Re: ADHESIONS CALM DOWN

From: Carolyn J Meadows (lilly-lady@insightbb.com)
Wed Jul 2 17:39:28 2003


Amen Connie, well said!! If someone doesn't like a post, it is only a click away, they don't have to read it. From these post many have been given comfort and relief from this horrible suffering problem ARD. I find it hard to believe some try to tell others how to post and what is proper in their mind. My only intent is to help others have what I have......but that seems to cause a lot of problems. Love carolyn

>----- Original Message -----
From: "Spincon58 ." <spincon58@hotmail.com> To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net> Sent: Wednesday, July 02, 2003 4:50 PM Subject: Re: ADHESIONS CALM DOWN

>
> EVERYONE!!!!!!!!
>
> CALM DOWN!!!! These are all stories from suffers ....take what you want
and > leave the rest.... share your stories or keep quite.educate or close your
> eyes .DO WHAT EVER YOU LIKE < but don't ever judge anyone on this
board..we > are all here to help!!!!!help each other....so if you don't like something
> said relax it might not be in the best intreset to you, but it can benifif
> someone else...thank god Karen and others told her story.....I choice to
go > to Germany......I feel for everyones pain from ARD but lets not have pain
> from a support group!!!!!!!
>
> Connie
>
> >From: Adhesions Society <adhesions@adhesions.org>
> >Reply-To: adhesions@adhesions.org
> >To: Multiple recipients of list ADHESIONS <adhesions@dns.obgyn.net>
> >Subject: ADHESIONS digest 2822
> >Date: Wed, 2 Jul 2003 13:14:38 -0500
> >
> > ADHESIONS Digest 2822
> >
> >Topics covered in this issue include:
> >
> > 2) Re: Your thoughts and prayers for Ann Marie
> > by sweetlilqt913@aol.com (AnnMarie)
> > 3) I also have a VERY important question can ANYONE PLEASE help???????
> > by sweetlilqt913@aol.com (AnnMarie)
> > 4) An interview with a specialist in the prevention of adhesions
> > by "Helen Dynda" <olddad66@runestone.net>
> > 5) Re: Found a New Doctor!
> > by jeanninemonfre@yahoo.com (Nina)
> > 6) Re: I also have a VERY important question can ANYONE PLEASE
> >help???????
> > by jeanninemonfre@yahoo.com (Nina)
> > 7) My appointment yesterday
> > by noemail@email.com (Elaine)
> > 8) What is the complete medical term for c-diff?.......for AnnMarie
> > by "Helen Dynda" <olddad66@runestone.net>
> >
> >----------------------------------------------------------------------
> >
> >----------------------------------------------------------------------
> >Date: Tue, 1 Jul 2003 23:02:08 -0500 (CDT)
> >----------------------------------------------------------------------
> >From: sweetlilqt913@aol.com (AnnMarie)
> >To: ADHESIONS@OBGYN.NET
> >Subject: Re: Your thoughts and prayers for Ann Marie
> >Message-ID: <200307020402.h62428s20337@dns.obgyn.net>
> >
> >I want to thank Dawn, and karen, and anyone else who put me in there
> >thoughts and prayers, while i was in the hospital. I am now home, with
> >the help of my moms persistance.I am still sick, and was in the hospital
> >for another medical problem I have called hydrocephalus ( fluid on the
> >brain) not adhesion related.
> >I went to the er in boston wed. afternoon,with a severe headache,
> >nausea, and a fever of 103.8, and blood in my stool and spent many
> >loooong hours in the er while they did a million tests, and tuck needles
> >in my head ( with no novacaine and wide awake might I add)to test fluid
> >from my brain, and was admitted to pediatrics thursday morning at 2:00
> >am. They found I had c-diff,and mywhite blood count was high, but they
> >didnt find anything wrong ith my shunt( the tube that i perminitly have
> >to drain the fluid from my head into my abdomen) however with all 4
> >shunt taps they did ( which is when they stick a needle in the top of my
> >head where my shunt begins, and takes a sample of fluid, thy are the
> >most PAINFUL things I ever have to have, they keep you awake to do it,
> >and do NOT use any novicaine! when they did all 4 shunt taps ( which
> >should be called shunt stabs because they are the MOST painful things in
> >the world, and trust me even tho I'm only 19 have been thry some pretty
> >painful things in my life.) wellwhen they did it ALL 4 times NO fluid
> >came out at all th firs 3 times and the last time the Dr , nurse, and my
> >mom said only 1 in ahalf to 2 drops of fluid cam out, which usually
> >doesnt happen and the dr said isnt suppose to happen, which would make
> >me think is why I'm so sick, but they had no explaination of why I'm
> >sick or why i had no fluid. My mom is pretty upset and so am I cause I
> >spent 6 days in the hospital, and went thru heck,and am not n e better
> >then whe I went in except my fever is gone. We are thinking about
> >looking for a new neurosurgen. To me and my mom this isnt something you
> >can just say well were not sure if somethings wrong and if there is wht
> >it is, this is my brain were talking about! Well thats pretty much
> >everything in a long story short. I also want to let EVERYONE here know
> >what a wonderful person Dawn is, she came to visit me at the hospital,
> >and me and my mom fell inlove with her! she is SOOOOOOO sweet, and is a
> >1in a million friend, andan exceptional person, and I am vry happy to
> >have met her in person, she is just as beautiful on the outside as she
> >is on the inside, and I am SOOOOOOOOOOO gratful to have met her! Agian
> >thanks everyone who had me in there thoughts expcially dawn nd karen it
> >really means alot! I hope everyone is feeling well.
> >
> >At Fri, 27 Jun 2003, Dawn wrote:
> > >
> > >Please all, Ann Marie has ended up in hospital and has access to a
> > >computer there. I am sure she could use a dose of hope, love and
> > >courage from us. Please let her know how much we care and post a short
> > >note if you can.
> > >Love,
> > >Dawn
> >
> >------------------------------
> >
> >------------------------------
> >Date: Tue, 1 Jul 2003 23:32:12 -0500 (CDT)
> >------------------------------
> >From: sweetlilqt913@aol.com (AnnMarie)
> >To: ADHESIONS@OBGYN.NET
> >Subject: I also have a VERY important question can ANYONE PLEASE
> >help???????
> >Message-ID: <200307020432.h624WCC06288@dns.obgyn.net>
> >
> >as I had mentioned in my last message, I have or at least had I'm pretty
> >sure I still do have c-diff, from being on 3 antibiotics(levoquin twice
> >and zythromax once)for 2 months(may-june)for a oral surgery for an oral
> >infection plus vacomycin last year for 4 months IV in the hosital and at
> >home fora ver bad shunt infection. now I have c-diff! its so horrible I
> >think as I understand from the Dr's while I was in the hospital, that
> >c-diff is some kind of infection in the bowel and intestine? I was
> >wondering if anyone has ever had tis before, and what they did for the
> >horrible cramping in the stomache, and awful diareiahh ( since I'm not
> >allowed to tak any type of anti-diahreah meds)because they infection in
> >mybowel and intestines have to get out in order for me to get better. I
> >was just wondering if n e one has ever had c-diff, and whatthey did and
> >how they coped? It's just SOOOOOOOOO hard, dealing with the affects of
> >c-diff, massive adhessions that I have, and the problems I think are
> >being caused my my vp shunt. I spent my first summer out of high scholl
> >( I graduated june 6, 2002) in the hospital very sick with a shunt
> >infection, and would like to at least enjoy this summer somewhat I know
> >with the adhesions that is gonna be hard as I cant even enjoy days from
> >adhesion pain, nevermind a summer, but this c-diff on top of everything
> >else I'm going thru is really hard to deal with, I feel so ill I only
> >get off the couch to come on this site, and go to the bathroom.I'm not
> >trying to itty myself, as I know many others hve just as many if not
> >more problems then me, but I'm only 19 and theres only so much I can
> >handle. Any info would help greatly. Thanks in advanced,
> >
> >------------------------------
> >
> >------------------------------
> >Date: Wed, 2 Jul 2003 00:56:42 -0500
> >------------------------------
> >From: "Helen Dynda" <olddad66@runestone.net>
> >To: <adhesions@adhesions.org>
> >Subject: An interview with a specialist in the prevention of adhesions
> >Message-ID: <001701c3405e$b75c7860$cfc7a83f@olddad66>
> >MIME-Version: 1.0
> >Content-Type: multipart/alternative;
> > boundary="----=_NextPart_000_0014_01C34034.CD924C60"
> >
> >------=_NextPart_000_0014_01C34034.CD924C60
> >Content-Type: text/plain;
> > charset="Windows-1252"
> >Content-Transfer-Encoding: quoted-printable
> >
> >X> Prevention of Postoperative Adhesions ... OBGYN.net Global Medical > >Director, Hans van der Slikke, MD, PhD interviews Mark Martens, MD .....
= > >This interview took place at the OBGYN.net Conference at Orlando, > >Florida, October 22-24, 2001
> >
>
>http://www.obgyn.net/displaytranscript.asp?page=/avtranscripts/asrm2001> >-martens
> >
> >NOTE: If the above is not completely highlighted...
> >
> >1.) Enter: http://www.google.com/
> >
> >2.) Enter: Mark Martens, MD (in the search box)
> >
> >3.) Click: Google Search
> >
> >4.) Scroll down to and click: "Prevention of Postoperative Adhesions"
> >
> >------=_NextPart_000_0014_01C34034.CD924C60
> >Content-Type: text/html;
> > charset="Windows-1252"
> >Content-Transfer-Encoding: quoted-printable
> >
> ><!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN">
> ><HTML><HEAD>
> ><META content="text/html; charset=windows-1252" > >http-equiv=Content-Type>
> ><META content="MSHTML 5.00.3314.2100" name=GENERATOR>
> ><STYLE></STYLE>
> ></HEAD>
> ><BODY bgColor=#ffffff>
> ><DIV><FONT size=2>X&gt; Prevention of Postoperative Adhesions<FONT
> >color=#cc0000> ... OBGYN.net</FONT> Global Medical Director, <A
> >href="http://www.obgyn.net/meet.asp?page=/bibliography/slikke">Hans > >van der
> >Slikke, MD, PhD</A> interviews Mark Martens, MD ..... <FONT > >size=2><FONT
> >size=2>This interview took place at the OBGYN.net Conference at > >Orlando,
> >Florida, October 22-24, 2001</FONT></FONT></FONT></DIV>
> ><DIV>&nbsp;</DIV>
> ><DIV><FONT size=2><A
>
>href="http://www.obgyn.net/displaytranscript.asp?page=/avtranscripts/>
>asrm2001-martens">http://www.obgyn.net/displaytranscript.asp?page=/avtr> >anscripts/asrm2001-martens</A></FONT></DIV>
> ><DIV>&nbsp;</DIV>
> ><DIV><FONT size=2>NOTE:&nbsp; If the above is not completely
> >highlighted...</FONT></DIV>
> ><DIV>&nbsp;</DIV>
> ><DIV><FONT size=2>1.) Enter:&nbsp; <A
> >href="http://www.google.com/">http://www.google.com/</A></FONT></DIV>
> ><DIV>&nbsp;</DIV>
> ><DIV><FONT size=2>2.) Enter:&nbsp; Mark Martens, MD (in the search
> >box)</FONT></DIV>
> ><DIV>&nbsp;</DIV>
> ><DIV><FONT size=2>3.) Click:&nbsp; Google Search</FONT></DIV>
> ><DIV>&nbsp;</DIV>
> ><DIV><FONT size=2>4.) Scroll down to and click:&nbsp; "Prevention of
> >Postoperative Adhesions"</FONT></DIV>
> ><DIV>&nbsp;</DIV>
> ><DIV>&nbsp;</DIV></BODY></HTML>
> >
> >------=_NextPart_000_0014_01C34034.CD924C60--
> >
> >------------------------------
> >
> >------------------------------
> >Date: Wed, 2 Jul 2003 09:10:35 -0500 (CDT)
> >------------------------------
> >From: jeanninemonfre@yahoo.com (Nina)
> >To: ADHESIONS@OBGYN.NET
> >Subject: Re: Found a New Doctor!
> >Message-ID: <200307021410.h62EAZZ23753@dns.obgyn.net>
> >
> >At Tue, 1 Jul 2003, Craig Richardson wrote:
> > >
> >Thank you for the vote of confidence!
> >
> > >DEAR NINA,
> > >CONGRATULATIONS ON FINDING A DOCTOR WHO WILL LISTEN TO YOU AND ACTUALLY
> >TELL
> > >YOU WHAT IS GOING ON! AND YOU ARE TWICE AS LUCKY BECAUSE SHE IS A WOMAN
> >AND
> > >I THINK THEY MAY UNDERSTAND WOMENS PROBLEMS EVEN BETTER. WE ALL CAN'T
> >AFFORD
> > >TO GO TO GERMANY FOR SURGERY SO FINDING SOMEWHERE HERE TO HELP IS
SOOOOO > > >GREAT!
> > >CONGRATULATIONS AND GOOD LUCK WITH TRYING TO GET PREGNANT!
> > >SHERRY G
> > >-----Original Message-----
> > >From: "Nina" <jeanninemonfre@yahoo.com>
> > >To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net>
> > >Date: Tuesday, July 01, 2003 3:46 PM
> > >Subject: Found a New Doctor!
> > >
> > >>Hello all, it's been a bit. First I would like to thank the members
of > > >>this site for being so responsive when I was first writing you.
> > >>Sometimes it just helps to "hear" that you are not alone. Second I
> > >>would like to thank everyone for sharing so much information. It is
> > >>what gave me the courage to go and get a second opinion. I went and
saw > > >>a beautiful and wonderful Endo/ fertiltiy specialist yesterday. First
> > >>she confirmed (due to an episode of significant bleeding 1 1/2 weeks
ago > > >>after exersize) that my adhesions are most likely already reforming.
> >But
> > >>what I adore about her is that she and her NP believe 100% in the pain
> > >>that adhesions can cause! She also discussed the fact that surgery is
> > >>not desired until absolutely necessary (as it can promote new growth).
> > >>My old MD never mentioned this. Instead of Lupron or some of the
> > >>heavier "menopause" inducing drugs she is suggesting I alternate
periods > > >>until we try and get pregnant by "skipping" my greens(will try in 6-12
> > >>months). She discussed with me that if I do need a Lap prior to
> > >>pregnancy, that she will lay down barriers to reduce the chances of
new > > >>growth. I do not know if it is the same as used in Germany, but
> > >>anything is better than nothing. She also explained that since my 2nd
> > >>Lap revealed adhesions in completely different areas than the first
that > > >>the barrier may not be effective, but that her goal is for me to have
a > > >>baby, and to have quality of life. She will work with my fiance and I
> > >>(we both have significant health problems) to help us try to get
> > >>pregnant within the means we are comfortable with. Most of all, not
> > >>only did she listen to me, but she HEARD me. She was impressed with
the > > >>questions I asked, and how I was able to describe in detail absolutely
> > >>everything. She was impressed that 12 months before wanting to get
> > >>pregnant I was in her office wanting to know what I can do proactively
> > >>to achieve my goals of living with minimal pain, and having a child.
> > >>
> > >>It's back, and I know it's back. 2 1/2 months after my last procedure
> > >>that is a definite. But I know I have someone in my corner that is
> > >>going to fight this as much as me. In my book it's the fight that
makes > > >>you a success, no matter the outcome.
> > >>
> > >>So thank you to this site, for igniting the fighter within me. May we
> > >>all find someone to hear us.
> > >>
> >
> >------------------------------
> >
> >------------------------------
> >Date: Wed, 2 Jul 2003 09:18:17 -0500 (CDT)
> >------------------------------
> >From: jeanninemonfre@yahoo.com (Nina)
> >To: ADHESIONS@OBGYN.NET
> >Subject: Re: I also have a VERY important question can ANYONE PLEASE
> >help???????
> >Message-ID: <200307021418.h62EIHK29726@dns.obgyn.net>
> >
> >At Tue, 1 Jul 2003, AnnMarie wrote:
> > >Cdif may or may not be caused from antibiotics. Generally the
treatment > >is further antibiotics (Cdif in itself is a bacteria). Also antibiotics
> >can destroy the flora that naturally occurs in the gut. Without this
flora > >you can also get diarrhea. Try eating yogurt that contains live and
active > >cultures, this can help restore the natural flora. Also it takes a
simple > >stool sample to establish whether the cause is Cdif or not. There are
> >multiple causes for diarrhea, and though it is a pain, it is important to
> >treat it based on the cause, not just to try and contol the symptoms.
Some > >people also acquire short term lactose intolerance from being on
> >antibiotics. Hate to tell you this, but you may have to take a quick
trip > >to the doctor.
> >
> >Hope this helps,
> >
> >Nina
> >
> > >as I had mentioned in my last message, I have or at least had I'm
pretty > > >sure I still do have c-diff, from being on 3 antibiotics(levoquin twice
> > >and zythromax once)for 2 months(may-june)for a oral surgery for an oral
> > >infection plus vacomycin last year for 4 months IV in the hosital and
at > > >home fora ver bad shunt infection. now I have c-diff! its so horrible
I > > >think as I understand from the Dr's while I was in the hospital, that
> > >c-diff is some kind of infection in the bowel and intestine? I was
> > >wondering if anyone has ever had tis before, and what they did for the
> > >horrible cramping in the stomache, and awful diareiahh ( since I'm not
> > >allowed to tak any type of anti-diahreah meds)because they infection in
> > >mybowel and intestines have to get out in order for me to get better.
I > > >was just wondering if n e one has ever had c-diff, and whatthey did and
> > >how they coped? It's just SOOOOOOOOO hard, dealing with the affects of
> > >c-diff, massive adhessions that I have, and the problems I think are
> > >being caused my my vp shunt. I spent my first summer out of high
scholl > > >( I graduated june 6, 2002) in the hospital very sick with a shunt
> > >infection, and would like to at least enjoy this summer somewhat I know
> > >with the adhesions that is gonna be hard as I cant even enjoy days from
> > >adhesion pain, nevermind a summer, but this c-diff on top of everything
> > >else I'm going thru is really hard to deal with, I feel so ill I only
> > >get off the couch to come on this site, and go to the bathroom.I'm not
> > >trying to itty myself, as I know many others hve just as many if not
> > >more problems then me, but I'm only 19 and theres only so much I can
> > >handle. Any info would help greatly. Thanks in advanced,
> >
> >------------------------------
> >
> >------------------------------
> >Date: Wed, 2 Jul 2003 10:27:35 -0500 (CDT)
> >------------------------------
> >From: noemail@email.com (Elaine)
> >To: ADHESIONS@OBGYN.NET
> >Subject: My appointment yesterday
> >Message-ID: <200307021527.h62FRZt19337@dns.obgyn.net>
> >
> >Sally, thank you for your response from yesterday!
> >
> >I went to the doctor yesterday. He was nice. Said that my problems
> >don't sound like a back problem, but an adhesion problem. He said that
> >no gynecologist would operate because of adhesions and maybe a general
> >surgeon would. He said what I already knew - more surgery, probably
> >more adhesions and more pain. Something I'm not wanting to do anyway.
> >I'm in more pain now after the second surgery than I was before. I wish
> >I had just kept the cyst ;).
> >
> >He did put in a referral for a second opinion gynecologist. I should
> >have that in two weeks or so and then it will probably take another
> >month to be seen. Waiting is something I've learned a great deal about
> >lately ha!
> >
> >Anyhow, the consensus was, it's probably adhesions and there's nothing
> >anyone will do until I get a bowel obstruction. I asked about
> >anti-depressants for pain and he didn't really say one way or the other.
> >I left knowing about as much as I knew going in. This is pretty much my
> >life now and I'm just going to have to help myself learn how to deal
> >with the physical pain and the emotional strains that it causes.
> >
> >I go back to my GI doctor next Monday. He had ordered all kinds of
> >tests on my stool that I'm pretty sure will come back fine. I've added
> >a lot of fruit and bran to my diet (and prune juice) that is helping to
> >at least keep things moving ;).
> >
> >So, no news really. No advice on getting rid of the pain. I'm up for
> >suggestions on things that will help the pain though. I'm thinking
> >meditation might be beneficial? I don't think it could make things worse
> >ha!
> >
> >Thanks for listening!
> >
> >------------------------------
> >
> >------------------------------
> >Date: Wed, 2 Jul 2003 11:19:08 -0500
> >------------------------------
> >From: "Helen Dynda" <olddad66@runestone.net>
> >To: <adhesions@adhesions.org>
> >Subject: What is the complete medical term for c-diff?.......for AnnMarie
> >Message-ID: <006301c340b5$ab6e59e0$f11593ce@olddad66>
> >MIME-Version: 1.0
> >Content-Type: multipart/alternative;
> > boundary="----=_NextPart_000_0060_01C3408B.C18422C0"
> >
> >------=_NextPart_000_0060_01C3408B.C18422C0
> >Content-Type: text/plain;
> > charset="Windows-1252"
> >Content-Transfer-Encoding: quoted-printable
> >
> >Dear Ann Marie,
> >
> >You said: "I'm pretty sure I still do have c-diff, from being on 3 > >antibiotics (levoquin twice and zythromax once) for 2 months."
> >
> >I'm not a medical professional; so I have no idea what c-diff is.
> >
> >Please provide the complete medical term for c-diff. That's the only > >way I can search for information about this medical problem.
> >
> >Love, Helen
> >
> >------=_NextPart_000_0060_01C3408B.C18422C0
> >Content-Type: text/html;
> > charset="Windows-1252"
> >Content-Transfer-Encoding: quoted-printable
> >
> ><!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN">
> ><HTML><HEAD>
> ><META content="text/html; charset=windows-1252" > >http-equiv=Content-Type>
> ><META content="MSHTML 5.00.3314.2100" name=GENERATOR>
> ><STYLE></STYLE>
> ></HEAD>
> ><BODY bgColor=#ffffff>
> ><DIV><FONT size=2>Dear Ann Marie,</FONT></DIV>
> ><DIV>&nbsp;</DIV>
> ><DIV><FONT size=2>You said:&nbsp; "I'm pretty sure I still do have > >c-diff, from
> >being on 3 antibiotics (levoquin twice and zythromax once) for 2 > >months."&nbsp;
> ></FONT></DIV>
> ><DIV><FONT size=2></FONT>&nbsp;</DIV>
> ><DIV><FONT size=2>I'm not a medical professional;&nbsp; so I have no > >idea what
> >c-diff is.</FONT></DIV>
> ><DIV><FONT size=2></FONT>&nbsp;</DIV>
> ><DIV><FONT size=2>Please provide the complete medical term for > >c-diff.&nbsp;
> >That's the only way I can search for</FONT><FONT size=2><FONT > >size=2>
> >information about this medical problem.</FONT></FONT></DIV>
> ><DIV>&nbsp;</DIV>
> ><DIV><FONT size=2>Love, Helen</FONT></DIV>
> ><DIV>&nbsp;</DIV>
> ><DIV>&nbsp;</DIV></BODY></HTML>
> >
> >------=_NextPart_000_0060_01C3408B.C18422C0--
> >
> >End of ADHESIONS Digest 2822
> >****************************
>


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