>>pain. I just had my 10th surgery and lost 4 pints of blood in less than
>>30 minutes. I am so scared now, because this pain is not going away and
>>I am too afraid that I may lose my job. I have been taking care of my
>>mother who's health is not good and have been helping her out the best
>>that I can under the circumstances.I love my job and my company knows
>>the disease that I have. I am under FMLA intermittinly only.It last for
>>only 3 mos at a time. So everytime my FMLA is going to expire, my
>>primary care dr just fills out FMLA forms again.The last surgeon I had
>>almost killed me. He did not care if I had lived or died. I know
>>eventually I'll have to have surgery again soon, but I am trying to put
>>it off so that I can finish my bankrupcty with my attorney. I sometimes
>>wish I would die on the operating table so that I wouldn't have to put
>>so much pressure on my mom and sis. I just hate putting them thru this
>>all the time. I have my good days and more often lately bad days. I
>>know in my heart that this last surgeon made a horrible mistake on me to
>>which I have to live with for the rest of my life. I even have pictures
>>to prove he wronged me. I am so grateful for finding this site and I
>>pray for each and every sufferer with ARD. I can't afford to go to
>>Germany for surgery, but God has helped me along the way. Please pray
>>for me.
>>Thanks
>>Dalene