Re: Spraygel

From: Robin M (rmasse2333@aol.com)
Sun Jun 22 07:41:52 2003


Dear Lillian, First I want to tell you that you are NOT worthless. Please keep the faith. I am sure that spray gel will get FDA approved and there will be a DR in the US that will soon be able to use it successfully. I know what a hard time you are having. I was there just over a month ago. I didn't have the money to go to Germany either. I thought that I would be in bed for ever. Never give up hope as hope is what kept me going in times like you are going through now. Many of my family put in money for me to go and I had a couple of raffles & sold things on ebay. Some from this board also gave me money to get there. I know it is hard right now, but never give up!! Don't let adhesions win. You can always email me. my love & prayers robin M

At Sat, 21 Jun 2003, Lillian wrote: >
>Hello,
>Its been sometime since I have posted here. I want all of you to know I
>am here for you if you need to talk. I come here atleast 2 times a week
>and check your conversations and see if there anything I can add. Well
>I just want all of you to know I feel for all of you. I too am in in a
>vicious cylce of pain. The reality of it all is there is no hope in
>sight for those of us who cannot afford to go to Germany. It is so sad.
>Our medical professionals have let us down.We have nothing. Absolutely
>nothing to look forward to. Spraygel is no longer having trials in the
>US. We are doomed. Atleast that is the way I feel. No one cares about
>us. We are a hopeless breed. I have had multiple surgeries without
>avail. I can't beleive this. It is so sad to say our government and
>our doctors have just let us out to pasture to rot in this god forsaken
>illness. I no longer have a life. I get up in the morning and take a
>shower and return to bed.My pain levels are too high to think of doing
>anything else. I am so allergic to so many meds no one can find
>anything to rleive my pain. One doc turns you over to another and they
>all make fun of you. I am worthless. I have 3 children and a wonderful
>husband and I'm only 43 and I am living as a 90 yr old. I'm sorry if I
>sound depressed. I don't mean to be. I was always the one to cheer
>everyone around me up and now I am nothing,absolutely nothing.
>Hanging by a thread.
>Lillian


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