Hi Maria,
Yes, Melissa had minimal invasive surgery........and Dr. Kruschinski
uses scissors, not laser, to preform the adhesiolysis. He showed us
the tools he would be using for Melissa's surgery during our office
visit with him prior to surgery.
He uses the AbdoLift system instead of CO2.......this unique way to
open the abdomen for surgery does away with the risk factor of
adhesion formation that comes from the usage of CO2...................
CO2 also cause cell death and is much of the reason a person needs
pain medication for an extended time period after surgery. My
daughter had adhesions removed all through the large and small bowel, on
her stomach, diaphragm, liver, and pelvic areas, however she required
very little pain medication! The third day after her surgery we walked
downtown and had lunch..........she was only SORE from surgery, not in
pain from surgery. It was quite different from surgery in the US.
I am so glad to share with others the hope of being free of adhesion
pain! I am on cloud nine, ten, eleven..........lol.........now that I have
my
beautiful daughter back...........it is like a re-birth!! She had been in
bed for fourteen years, watching the world go by and living a life
of pain...........only two years when she was in her early twenties she had
a strange reprieve, off and on, from the nausea, headaches, vomiting, etc...
.....and
we thought she might mysteriously be getting well...........suddenly she was
hit again and with more force than the previous years, as she developed
more symptoms and more pain than ever.
No doctor in the US helped her although I took her to ones that were
suppose to be the best......... we have heard IBS and spastic colon enough
that I began envisioning the doctors' coats being made of "IBSIBSIBS "
printed fabric!!!!!!
The next day they wear the "SPASTICCOLONSPASTICCOLONSPASTICCOLON"
fabric...........it is enough to make you go insane!!!!!!
You feel so hopeless!!! We are geared to believe if you are sick the doctor
gets you well.............I am no longer geared in that fashion and neither
is
Melissa...............Melissa had REALLY given up hope!
I am glad to tell you that Dr. Kruschinski is human first and doctor
second!!
He saw the pain Melissa was in when we arrived in Germany and though she
was suppose to sit and talk about her surgery, he told us to go to the
apartment
and rest and we would talk tomorrow...............
You can read all about Dr. Kruschinski at http://www.EndoGyn.com . You should
be able to find a list of contact people you can write and ask them about
their experience! Melissa isn't the only one that has her life back.........
..
I wish you the best!!
Hugs,
Karen
-------Original Message-------
From: adhesions@adhesions.org
Date: Tuesday, June 24, 2003 10:57:36 AM
To: Multiple recipients of list ADHESIONS
Subject: Questions for Karen from Maria
Karen,
Thank you for your message, I do appreciate any suggestions I can get
from everyone. I have a question....did your daughter had a "Minimally
Invasive Surgery through laparoscopy or an open surgery?" The last
surgeon I've seen last month was not the only surgeon that turned me
down. They just don't do laparoscopic surgery to use laser to remove
the adhesions. The last surgeon I have seen advise me to see if I can
find a surgeon that does "Minimally Invasive Surgery", since they do not
have this kind of procedure here in Nevada. I was told that 70-80
percent of the adhesions will not come back. I am willing to take my
chances, I guess I am really desperate because of the pains I have been
having for a long time. But the surgeon I'm going to see in California
does not perform open surgery. I read his credentials before I called
him and made an appointment. He specialize on Adhesiolysis, which he
learned from Europe and Dallas, TX. Please, if you can share it with me
what kind of procedures they did to your daughter, I will very much
appreciate it. So then it will give me something to think about if I
should go through with this or not. Again, Thank you so much Karen for
replying on my message.
Sincerely,
Maria
At Mon, 23 Jun 2003, Karen Steward wrote:
>
>Maria,
>
> I know your message is for Katherine......but I am sooooooo
>bothered about you going for more surgery in the States.
>My daughter and I flew to California last September to a very
>popular "world renowned" surgeon.........she had surgery.........
>her "recovery" time was 12 weeks in BED after we returned
>home...........she got so much worse after that surgery!!!
>
>Please think long and hard before subjecting your body to
>surgery in the US.......so very, very few can report good
>results, as the US surgeons use CO2 (causes adhesions to form
>in areas they are not even working on!!!)...........there is no
>SprayGel available to apply once the adhesions are taken down.
>
>You state that you are a complicated case....and you have had one
>doctor turn you down............a complicated case needs a
>surgeon that is skilled in handling complicated cases!!!
>Dr. Kruschinski in Germany has handled many complicated cases!
>Please e mail him before you submit yourself to more surgery.......
>he will be glad to answer you.............
>
>I am so sorry to report that many a doctor will wheel you right into the-- >operating room in the US because they make money doing so.
>It is sad but true that they KNOW the risk of reformation of adhesions
>is HIGH...........but most will never being that fact up in discussion.
>You must realize, along with everyone reading, surgery is their
>business, regardless of your outcome....................
>
>As you well know, adhesion pain is a HUGE problem...........and
>currently the majority of success stories are coming out of Germany.
>Dr. Kruschinski does not use CO2.........and he is VERY talented in
>bringing the patient to an adhesion free state!
>
>I can give you a list of people to email and ask about their surgeries
>with him..........I know I sound like a broken record, but I made a prom se
>in prayer that I must keep.........if my daughter EVER became well after 14
>miserable years, I will share her story so others can be free........... .
>a lot of people that have regained their lives do not post very often... s
>they are out enjoying life again (as my daughter is) and they are making
>up for lost time...........................................so here I am,
>one more time..............sharing with YOU..........
>
>Sincerely,
>
>Karen
>
>-------Original Message-------
>
>From: adhesions@adhesions.org
>Date: Monday, June 23, 2003 10:37:07 PM
>To: Multiple recipients of list ADHESIONS
>Subject: Re: Katherine wrote on June 22, 2003
>
>This message is for Katherine wrote June 22, 2003. My name is Maria and
>like you I am suffering from chronic abdominal pains for the last 3
>years now. I have been seen and done all kind of procedures on me and
>also got all kinds of opinions from different surgeons. And all of them
>told me "adhesions do not cause pains", and they are all wrong! They
>just don't have no idea nor understand how this is causing our daily
>lives. I have been suffering from depression and anxiety because of the
>pains I am having. I am on all kind of high narcotic pain medications.
>I even went to pain management and they did something to kill the pain
>by putting needle on my back all the way to my abdomen, and boy I was in
>total pain! They had to do it again the second time which the pain got
>worst. I've been admitted to the hospital so many times cause of the
>pains and my stomach distented looks like I'm 6-7 months pregnant. But
>all they did is just keep shooting me with pain killers, you name it I
>already had them all. My husband co-worker referred us to one of the
>best doctor here in Las Vegas, Nevada. And he is a great doctor. He
>believes what I am going through and helping me find a surgeon who will
>do "Adhesiolysis." I almost had a surgery here but the surgeon
>backed-out. He told me that it will be very complicated to do an open
>surgery, since I had 8 different surgeries in the past including
>hysterectomy due to severe adhesions. So, I did a research myself on
>the net. I found one in Pennsylvania who specialize on "Adhesiolysis"
>or Minimally Invasive Surgery. But it's too far for me to go to. And
>luckily, 2 weeks ago I found one in Riverside, California which I'm
>going to see for consultation early next month and he will let me know
>if I am a candidate for the procedure. He specialize on this kind of
>health situation and also he does bariatric surgery. So, once I see him
>next month, I will let everyone of you knows the outcome of my
>consultation. Maybe that will help for those who's in need of help that
>lives in California. I can relate to all who have this kind of
>situation, since I am one of you...suffering from it and seems like most
>doctors do not understand. I hate it when most of them told me that I
>will have to live with this pain and take pain killers for the rest of
>my life. NO! That's not the answer for me...I am keeping my finger
>cross that this doctor will be able to help. So I can go back to my
>normal life, be able to work again and focus to my family and not the
>pains I am having right now. You might also ask your doctor if they can
>prescribe you an "Actiq", this medication is like a lollipop and it does
>work great. Goodluck to all of us who is suffering from this illness.
>Someday, we will be able to do the things we used to do and enjoy life
>again.
>Sincerely,
>
>--
>
>Maria T. Jackson Las Vegas, Nevada
>
>At Sun, 22 Jun 2003, Katherine wrote:
>>
>>I explained the pain I've been having in my right side, the burning the
>>pulling, the stinging. I explained it's getting worse not better and
>>that it happens every time I stand up for more than a few minutes. (My
>>doctor was out of town so I saw one of her partners.) I also explained
>>that my doctor found adhesions on the right side during the laparoscopy
>>As it turns out, I have a uterine infection along with the adhesion
>>pain. White blood cells were elevated and I had a lot of
>>pain/tenderness in my uterus. I still have the pain from adhesions
>>though and I've been documenting how long it lasts, the severity, etc.
>>have had pain that lasts from five minutes to several hours every day
>>this week. And I know it's from the adhesions because it's on the right
>>side. (The other pain was on the left side and in the center.) I don't
>>have the money necessary to make a trip to Germany at this time and I
>>don't even know if it's to the point that I need to go to germany yet.
>>I'm sure this is only going to get worse, not better. It's gotten so
>>much worse just in the last two months. I don't know what else to do
>>except to go back to my doctor and discuss my options.
>
>.
>
.